A Quality of Life Instrument for Adolescents with Chronic Headache

Langeveld, Johannes; Koot, Hans M.; Loonen, M. C. B.; Hazebroek-Kampschreur, A. A. J. M.; Passchier, Jan

doi:10.1046/j.1468-2982.1996.1603183.x

Cited by 97 publications

(100 citation statements)

References 18 publications

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“…For example, Langeveld et al (1996) found that adolescents suffering with headache and migraine reported lower overall HRQOL, including: decreased psychological functioning, increased physical symptoms, lower LS, and less general health (Langeveld et al 1996). Moreover, changes in headache and migraine activity in adolescents has been shown to be related to parallel changes in the HRQOL sub-domains of LS, health, and psychological functioning (see Langeveld et al 1997).…”

Section: Physical Healthmentioning

confidence: 99%

Youth Life Satisfaction: A Review of the Literature

2008

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A central construct within the positive psychology literature is life satisfaction. Whereas adult life satisfaction has been studied extensively, the life satisfaction of children and adolescents has only received attention more recently. This article provides a review of the extant research on youth life satisfaction. Empirical studies (n = 141) on life satisfaction among youth are reviewed. The review details how life satisfaction among youth relates to various other important emotional, social, and behavioural constructs. Evidenced by the review are the conditions that foster positive life satisfaction and the implications of positive life satisfaction among youth. Future directions in life satisfaction research among youth are briefly discussed.Keywords Life satisfaction Á Adolescent Á Children Á Subjective well-being Á Happiness Á Review Recently the burgeoning field of positive psychology has re-illuminated the need for psychology to address areas associated with optimal functioning and happiness. From the time of Aristotle (1925), the pursuit of happiness and the achievement of the 'good life' has been a major concern among philosophers and theologians, and was included as a foundational mission of psychology (Seligman 2002b;Seligman and Csikszentmihalyi 2000). Within the field of psychology the study of 'happiness' generally falls under investigations of subjective well-being (SWB) (see Diener 1984;Diener 1994;Diener et al. 1999, for reviews). The SWB construct is a tripartite category of phenomena, which includes: emotional responses (i.e. positive affect (e.g. joy, optimism) and negative affect (e.g. sadness, anger)), domain satisfactions (e.g. work satisfaction, relationship satisfaction), and global judgements of life satisfaction (LS) (Diener et al. 1999). In the research literature the components of SWB are often used interchangeably with each other and considered synonymous with term 'happiness' (Diener 1994;Seligman 2002a); despite that the term

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Section: Physical Healthmentioning

confidence: 99%

Youth Life Satisfaction: A Review of the Literature

2008

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“…8 Pediatric HRQOL measurement instruments must be sensitive to cognitive development and integrate both child self-report and parent proxy-report to reflect their potentially unique perspectives. Imperfect concordance between self-and proxy-report, termed cross-informant variance, 9 has been consistently documented among child/adolescent, parent, teacher, and healthcare professionals, reports in the HRQOL assessment of healthy children 10 and children with chronic health conditions, [11][12][13][14] including cancer. 15 Agreement has been demonstrated to be lower for internalizing problems (e.g., depression and pain) than for externalizing problems (e.g., hyperactivity and walking).…”

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confidence: 99%

The PedsQL™ in pediatric cancer

Varni

Burwinkle

Katz

et al. 2002

Cancer

1,205

492

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BACKGROUNDThe Pediatric Quality of Life Inventory (PedsQL) is a modular instrument designed to measure health‐related quality of life (HRQOL) in children and adolescents ages 2–18 years. The PedsQL 4.0 Generic Core Scales are multidimensional child self‐report and parent proxy‐report scales developed as the generic core measure to be integrated with the PedsQL disease specific modules. The PedsQL Multidimensional Fatigue Scale was designed to measure fatigue in pediatric patients. The PedsQL 3.0 Cancer Module was designed to measure pediatric cancer specific HRQOL.METHODSThe PedsQL Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module were administered to 339 families (220 child self‐reports; 337 parent proxy‐reports).RESULTSInternal consistency reliability for the PedsQL Generic Core Total Scale Score (α = 0.88 child, 0.93 parent report), Multidimensional Fatigue Total Scale Score (α = 0.89 child, 0.92 parent report) and most Cancer Module Scales (average α = 0.72 child, 0.87 parent report) demonstrated reliability acceptable for group comparisons. Validity was demonstrated using the known‐groups method. The PedsQL distinguished between healthy children and children with cancer as a group, and among children on‐treatment versus off‐treatment. The validity of the PedsQL Multidimensional Fatigue Scale was further demonstrated through hypothesized intercorrelations with dimensions of generic and cancer specific HRQOL.CONCLUSIONSThe results demonstrate the reliability and validity of the PedsQL Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module in pediatric cancer. The PedsQL may be utilized as an outcome measure in clinical trials, research, and clinical practice. Cancer 2002;94:2090–106. © 2002 American Cancer Society.DOI 10.1002/cncr.10427

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Section: Sf-36mentioning

confidence: 99%

“…This shows that parents or carers cannot replace the voice of a child. Besides, there have been significant concerns about the accuracy and acceptability of parent-proxy ratings of paediatric patients ' HRQOL tool [26,47,48].The utility of a generic HRQOL tool for children or adolescents has not been explicitly tested in patients with neurodevelopmental disorders [25,26,39,[49][50][51][52][53]. There are very few paediatric neurosurgical clinical studies that use the HRQOL tools mentioned above to look into the clinical outcome of the patients [12][13][14][15]21,25,54].…”

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confidence: 99%