A Qualitative Systematic Review of Caregivers’ Experiences of Caring for Family Diagnosed with Schizophrenia

Cleary, Michelle; West, Sancia; Hunt, Glenn E.; McLean, Loyola; Kornhaber, Rachel

doi:10.1080/01612840.2019.1710012

Cited by 51 publications

(34 citation statements)

References 66 publications

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“…The current study suggests that caregiver information about the mental illness of their sibling was not forthcoming from mental health service providers, despite participants showing a desire to be informed or educated about their sibling's mental illness. This finding is supported by Mavundla et al 13 and Cleary et al 33 Despite the lack of information provision, the participants in this study reported experiencing the mental health services positively, which suggests that in certain contexts there is a platform for building more empathic communication between mental health professionals and family carers. However, some of the participants reported not being involved in their siblings' mental health treatment, suggesting continued invisibility of siblings as important sources of care.…”

Section: Discussionsupporting

confidence: 77%

My sibling’s mental illness: An interpretative phenomenological analysis of experiences of having an adult sibling with a mental illness in semi-rural South Africa

Young

Flannigan

2021

South African Journal of Psychiatry

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Background: When there is a lack of resources in the community to support deinstitutionalisation, the siblings of an individual with a mental illness are the ones who are the most affected and vulnerable. Nevertheless, sibling care work is still largely unacknowledged in the mental health sector in low- and middle-income countries.Aim: This article describes and interprets the lived experiences of ‘black’ isiXhosa-speaking individuals having a sibling with a mental illness, to shed light on how mental health professionals might support and sustain the involvement of individuals in the treatment and care of their sibling.Setting: The study was conducted in a semi-rural town in the Eastern Cape of South Africa.Methods: The study employed a qualitative research design using interpretative phenomenological analysis as the research method. Semi-structured interviews were conducted and analysed.Results: The findings present interview extracts which give voice to participants’ experiences of financial burden, social burden and stigma, and of engaging with psychiatric treatment while providing care for their mentally ill sibling. Findings also highlight the positive aspects of caring for a sibling with a mental illness.Conclusion: This study specifically highlights the gendered nature of care work and siblings’ increased understanding of mental illness by virtue of their relationship with their brother or sister, thereby possibly pointing to sibling relationships as valuable relational resources for challenging stigma. The study findings suggest that calls for greater cooperation between healing belief systems should include dialogue with western religious belief systems alongside traditional healing belief systems.

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Section: Discussionsupporting

confidence: 77%

My sibling’s mental illness: An interpretative phenomenological analysis of experiences of having an adult sibling with a mental illness in semi-rural South Africa

Young

Flannigan

2021

South African Journal of Psychiatry

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“…The pandemic is difficult experience for all the population. The problems with achievement of the WHO24h movement behaviour guidelines which recommend 60 min a day of moderate-to-vigorous physical activity for 5À17 year olds were noticed [5]. Moreover, the difficulties due to social distancing among adolescents, who grow in independence [5].…”

Section: Letter To the Editormentioning

confidence: 99%

The changes in the number of patients admissions due to burns in Paediatric Trauma Centre in Wroclaw (Poland) in March 2020

Kawalec¹

2020

Burns

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“…In most health facilities in Uganda, there is a shortage of staff, making it necessary for caregivers to be involved in patient care [ 27 , 30 ]. Caregivers of patients with mental illness, who are often their own family members, have a high burden of care characterized by multiple responsibilities, which affects their ability to provide adequate care for their patients [ 31 ]. The burden increases with the severity of the patient’s illness [ 32 ] but also leads to the stripping of almost all patient independence.…”

Section: Discussionmentioning

confidence: 99%

Patients’ perspectives on the experience of absconding from a psychiatric hospital: a qualitative study

et al. 2021

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Background Absconding (i.e., escaping) is common among patients with mental illness admitted to psychiatric hospitals. Patients use various strategies to make absconding successful due to the experiences faced during admission. We conducted a study to identify patients’ perspectives on the experience of absconding from the psychiatry facility. Methods We conducted 10 in-depth interviews with patients with a history of absconding from the hospital who were accessing care at the Mbarara Regional Referral Hospital in Mbarara city Uganda. Interviews were audio-recorded, translated when required, transcribed into English, and analyzed thematically to identify relevant themes. Results Participants ranged in age from 18 to 55 and the majority (n = 9) were male. Most had absconded at least twice from a psychiatric facility. We identified different experiences that influenced patients’ engagement in absconding from the psychiatry hospital ward. These included: (1) stigma, (2) experiences with caregivers: mixed emotions, (3) poor resources and services, and (4) the influence of mental illness symptoms. The loneliness of stigma, negative emotions associated with the loss of important roles given the nature and framework of caregiving on the psychiatric ward, as well as the stress of limited resources were a salient part of the patient experience as it relates to absconding. Conclusion Our findings indicate that absconding is a symptom of a larger problem with a mental health system that perpetuates stigma in its design, isolates patients and makes them feel lonely, and forces patients to rely on caregivers who infantilize them and take away all their freedom in a facility with no basic services. For many patients, this makes absconding the only option. Within such a system, all stakeholders (policymakers, health-care providers, caregivers, and patients) should be involved in rethinking how psychiatric facilities should be operated to make the journey of patient recovery more positive.

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A Qualitative Systematic Review of Caregivers’ Experiences of Caring for Family Diagnosed with Schizophrenia

Cited by 51 publications

References 66 publications

My sibling’s mental illness: An interpretative phenomenological analysis of experiences of having an adult sibling with a mental illness in semi-rural South Africa

My sibling’s mental illness: An interpretative phenomenological analysis of experiences of having an adult sibling with a mental illness in semi-rural South Africa

The changes in the number of patients admissions due to burns in Paediatric Trauma Centre in Wroclaw (Poland) in March 2020

Patients’ perspectives on the experience of absconding from a psychiatric hospital: a qualitative study

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