A qualitative study of mothers’ experiences of supporting the sexual development of their sons with autism and an accompanying intellectual disability

Pryde, Rebecca; Jahoda, Andrew

doi:10.1080/20473869.2018.1446704

Cited by 25 publications

(47 citation statements)

References 25 publications

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“…Moreover, their children had not engaged in any improper sexual behavior, and their lives were under parental supervision. Numerous mothers expressed worry that SE might heighten sexual desire or activity, which could lead to inappropriate sexual behavior, similar to previous studies [19,33]. In contrast, many reviews of the literature have stated that SE may assist in the sexual development and sexual demand of children and young PWD, as well as contribute to their health and well-being [2,34].…”

Section: Discussionsupporting

confidence: 69%

“…Previous research has emphasized the difficulties parents experience when discussing sexual topics with their children with IDs due to a paucity of knowledge and training in SE, as well as children's difficulty grasping the topic [17,18]. A previous review also showed that parental hurdles to delivering SE to their children with IDs are significantly influenced by family, religious, and sociocultural aspects [7,19,20].…”

Section: Introductionmentioning

confidence: 99%

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Barriers and Concerns in Providing Sex Education among Children with Intellectual Disabilities: Experiences from Malay Mothers

Kamaludin

Muhamad

Yudin

et al. 2022

IJERPH

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Though sex education (SE) may benefit the sexual development and overall well-being of children with intellectual disabilities (IDs), obstacles to its implementation remain. This study highlights barriers and concerns of SE for children with IDs based on their mothers’ experiences. We employed a phenomenological approach and in-depth interviews with twenty Malay mothers of children with mild-to-moderate IDs or/and other neurodevelopmental disorders. Four primary hurdles to SE were discovered: (1) mother (2) children (3) family value, and (4) socio-cultural environment. Inadequate knowledge, mothers’ perceptions that SE is less necessary at this stage of their children’s development, and time constraints were among their main barriers. Another source of hardship was the communication barrier because children with ID have cognitive impairment in their capacity to understand the topic being addressed and more time should be spent throughout the discussion. Family value and socio-cultural elements also had an impact on mothers’ intention to deliver SE to their children. Our findings suggest that mothers recognize the importance of SE for their children’s well-being. However, the dynamic interaction between the barriers complicates SE. This study emphasizes the necessity for future interventions to overcome hurdles at each level to effectively implement the recommended strategies.

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Section: Discussionsupporting

confidence: 69%

Section: Introductionmentioning

confidence: 99%

Barriers and Concerns in Providing Sex Education among Children with Intellectual Disabilities: Experiences from Malay Mothers

Kamaludin

Muhamad

Yudin

et al. 2022

IJERPH

View full text Add to dashboard Cite

show abstract

“…A qualitative study by Pryde & Jahoda (2018) has revealed that mothers of male children with intellectual disabilities in adolescence and young adulthood recognise that their son's sexual development is important; however, they remain apprehensive in providing sex education in fear that it would only increase their sons' sexual interest. It is possible that children's sexual development during adolescence negatively affects the mental health of their mothers, becoming one of the biggest stressors.…”

Section: Discussionmentioning

confidence: 99%

Correlation between Child Behavior and Depression in Mother with Autism Spectrum Disorders Child

Kido

Fujita

2021

J MATERN CHILD HEALTH

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Background:The behavioural characteristics of an autistic child can lead to challenging relationships with the mother. For mothers who serve as the key person in the care of their children with ASD, maintaining good mental health, which may be directly related to the growth and development of their children, is an important issue for professionals engaged in parenting support. The aim of this study was to determine the interaction between the behavioural problems of children with ASD (from toddlers to adolescents) and their mothers' depression. Subjects and Method: This was a crosssectional study carried out in Yamaguchi Prefecture, Japan. The recruitment of subjects was through a paediatric out-patient unit. Eighty-six mothers with ASD participated in this observational study. The Center for Epidemiological Studies-Depression (CES-D) scale was used as a measure of depression in mothers, and the Child Behaviour Checklist (CBCL) was used as an assessment of the children's behavioral characteristics. The prevalence of depression among mothers of children with ASD was estimated and related factors were also examined. Results: There were 66 boys (76.7%), 12 girls (14.0%) and 8 (9.3%) non-responders. Comparing the pre-adolescent and adolescent groups, there were significant differences in the ages of mothers and children (P <0.001). In this study, the prevalence rate of depression in mothers of children with ASD was 47.7% (95% CI= 36.8 to 58.7), and the prevalence rate of depression in mothers of adolescent children group was 48.6% (95% CI= 31.4 to 6.0). The predictive factors of maternal depression were others' problems (toileting problems, and masturbation) in CBCL and children's age group. Conclusion: These children's behavioural characteristics were recognised as serious problems by their mothers, which in turn can negatively affect their mental health, particularly the depression of mothers in the adolescent group was probably due to concerns about their children's unsocial behaviour.

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“…4,[10][11][12]20,21 The absence of sexual education programs for adolescents with ASD makes parents the primary agent in meeting the sexual development needs of ASD adolescents, amid limited information and support felt by parents, lack of experience in providing sexual education to ASD adolescents, low levels of parental confidence, confusion about when and the right way to start providing sexual education, as well as concerns about the appropriateness of sexual education provided. 1,4,[22][23][24][25][26] This study aims to explore the experience of parents in providing sexual education to children or adolescents with ASD.…”

Section: Introductionmentioning

confidence: 99%

Sexual education for adolescent autism spectrum disorders: an interpretative phenomenological analysis

Lestari

Aunurrahman

2021

Int J Community Med Public Health

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Background: The need for sexual education for adolescents with ASD in the formal education setting is increasingly important. The "taboo" perception of talking about sexual development and the absence of sexual education for adolescents with ASD in schools and therapy centers, then forces parents to take full responsibility for the sexual development of adolescents with ASD. The imbalance between the needs of sexual development, sexual education facilities, and the limitations of adolescents due to ASD disorders suffered, placing adolescents with ASD are in a group that is vulnerable to sexual exploitation and abuse. This study discusses the experiences of parents in meeting the sexual development needs of adolescents with ASD.Methods: In-depth semi-structured interviews were conducted with 10 parents who have teenagers with ASD in West Kalimantan, Indonesia.Results: The results showed a sexual orientation, romantic behavior of adolescents with ASD, sexual harassment committed, and experienced by adolescents with ASD and sexual education efforts provided by parents to adolescents with ASD.Conclusions: These findings indicate the emergence of sexual education emergencies needed by ASD adolescents in the formal education setting to facilitate the needs of the adolescent stage of sexual development, especially those with ASD as part of improving adolescent quality of life and preventing sexual harassment.

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A qualitative study of mothers’ experiences of supporting the sexual development of their sons with autism and an accompanying intellectual disability

Abstract: There may be differences between this version and the published version. You are advised to consult the publisher's version if you wish to cite from it.

Cited by 25 publications

References 25 publications

Barriers and Concerns in Providing Sex Education among Children with Intellectual Disabilities: Experiences from Malay Mothers

Barriers and Concerns in Providing Sex Education among Children with Intellectual Disabilities: Experiences from Malay Mothers

Correlation between Child Behavior and Depression in Mother with Autism Spectrum Disorders Child

Sexual education for adolescent autism spectrum disorders: an interpretative phenomenological analysis

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