A qualitative assessment of the supportive care and resource needs of patients undergoing craniotomy for benign brain tumours

Wong, Janice; Mendelsohn, Daniel; Nyhof-Young, Joyce; Bernstein, Mark

doi:10.1007/s00520-010-1027-2

Cited by 20 publications

(11 citation statements)

References 24 publications

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“…13 Rather, such outcome differences, particularly post-operatively, may be due to varying social support between these groups. For instance, Wong et al 20 recently identified gaps in supportive care among all patients after meningioma resection. They commented on the lack of a formal support system for patients with benign brain tumors and recommended construction of Internet-based support groups, face-to-face support groups, individual peer support, and extending counseling services for patients with cancer as a means of fostering practical support for such patients post-operatively.…”

Section: Discussionmentioning

confidence: 98%

“…Although the Wong et al report identified no racial disparities within their cohort, the sample included only 29 patients, of which a majority was Caucasian. 20 It is possible that these gaps in supportive care may have a larger impact on the African-American population and contribute to the racial disparities seen among patients with meningioma.…”

Section: Discussionmentioning

confidence: 99%

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Racial disparities in medicaid patients after brain tumor surgery

Mukherjee

Patil

Todnem

et al. 2013

Journal of Clinical Neuroscience

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Section: Discussionmentioning

confidence: 98%

Section: Discussionmentioning

confidence: 99%

Racial disparities in medicaid patients after brain tumor surgery

Mukherjee

Patil

Todnem

et al. 2013

Journal of Clinical Neuroscience

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“…The effect of the distress screening time point (preoperatively- postoperatively- during course of therapy) on the screening results remains unclear [ 17 , 18 , 19 ]. A preoperatively increased distress is observed due to the fear of surgical intervention or the risk of death, coma or neurological and physical deficits after surgery [ 9 ].…”

Section: Discussionmentioning

confidence: 99%

Correlation of psychooncological distress- screening and quality of life assessment in neurosurgical patients

et al. 2017

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BackgroundCerebral tumors are associated with high rates of anxiety, depression and reduced health related quality of life. But still psychooncological screening instruments are not implemented in the daily routine of neurosurgical departments. In contrast the EORTC QLQ-C30/ EORTC QLQ- BN20 questionnaire is often used to evaluate quality of life in the framework of clinical studies. We were therefore interested, if conspicuous distress screening results are also reflected by HRQOL assessment.Patients and MethodsPatients who were electively admitted for surgery of intracranial lesions were screened for their psychooncological distress using two self-assessment instruments (Hospital Anxiety and Depression Scale (HADS) and Distress Thermometer (DT)) and one external assessment questionnaire (Psychooncological base documentation (PO-Bado). Results were correlated with three subscales of the EORTC-QLQ-C30 and EORTC-QLQ-BN20 questionnaire.ResultsFrom October 2013 to March 2015, 594 patients were admitted for elective cranial neurosurgical procedure. 489 neurosurgical patients were screened for increased distress. Data from 450 patients could be correlated with the EORTC-QLQ-C30 and EORTC-QLQ-BN20. In 265 patients screening revealed increased distress. A concurrent reduced global health /higher rates of future uncertainty and conspicuous distress screening results are found in 173 patients (69.5%) compared to 30.5% of patients (n= 76) with unremarkable screening. Increased distress screening was highly significant with increased level of future uncertainty as well as decreased level of quality of life and global health (p<0.0001).ConclusionPsychooncological distress is accompanied by reduced quality of life, global heath and increased future uncertainty. Therefore HQOL assessment can be helpful identifying patients with increased distress.

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“…The prospect of undergoing neurosurgery is known to give rise to feelings of threat (Wong et al. 2010).…”

Section: Introductionmentioning

confidence: 99%

“…However, Rozmovits et al. (2010) and Wong et al. (2010) showed that persons with different type of benign brain tumours had a strong need for formal support and improved preoperative and postoperative information.…”

Section: Introductionmentioning

confidence: 99%

Living in a paradox – women’s experiences of body and life‐world after meningioma surgery

Wenström

Ebbeskog

2011

Journal of Advanced Nursing

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wenström i., eriksson l.e. & ebbeskog b. (2012) Living in a paradox – women’s experiences of body and life‐world after meningioma surgery. Journal of Advanced Nursing68(3), 559–568. Abstract Aims. The aims of the study were to describe how persons who have undergone benign meningioma surgery experience their body and life‐world and to illuminate the meaning of the illness, operation and recovery. Background. Meningioma, which is often benign, is the most commonly diagnosed brain tumour. Studies have shown that persons with meningioma tend to be more psychologically affected than persons with other brain tumours. To our knowledge, no previous studies have focused on the life‐world or body experience of these persons. Method. Narrative interviews with seven women conducted over a 6‐month period (2008–2009) were analyzed using a phenomenological hermeneutical method. Findings. Four themes were identified: In between double threats: the tumour and operation: the participants seemed to perceive a paradox in the sense that the tumour was both benign and threatening and the surgery both curing and risky; the wound as an open gate: the wound is visibly healed, but perceived as unhealed; the suffering body overflows life: the participants were prevented from regaining their body, feeling fragile and oversensitive to impressions; and the need to be embraced by attention: taking the participants’ needs seriously facilitated understanding of the diagnosis. Conclusion. The participants in this study described emotional distress when recovering from meningioma surgery. It is essential for nurses to be aware of the various meanings people ascribe to events that disrupt their lives and the transition process in connection with meningioma treatment.

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A qualitative assessment of the supportive care and resource needs of patients undergoing craniotomy for benign brain tumours

Cited by 20 publications

References 24 publications

Racial disparities in medicaid patients after brain tumor surgery

Racial disparities in medicaid patients after brain tumor surgery

Correlation of psychooncological distress- screening and quality of life assessment in neurosurgical patients

Living in a paradox – women’s experiences of body and life‐world after meningioma surgery

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