A Qualitative Study of Psychosocial Factors Affecting Expecting Mothers Who Choose to Continue a Cleft Lip and/or Palate Pregnancy to Term

Hsieh, Yueh-Tzu; Yi, Chao; Shiao, Judith Shu-Chu

doi:10.1097/jnr.0b013e3182828dbd

Cited by 22 publications

(20 citation statements)

References 22 publications

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“…These figures are in accord with results from Argentina (Wyszynski et al, 2003) and the United Kingdom (Davalbhakta and Hall, 2000), where none and 7.5% of the parents considered TOP, respectively. Our results are in sharp contrast with those from Israel (Bronshtein et al, 1996) and Taiwan (Hsieh et al, 2013), where 93.4% and 53.1% of the affected fetuses, respectively, were aborted. A variety of factors are suggested to be responsible for these differences, such as religious, legal, social, cultural, and financial circumstances (Johnson, 2003).…”

Section: Attitudes Toward Topcontrasting

confidence: 99%

Parental Attitude Toward the Prenatal Diagnosis of Oral Cleft

Maarse

Boonacker

Veye

et al. 2018

The Cleft Palate Craniofacial Journal

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Section: Attitudes Toward Topcontrasting

confidence: 99%

Parental Attitude Toward the Prenatal Diagnosis of Oral Cleft

Maarse

Boonacker

Veye

et al. 2018

The Cleft Palate Craniofacial Journal

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“…Miles et al (2014) argue that provisional coding strategy allows the qualitative researcher to draw tentative codes relevant to their studies from the theoretical framework or from the reviewed literature to form the initial framework for analysis. In this study provisional coding strategy was guided by the reviewed relevant literature, including (Adeyemo et al, 2016;Hsieh et al, 2013;Nelson et al, 2012;Wanjeri and Wachira, 2009) and mainly informed how themes were named. To come up with the final list of themes provisional codes were revised, modified, some deleted, or expanded to include new codes depending on the information emerging from the data.…”

Section: Resultsmentioning

confidence: 99%

Social stigma and cultural beliefs associated with cleft lip and/or palate: parental perceptions of their experience in Kenya

Kimotho

Macharia

2020

Humanit Soc Sci Commun

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Cleft lip with or without cleft palate (CL/P)—a condition associated with speech, hearing, feeding, and dental problems, as well as anomalies of the bone and soft tissue around the mouth—is a common birth defect around the globe. The prevalence of this condition varies widely across different countries and regions, and is apparently highest among Asians and lowest among Africans. A review of literature reveals that there exists a dearth of information on experiences of parents of children with CL/P and stigma communication, as well as cultural beliefs associated with CL/P in Africa. To fill this gap, we conducted a descriptive qualitative study examining the experiences of parents of children with CL/P, stigma communication, and cultural beliefs associated with CL/P in Kenya. Twenty four in-depth interviews were done involving purposefully sampled parents of children born with CL/P at AIC CURE International Hospital in Nairobi, Kenya. Five overarching themes emerged under the lived experiences of parents of children with CL/P: Emotional experiences; relational experiences; burden of care and concerns; reaction by the public and friends; and source of social support. The stigma messages and beliefs associated with CL/P further exacerbated the stigma. The study revealed that stigma communication associated with CL/P remains a significant source of social and psychological anguish to parents and guardians of children with CL/P. These findings have critical implications for the management of stigma communication associated with CL/P. They point to the need for public awareness campaigns on CL/P to demystify the condition, its causes and treatment. The study shows that raising public awareness of CL/P would go a long way towards addressing the stigma associated with the condition. It underscores the need for open communication and engagement with all stakeholders to manage stigma communication associated with CL/P through culturally appropriate anti-stigma campaigns.

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“…Hsieh et al . [ 13 ] performed a purposive sampling study to identify the psychosocial factors that affect expecting mothers who continue their cleft lip/palate pregnancy to term. Most of the mothers initially experienced a sort of psychological stress and sorrow and had received blames from other relatives.…”

Section: Resultsmentioning

confidence: 99%

Psychological effect of prenatal diagnosis of cleft lip and palate: A systematic review

Arun

Devarajan

et al. 2018

Contemp Clin Dent

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Introduction and Background:Cleft lip and/or palate is the most common congenital craniofacial anomaly. Prenatal diagnosis of the craniofacial anomalies is possible with the advent of newer imaging modalities. The identification of the defect at an early stage in the pregnancy helps the parents to be well informed and counseled regarding the treatment possibilities and outcomes of cleft lip and palate (CLP) treatment.Objectives:To analyze the psychological effects of prenatal diagnosis of CLP on the parents.Materials and Methods:PubMed, Cochrane, and Google Scholar searches were made with search strings “prenatal diagnosis cleft lip palate,” “antenatal diagnosis,” “anomaly scan,” “psychological effect cleft lip palate,” and “prenatal counseling cleft lip palate.” Of the results obtained, studies which evaluated the psychological aspects of parents of cleft children were further included in the study.Results:Electronic search yielded 500 articles after duplication removal. Forty studies concentrated on the results of the scan and their implications predominantly in the diagnosis and management of cleft and other related abnormalities. Eight studies discussed the effects of prenatal diagnosis and counseling on the parents.Conclusion:Prenatal diagnosis enables appropriate and timely counseling of the parents by the cleft team and helps instill a sense of preparedness for the family which highly improves the quality of treatment received by the child enabling a near-to-normal quality and standard of life.

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A Qualitative Study of Psychosocial Factors Affecting Expecting Mothers Who Choose to Continue a Cleft Lip and/or Palate Pregnancy to Term

Abstract: Significant psychological distress was identified among participants following their fetus' CL/P diagnosis. It was encouraging to learn that all participants told researchers in postpartum interviews that they did not regret the decision to take their child to term.

Cited by 22 publications

References 22 publications

Parental Attitude Toward the Prenatal Diagnosis of Oral Cleft

Parental Attitude Toward the Prenatal Diagnosis of Oral Cleft

Social stigma and cultural beliefs associated with cleft lip and/or palate: parental perceptions of their experience in Kenya

Psychological effect of prenatal diagnosis of cleft lip and palate: A systematic review

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