A qualitative meta‐synthesis of the caregiving experiences of adult children providing care for cancer patients in China: Implications for multidisciplinary healthcare teams

He, Longtao; Wu, Han; Li, Menghua; Deng, Xiangshu

doi:10.1111/hsc.14073

Cited by 12 publications

(3 citation statements)

References 25 publications

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“…64 In China, the traditional cultural value of “filial piety” remains prominent. 65 , 66 Staying with parents, decreasing their worry, and dying after them represent the beliefs of MHD patients that allow them to commit to living with helplessness. In addition, raising children is often an important spiritual motivation for Chinese patients, which can even serve as an expression of their self-worth.…”

Section: Discussionmentioning

confidence: 99%

“Alive Day is the Day”: A Qualitative Study of Experiences of Learned Helplessness in Maintenance Haemodialysis Patients

Xie¹,

Li²,

Li³

2023

RMHP

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Background Learned helplessness (LH) is a common psychological phenomenon among chronic disease patients. However, LH remains underrecognized in the context of maintenance haemodialysis (MHD) patients. This qualitative study is the first study of this topic to be conducted in a Chinese cultural context, and its purpose is to explore the LH experiences of MHD patients and to highlight their interpretations of LH. Methods We employed a qualitative research design. A purposive sampling method was used to recruit participants. The sample size was determined by data saturation. Data were obtained from MHD patients in a blood purification centre located in Hunan Province, China. Data were collected from June to September 2022. The researchers conducted in-depth, semistructured interviews with participants after obtaining informed consent. Texts were transcribed verbatim from the audio recordings of these interviews. Data processing and analysis were based on Giorgi’s phenomenological approach. Results Twenty-two respondents completed the interviews (aged 29–75 years, including ten females and twelve males). Four themes emerged from the interviews: (1) triggers of helplessness (hope is gone; witnessing renal friends’ helplessness; out of control; nothing works); (2) being tied down (limitation; perceived loss; social isolation; giving in); (3) I am just a loser (self-image disorder; low self-concept; negative attitudes; guilt; abandonment); (4) alive day is the day (fatalism; my duty; downwards comparison). Conclusion The study reveals that multiple stressors drive MHD patients’ LH. These salient phenomena demonstrate the importance of recognizing MHD patients’ LH. We suggest that support services should be developed alongside a framework that addresses MHD patients’ LH from the beginning of treatment.

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Section: Discussionmentioning

confidence: 99%

“Alive Day is the Day”: A Qualitative Study of Experiences of Learned Helplessness in Maintenance Haemodialysis Patients

Xie¹,

Li²,

Li³

2023

RMHP

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“…The objectives of this study are as follows: (1) to construct a theoretical-methodological model of CDA which can be verified and modified in the empirical study of the doctor–patient relationship in western China; and (2) to explore the mechanism of the current doctor–patient relationship through the constructed CDA approach and thereby provide a theoretical foundation for resolving doctor–patient conflicts. By presenting empirical evidence to a multidisciplinary team of practitioners (e.g., physicians, nurses, and medical social workers; He, Wu, et al, 2022) and relevant policymakers, we hope to reduce conflicts in practice and formulate supportive policies to improve doctor–patient communications and understanding.…”

Section: Literature Review Of Chinese Scholarship and Originality Of ...mentioning

confidence: 99%

Developing a Systematic-Dynamic Approach to Critical Discourse Analysis: A Study Protocol in the Context of the Doctor–Patient Relationship in Western China

Qin

2023

International Journal of Qualitative Methods

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Chinese scholarship conducting/attempting critical discourse analysis (CDA) on the doctor–patient relationship in China has, to date, predominantly relied on the use of analytical tools from systemic functional linguistics and pragmatics. This methodological orientation, by prioritizing the linguistic structure and functions of the textual data, does not tend to take into consideration the sociocultural contexts, complex power relations, genealogy of discourse, and practice-orientedness of discourse that CDA approaches usually touch on. This protocol article proposes a research design that constructs a systematic-dynamic CDA approach in the context of the doctor–patient relationship in western China in order to incorporate the aforementioned factors that previous Chinese scholarship has ignored. Physicians, cancer patients and their family members, and CDA methodologists are to be recruited to participate in focus groups and interviews to discuss the doctor–patient relationship from their own experience and to inform the construction of an integrated CDA approach. Qualitative context analysis will be adopted to analyze texts transcribed from interviews and focus groups, in order to generate themes and new concepts for the design of a novel systematic-dynamic CDA framework. By establishing an integrated CDA approach tailored to the doctor–patient relationship in western China, we will be able to provide empirical evidence and valuable insights to practitioners and policymakers to ease doctor–patient conflicts, which have intensified in recent years, and facilitate more harmonious relationships.

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“…The first step in providing appropriate support to caregivers of children with paediatric cancer is recognizing their supportive care needs. Despite the importance of caregivers' supportive care needs assessment, only several qualitative studies were conducted to explore caregivers' needs or experience (He et al, 2022 ; Yamaji et al, 2022 ), while few quantitative research was done in China, which can be due to the lack of appropriate tools to assess the needs of caregivers of children with paediatric cancer.…”

Section: Introductionmentioning

confidence: 99%

Psychometric evaluation of the Chinese version of the supportive care needs survey for caregivers of children with Paediatric cancer (SCNS‐C‐Ped‐C)

Wang¹,

Bi²,

Zhang³

et al. 2023

Nursing Open

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Aim To revise the Supportive Care Needs Survey for Partners and Caregivers of Cancer Patients (SCNS‐P&C) and evaluate the psychometric properties of the Chinese Version of the Supportive Care Needs Survey for Caregivers of Children with Paediatric Cancer (SCNS‐C‐Ped‐C) in caregivers of children with paediatric cancer. Design A cross sectional design was used. Methods In this methodological research, the reliability and validity of the SCNS‐C‐Ped‐C were measured by a questionnaire survey among 336 caregivers of children with paediatric cancer in China. The construct validity was evaluated by exploratory factor analysis and internal consistency was examined by Cronbach's alpha, split‐half reliability, and corrected item‐to‐total correlation coefficients. Results The exploratory factor analysis revealed six factors consist of: Healthcare and Informational Needs, Daily Care and Communication Needs, Psychological and Spiritual Needs, Medical Service Needs, Economic Needs, and Emotional Needs, explaining 65.615% of the variance. The Cronbach's alpha was 0.968 at full scale and 0.603–0.952 on the six domains. The split‐half reliability coefficient was 0.883 at full scale and 0.659–0.931 on the six domains. Conclusions The SCNS‐C‐Ped‐C demonstrated both reliability and validity. It can be used to evaluate multi‐dimensional supportive care needs for caregivers of children with paediatric cancer in China.

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A qualitative meta‐synthesis of the caregiving experiences of adult children providing care for cancer patients in China: Implications for multidisciplinary healthcare teams

Cited by 12 publications

References 25 publications

“Alive Day is the Day”: A Qualitative Study of Experiences of Learned Helplessness in Maintenance Haemodialysis Patients

“Alive Day is the Day”: A Qualitative Study of Experiences of Learned Helplessness in Maintenance Haemodialysis Patients

Developing a Systematic-Dynamic Approach to Critical Discourse Analysis: A Study Protocol in the Context of the Doctor–Patient Relationship in Western China

Psychometric evaluation of the Chinese version of the supportive care needs survey for caregivers of children with Paediatric cancer (SCNS‐C‐Ped‐C)

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