A prospective investigation of developmental trajectories of psychosocial adjustment in adolescents facing a chronic condition - study protocol of an observational, multi-center study

Abstract

Background Relatively little is known about protective factors and the emergence and maintenance of positive outcomes in the field of adolescents with chronic conditions. Therefore, the primary aim of the study is to acquire a deeper understanding of the dynamic process of resilience factors, coping strategies and psychosocial adjustment of adolescents living with chronic conditions. Methods/design We plan to consecutively recruit N = 450 adolescents (12–21 years) from three German patient registries for chronic conditions (type 1 diabetes, cystic fibrosis, or juvenile idiopathic arthritis). Based on screening for anxiety and depression, adolescents are assigned to two parallel groups – “inconspicuous” (PHQ-9 and GAD-7 < 7) vs. “conspicuous” (PHQ-9 or GAD-7 ≥ 7) – participating in a prospective online survey at baseline and 12-month follow-up. At two time points (T1, T2), we assess (1) intra- and interpersonal resiliency factors, (2) coping strategies, and (3) health-related quality of life, well-being, satisfaction with life, anxiety and depression. Using a cross-lagged panel design, we will examine the bidirectional longitudinal relations between resiliency factors and coping strategies, psychological adaptation, and psychosocial adjustment. To monitor Covid-19 pandemic effects, participants are also invited to take part in an intermediate online survey. Discussion The study will provide a deeper understanding of adaptive, potentially modifiable processes and will therefore help to develop novel, tailored interventions supporting a positive adaptation in youths with a chronic condition. These strategies should not only support those at risk but also promote the maintenance of a successful adaptation. Trial registration German Clinical Trials Register (DRKS), no. DRKS00025125. Registered on May 17, 2021.

Resilience As a Strengthening Capital for Covid Patients

“…Pain is a sensory and emotional experience and is also influenced by various psychological factors [1]. Psychological resilience is a psychological resource that facilitates individuals adapting to disease [8]. Through resilience, individuals can cope with pain and transform themselves or maintain conditions to function competently in the face of various stressors in life.…”

“…Having a chronic condition (CC) means facing an additional stressor in life [8]. This condition certainly affects the public's perception of the Covid-19 disease.…”

Können Resilienz und Selbstwirksamkeit Therapieelemente in der Behandlung chronisch kranker Kinder und Jugendlicher sein?

“…DieOptimierungderVersorgungvonchronischkrankenKin-dernundJugendlichendurchsystematischenEinsatzvonFragebö-genwirdinLängsschnitt-Studienuntersucht [38].DerEinsatzvon E-Health-Programmenerlaubt,dassdieBögenanTabletspatientenfreundlich ausgefüllt werden. Vor allem aber ermöglicht es, dass dasBehandlungsteamdieErgebnissekennt,bevordiePatient*innen gesehen werden.…”

“…Die Optimierung der Versorgung von chronisch kranken Kindern und Jugendlichen durch systematischen Einsatz von Fragebögen wird in Längsschnitt-Studien untersucht 38 . Der Einsatz von E-Health-Programmen erlaubt, dass die Bögen an Tablets patientenfreundlich ausgefüllt werden.…”

The incidence and causes of acute hospitalizations and emergency room visits in adolescents with type 1 diabetes mellitus prior to and during the COVID-19 pandemic: a single-centre experience

“…Minors during this time were ordered to stay indoors unless accompanied by a legal guardian. Deployment of the nationwide lockdown particularly affected the at-risk population suffering from chronic conditions, which includes T1DM paediatric patients [ 9 , 10 ]. This situation forced them to come face to face with another coping challenge caused by emotional distress, psychosocial disruptions, and uncertainty about the future [ 9 , 11 ].…”