2016
DOI: 10.1136/flgastro-2015-100678
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A qualitative study of the impact of Crohn's disease from a patient's perspective

Abstract: Objective To understand how the lives of people with Crohn's disease (CD) are affected. Most research in CD has focused on symptoms and functioning rather than on how these outcomes influence quality of life (QoL). Design As part of a study to develop a CD-specific patient-reported outcome measure, qualitative interviews were conducted with patients from Manchester Royal Infirmary to determine how CD affects QoL. The needs-based model was adopted for the study. The interviews, which took the form of focused co… Show more

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Cited by 33 publications
(44 citation statements)
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“…Previous qualitative research has demonstrated that saturation of information can be achieved with 30 participants. 38,39 The aim was to recruit a combined total of 40 participants from the United Kingdom and United States, in case there were any major differences in outcome between countries.…”
Section: Methodsmentioning
confidence: 99%
“…Previous qualitative research has demonstrated that saturation of information can be achieved with 30 participants. 38,39 The aim was to recruit a combined total of 40 participants from the United Kingdom and United States, in case there were any major differences in outcome between countries.…”
Section: Methodsmentioning
confidence: 99%
“…A commitment to disease-specific, patient-centric interval response instruments provides a firm foundation for evidence-based medicine. A number of these have been developed following RMT standards; one example is the Crohn’s Life Impact Questionnaire (CLIQ) [ 18 , 19 ]. We can abandon imaginary lifetime value assessments and focus instead on claims for quality of life that are credible, evaluable and replicable.…”
Section: A Way Out: Rasch Measurement Theorymentioning
confidence: 99%
“…All needs-based PROMs contain items derived directly from patients, as they are the only people who could be considered "experts" in living with a specific disease 21,22 . A crucial aspect of these PROMs is that, while the items are all generated directly from relevant interviewees, selection of those to be included in the questionnaires is governed by the conceptual model.…”
Section: The Needs-based Quality-of-life (Qol) Theory Modelmentioning
confidence: 99%