2017
DOI: 10.1177/2055102917724336
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A qualitative exploration of the experiences of living with and being treated for fibromyalgia

Abstract: This study explores the life and treatment experience of people in the United Kingdom with fibromyalgia in order to inform the development of treatments which are both effective and acceptable to users. Qualitative interviews were conducted with 14 participants with interpretative phenomenological analysis used as the theoretical framework and analytical method. The themes identified were as follows: Inauthenticity of fibromyalgia, An Unconventional healthcare experience, Re-creating support networks, Challeng… Show more

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Cited by 48 publications
(70 citation statements)
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“…Several studies show for instance that patients with fibromyalgia feel left alone in their search for treatment. Furthermore, they often experience not being respected when presenting their health problems in encounters with health professionals (38)(39)(40)(41)(42). A plausible interpretation is that when the presence of objective signs of disease, in medical terms, are not identified, the patients are left in an unclarified and vulnerable situation.…”
Section: Discussionmentioning
confidence: 99%
“…Several studies show for instance that patients with fibromyalgia feel left alone in their search for treatment. Furthermore, they often experience not being respected when presenting their health problems in encounters with health professionals (38)(39)(40)(41)(42). A plausible interpretation is that when the presence of objective signs of disease, in medical terms, are not identified, the patients are left in an unclarified and vulnerable situation.…”
Section: Discussionmentioning
confidence: 99%
“…Access to community-based aquatic services is challenging in some areas due to the closure of hydrotherapy pools and increased patient cost (Ashe, Furness, Taylor, Haywood-Small, & Lawson, 2017;Martin, Gilbert, & Jeffries, 2018).…”
Section: Discussionmentioning
confidence: 99%
“…A qualitative interview study (Ashe et al, 2017) informed the development of the online survey. The survey assessed symptom severity, mood, cognitive impairment, and comorbid conditions because these have not previously been assessed across adulthood in people with fibromyalgia using fine-grained age groups.…”
Section: Methodsmentioning
confidence: 99%