A Qualitative Analysis of a Significant Barrier to Organ and Tissue Donation: Receiving Less-Than-Optimal Medical Care

Denvir, Paul; Pomerantz, Anita

doi:10.1080/10410230903242200

Cited by 9 publications

(9 citation statements)

References 19 publications

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“…This is an issue of particular relevance for immigrants and minorities who tend to be reluctant to register as organ donors because of distrust and feelings of discrimination (Boulware et al 2007;Denvir and Pomerantz 2009;Minniefield, Yang, and Muti 2001). Also in this case there were two contrasting views regarding the point policy and trust in the system.…”

Section: Discussion and Policy Implicationsmentioning

confidence: 97%

“…Morgan et al 2007; S. E. Morgan et al 2008;Boulware et al 2002). Researchers identified several dimensions of mistrust that include fear that doctors will declare death prematurely in order to procure organs, misgivings about equity in the organ allocation system, and a general fear of medical errors made by doctors and hospitals (S. Morgan et al 2007; S. E. Morgan et al 2008;Denvir and Pomerantz 2009). Mistrust in the system is also associated with reluctance to register or to be an organ donor, in particular among minorities who have experienced prejudice and discrimination (Siminoff, Burant, and Youngner 2004;Siminoff and Sturm 2000).…”

Section: Guttman Et Al ■ Organ Donation Prioritization Policy Dilemmmentioning

confidence: 95%

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Laypeople's Ethical Concerns About a New Israeli Organ Transplantation Prioritization Policy Aimed to Encourage Organ Donor Registration among the Public

Guttman¹,

Ashkenazi²,

Gesser‐Edelsburg³

et al. 2011

Journal of Health Politics, Policy and Law

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A new policy recently enacted in Israel promises preferred status in receiving organs for transplantation to individuals who register to be organ donors and to their close family members. Proponents believe it will increase the supply of organs for transplantation from the deceased. Ethical issues were raised in government committees appointed to discuss the policy before its approval, but discussions among laypeople were not solicited. This study aimed to elicit laypeople's views about the policy by conducting thirteen group interviews and thirty-six individual interviews. Participants included religious and nonreligious people, immigrants, and Arabs. Some participants thought the law would contribute to fairness by prioritizing those willing to give, but others articulated ethical concerns that were not emphasized by scholars, in particular that the policy would add to the erosion of social solidarity, increase divisiveness, and enable people to abuse the system. Mistrust in the health care system emerged as a prominent reason for not registering as an organ donor. Implications about the importance of transparency in the organ transplantation system as a basis for an information campaign, social norms regarding organ donation, and the public's involvement in policy issues on organ donation are discussed.

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Section: Discussion and Policy Implicationsmentioning

confidence: 97%

Section: Guttman Et Al ■ Organ Donation Prioritization Policy Dilemmmentioning

confidence: 95%

Laypeople's Ethical Concerns About a New Israeli Organ Transplantation Prioritization Policy Aimed to Encourage Organ Donor Registration among the Public

Guttman¹,

Ashkenazi²,

Gesser‐Edelsburg³

et al. 2011

Journal of Health Politics, Policy and Law

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show abstract

“…The studies cover different national and cultural contexts. There are studies on reluctance to donate in different countries, for example, USA (Denvir and Pomerantz , Siegel et al . ), Israel (Guttman et al .…”

Section: Research Perspectives On Reluctance To Donate Organsmentioning

confidence: 99%

‘Saying no to organ donation’: an empirical typology of reluctance and rejection

Pfaller

Hansen

Adloff³

et al. 2018

Sociology Health & Illness

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In Germany, as well as in other countries, organ shortages are usually explained by a relative unwillingness to donate among a population which is assumed to be caused by a lack of information and mistrust of the system. As we can see in the data of our qualitative research (focus groups and interviews), lack of information or mistrust are not the only reasons for people to be reluctant to agree to the donation of their organs after death. In fact we can identify four positions: (1) information deficit; (2) mistrust; (3) no killing; and (4) bodily integrity. The first and second are the two prominent explanations in the public discourse about low donation rates. The third and the fourth instead have neither been adequately articulated nor been discussed as a proper argument. Therefore, by means of sociology of critique, we discuss their contribution to the discourse as comprehensible reasons for reluctance and present them as credible positions of criticism: These two positions illuminate fundamental and universal values of the inviolability of the person and human dignity. Thus, both positions are consistent and morally justifiable and should be addressed with sensitivity.

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“…The literature in deceased donation research by Denvir and Pomerantz (2009), claim that one component of achieving increased donation numbers in the deceased population and instilling trust in the next-of-kin for donation processes 37 rests with an individual's belief that built-in policies and procedures serve to protect them, not harm them. It is curious that there appears to be less peer-reviewed literature to assist in providing education and empowerment to a potential living kidney donor who is being asked to make an informed decision to donate.…”

Section: Primum Non Nocere: First Do No Harmmentioning

confidence: 99%

The living donor study: the concepts and frames of living kidney donors

Cunningham¹,

Leach²,

Fawcett³

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This thesis explores the concepts and frames of living kidney donors through the use of recorded and transcribed conversations between living kidney donor patients and their transplant team. It offers insight into the expectations of living kidney donors as they prepare themselves to gift a kidney to someone they know.Living kidney donor frames are represented as particularly resilient and well-defined, shielding them from messages delivered by their transplant team. Those frames incorporate their acceptance as living kidney donors, the risk to themselves and their own personal definitions of autonomy and choice.With the intention of using phenomenological discourse analysis to examine the recorded and transcribed data, ten potential living kidney donors and their recipients were invited to take part in a PhD project entitled the Living Donor Study at the Princess Alexandra Hospital, in Queensland Australia. Transcriptions were analysed using line-by-line and axial coding and living donor transcripts were repeatedly compared with one another in order to reach an appropriate level of saturation and provide evidence of re-emerging concepts and frames.Data for the Living Donor Study were obtained during the living kidney donor's initial transplant assessment clinic visit. The purpose of this project was to examine prospective accounts of the living donation experience using conversations with their transplant team as opposed to using retrospective questionnaires and interviewing methods. By eliminating much of the subjectivity that is common in ex post facto interviews, I was able to identify many of the concepts that assist living kidney donors in framing their experience and how those frames impact upon their expectations of the transplant assessment clinic and their upcoming donation.

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A Qualitative Analysis of a Significant Barrier to Organ and Tissue Donation: Receiving Less-Than-Optimal Medical Care

Cited by 9 publications

References 19 publications

Laypeople's Ethical Concerns About a New Israeli Organ Transplantation Prioritization Policy Aimed to Encourage Organ Donor Registration among the Public

Laypeople's Ethical Concerns About a New Israeli Organ Transplantation Prioritization Policy Aimed to Encourage Organ Donor Registration among the Public

‘Saying no to organ donation’: an empirical typology of reluctance and rejection

The living donor study: the concepts and frames of living kidney donors

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