A randomised controlled trial of lay-led self-management for people with multiple sclerosis

Barlow, Julie H.; Turner, Andy; Edwards, Rhiannon; Gilchrist, Mollie

doi:10.1016/j.pec.2009.02.009

Cited by 72 publications

(72 citation statements)

References 40 publications

(64 reference statements)

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“…83% [34] and 80% [43]). We are unsure as to the exact reasons why this lower rate occurred and can only speculate that the pragmatic, real world design of the study, where greater emphasis and importance were afforded to implementation and delivery of the interventions rather than to the recruitment and retention of patients in the evaluation, could have impacted on this.…”

Section: Limitationsmentioning

confidence: 96%

An evaluation of a self-management program for patients with long-term conditions

Turner¹,

Anderson²,

Wallace³

et al. 2015

Patient Education and Counseling

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Section: Limitationsmentioning

confidence: 96%

An evaluation of a self-management program for patients with long-term conditions

Turner¹,

Anderson²,

Wallace³

et al. 2015

Patient Education and Counseling

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“…Eight studies were assessed as having a high risk of bias, with 4 studies [19,20,25,29] scoring poorly in only 1 out of 6 domains and the remainder scoring poorly in 2-3 out of 6 domains [24,26,28,30]. (Data is available from the authors.)…”

Section: Study Qualitymentioning

confidence: 99%

Efficacy of Psychosocial Interventions for People with Multiple Sclerosis: A Meta-Analysis of Specific Treatment Effects

Sesel¹,

Sharpe²,

Naismith³

2018

Psychother Psychosom

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Background: Psychosocial interventions are often used as an adjunct to the medical management of multiple sclerosis (MS). However, the efficacy of such approaches for a range of psychosocial indications remains unclear. Objective: To determine the efficacy of psychosocial therapies for people with MS (PwMS). Methods: We searched 6 electronic databases (Medline, Embase, PsycINFO, Cochrane Central Register of Controlled Trials, CINAHL, and Clinicaltrials.gov) until April 21, 2016, for randomized controlled trials reporting the effect of psychological interventions for depressive symptoms, anxiety, pain, fatigue, or health-related quality of life (HRQoL) in PwMS. Results: The search yielded 356 articles with 13 included studies (n = 1,617). Benefits of psychological interventions were found for depressive symptoms (Cohen’s d = 0.281), anxiety (d = 0.285), fatigue (d = 0.228), and mental (d = 0.398) and total HRQoL (d = 0.444), but not physical HRQoL. There were insufficient studies to meta-analyze posttreatment outcomes for pain. Interventions were more effective for HRQoL for patients with relapsing-remitting MS and when treatment doses were larger. Cognitive behavioral therapy (CBT) was not efficacious for PwMS when considered alone. Conclusion: Psychosocial interventions have a significant, positive impact across a range of outcomes for PwMS with small, yet consistent, effect sizes. There was some indication that CBT was less efficacious than other interventions. However, this may be due to smaller treatment doses in CBT studies.

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“…11,12 The majority of the people with MS involved in these studies have expressed a keen desire to participate in self-management programs, not only to learn about their condition but also to interact with others who share similar challenges. 4,13,14 Prior to the availability of an MS self-management tool, most clinicians and researchers relied on the assessment of self-management components (eg, self-efficacy, which is associated with improvement in health status). 15 Self-efficacy tools were commonly used to evaluate the usefulness of self-management programs.…”

Section: Data-collection Proceduresmentioning

confidence: 99%

The Multiple Sclerosis Self-Management Scale

Ghahari¹,

Khoshbin²,

Forwell³

2014

International Journal of MS Care

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Background:The Multiple Sclerosis Self-Management Scale (MSSM) is currently the only measure that was developed specifically to address self-management among individuals with multiple sclerosis (MS). While good internal consistency (α = 0.85) and construct validity have been demonstrated, other psychometric properties have not been established. This study was undertaken to evaluate the criterion validity, test-retest reliability, and face validity of the MSSM.

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A randomised controlled trial of lay-led self-management for people with multiple sclerosis

Cited by 72 publications

References 40 publications

An evaluation of a self-management program for patients with long-term conditions

An evaluation of a self-management program for patients with long-term conditions

Efficacy of Psychosocial Interventions for People with Multiple Sclerosis: A Meta-Analysis of Specific Treatment Effects

The Multiple Sclerosis Self-Management Scale

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