A Psychologic Assessment of the Parents of Patients With Cleft Lip and Palate

Abstract

The aim of this study was to evaluate the psychologic burden in terms of depression, anxiety, and stress among the parents of children with congenital craniofacial deformity, nonsyndromic cleft lip and/or palate (CL/P) with early and late diagnosis and/or treatment. In this study, total 240 patients were enrolled, out of which 72 were parents (either mother/father) of CL/P children, below 10 years (group A: before adolescence), 70 were parents of CL/P children, above 10 years of age (group B: after adolescence), and 98 were parents of children with no CL/P or any other genetic disorder (group C). Depression, anxiety, and stress scale-21 was administered in all groups after obtaining the informed consent. Mean ranks of group B revealed a higher score for all the 3 psychologic domains. The CL/P was further divided into only cleft lip, only cleft palate, and both cleft lip and palate groups. A statistically significant difference was observed in group B for all the psychologic domains. Analysis of variance was applied between the groups and a P-value <0.05 was considered as statistically significant. Analysis revealed severe to extremely severe depressed state of mind and moderate to severe levels of stress in maximum parents (above 20%) of group B. However, approximately 50% parents of group B showed extremely severe anxiety. Therefore, psychologic assessment helps in providing a psychiatric or psychologic counseling and treatment to the parents of CL/P children.

Evaluation of Anxiety in Turkish Parents of Newborns with Cleft Palate with or Without Cleft Lip

“…12 Furthermore, the intensive medical needs of these children can lead to a financial burden, the need to manage appointments with multiple specialists, lost work days, and additional stress related to unaffected siblings (eg, having less time and attention for siblings, needing child care during medical appointments for the affected child), all of which negatively affect parents' psychosocial well-being. [13][14][15] Understanding parental concerns during the neonatal period can assist healthcare providers in addressing their needs. For example, Chuacharoen et al 16 conducted an interview study regarding the concerns and information needs of parents of children with CLP during the first 3 months after birth.…”

“…12 Furthermore, the intensive medical needs of these children can lead to a financial burden, the need to manage appointments with multiple specialists, lost work days, and additional stress related to unaffected siblings (eg, having less time and attention for siblings, needing child care during medical appointments for the affected child), all of which negatively affect parents’ psychosocial well-being. 13–15…”

Psychosocial repercussions experienced by parents who care for infants with syndromic orofacial clefts

“…Adequate access to treatment and information are essential in the rehabilitation process, in addition to providing comfort to the parents and improving the patient's quality of life. 28,29 Given this scenario, there is an evident need for educational and training programs for health professionals outside specialized centers, public awareness of orofacial clefts and related syndromes, in addition to social support programs. The rarer and more complex the disease, the more expert advice is needed.…”

“…In fact, being welcomed, as well as showing the quality of a service, results in trust and complicity. 28,29 In short, the premises of Symbolic Interactionism are reasserted, which discerns that human beings attribute a meaning based on their social relationships, that is, being supported by a professional suggests that the situation can be dealt with, being less complicated than it seems. 9 Thus, it is necessary to implement and monitor family-centered care models to support not only the primary informal caregivers, but the entire family structure in caring for these children.…”

O cuidar do lactente com fissura de lábio e/ou palato associada à síndrome: repercussões psicossociais vivenciadas por pais cuidadores

“…Além disso, a alta satisfação com os cuidados de saúde que pais e filhos receberam após o diagnóstico da fissura é um fator preditivo essencial de bem-estar (KUMAR et al, 2020).…”