2022
DOI: 10.1080/07853890.2022.2114605
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A qualitative approach to experiential knowledge identified in focus groups aimed at co-designing a provocation test in the study of electrohypersensitivity

Abstract: Patients’ experiential knowledge is increasingly recognised as valuable for biomedical research. Its contribution can reveal unexplored aspects of their illnesses and allows research priorities to be refined according to theirs. It can also be argued that patients’ experiential knowledge can contribute to biomedical research, by extending it to the most organic aspects of diseases. A few examples of collaboration between medicine and patient associations are promising, even if there is no single, simple method… Show more

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Cited by 2 publications
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“…The cause and scientific basis of this syndrome are widely debated [ 3 , 4 , 5 , 6 , 7 ]. The relationship between exposure to electromagnetic fields and patients’ symptoms has not yet been formally and reproducibly demonstrated in provocative studies [ 8 , 9 , 10 ]. However, in their 2020 Joint report, the US National Academies of Medicine, Science and Engineering officially recognized the existence of non-thermal effects of non-ionizing electromagnetic radiation in humans and, in particular, headaches [ 11 ].…”
Section: Introductionmentioning
confidence: 99%
“…The cause and scientific basis of this syndrome are widely debated [ 3 , 4 , 5 , 6 , 7 ]. The relationship between exposure to electromagnetic fields and patients’ symptoms has not yet been formally and reproducibly demonstrated in provocative studies [ 8 , 9 , 10 ]. However, in their 2020 Joint report, the US National Academies of Medicine, Science and Engineering officially recognized the existence of non-thermal effects of non-ionizing electromagnetic radiation in humans and, in particular, headaches [ 11 ].…”
Section: Introductionmentioning
confidence: 99%