A Randomized, Controlled Trial of a Patient/Caregiver Symptom Control Intervention: Effects on Depressive Symptomatology of Caregivers of Cancer Patients

Sherwood

Cancer Epidemiology, Biomarkers &Amp; Prevention

2011

Self Cite

Family caregivers provide uncompensated care and assistance to a family member who has cancer. When patients move through the care trajectory into the survivorship phase, roles and demands of caregivers change and caregivers assume responsibility to assist with coordination of ongoing care. The goal of this article is to describe aspects of caregiver experiences and the roles of caregivers as patients transition from active cancer treatment into the first and early phase of cancer care. Residual problems for patients and caregivers remain for some period of time. Cancer Epidemiol Biomarkers Prev; 20(10); 2015-21. Ó2011 AACR.

Section: Caregiver/patient Needs During Transitionmentioning

confidence: 99%

Support for Caregivers of Cancer Patients: Transition After Active Treatment

Sherwood

Cancer Epidemiology, Biomarkers &Amp; Prevention

2011

Self Cite

Journal of Pain and Symptom Management

“…Second, there are unanswered questions about the dose and delivery of interventions. For example, a well designed, randomized controlled trial of a patient/caregiver symptom control intervention was not effective in improving caregiver mental health (63). The twenty-week, nurse-lead, cognitive behavioral-based intervention taught caregivers strategies on how to emotionally support the patient, facilitate communication, and address the strains associated with caregiving.…”

Section: Future Directionsmentioning

confidence: 99%

Improving Well-Being in Caregivers of Terminally Ill Patients. Making the Case for Patient Suffering as a Focus for Intervention Research

Hebert

Arnold

Schulz

2007

Family caregivers are integral to the care of patients with physical or mental impairments. Unfortunately, providing this care is often detrimental to the caregivers' health. As a result, in the last decade, there has been a proliferation of interventions designed to improve caregivers' wellbeing. Interventions for caregivers of persons at end-of-life, however, are relatively few in number and are often underdeveloped. They also are typically designed to help reduce the work of caregiving or to help caregivers cope with the physical and emotional demands of providing care. While useful, these interventions generally ignore a primary stressor for family caregivers-a loved one's suffering. Patient suffering, whether physical, psychosocial, or spiritual, has a major impact on family caregivers. However, interventions that focus on the relief of patient suffering as a way to improve caregiver well-being have rarely been tested. It is our view that more research in this area could lead to new and more effective interventions for family caregivers of seriously or terminally ill patients. In support of our view, we will define suffering and review the relationships between patient suffering and caregiver well-being. We will then discuss a conceptual framework for intervention design. Finally, we conclude with a discussion of implications and future directions for intervention research.

“…high stress levels, deep unhappiness, social anxiety, depression and induced changes that could degenerate to heart disease, hypertension, increase rate of physiological illness and suppressed immune responses (Abasiubong et al, 2011;ANON, 2009;Kipp et al, 2006;Kurtz, Kurtz, Given, & Given, 2005; Montgomery, Rowe, & Kosloski, 2007; National Alliance for Caregiving (NAC) & AARP, 2009; Zarit, 2004).…”

mentioning

confidence: 99%

Assessing Women Caregiving Role to People Living With HIV/AIDS in Nigeria, West Africa

2017

HIV/AIDS scourge remains high in most countries of sub-Saharan Africa such as Nigeria, which is home to about 3.3 million HIV positive individuals and represents the second largest burden of HIV/AIDS care, treatment and demand worldwide after South Africa. Anti-retroviral treatment options though a welcome development, has increased the number of people living with this chronic illness, and most of them depend on family members for physical and emotional support. Traditional gender norms in Nigeria ensure that legitimately, women and girls are the first options for caregiving roles. This mandatory role has in turn imposed psychosocial disruption in the lives of female family members in Calabar, Nigeria. This descriptive study utilized convenient sampling technique, Zarit Burden Interview scale and semistructured questionnaires for data collection (260 respondents), and data analyses were achieved using SPSS16.0. The study showed that a significant (p < .05) proportion of women (91%) were involved in providing care, including children from 10 years and above. Caregivers had minimal social support which increased the burden they experienced. The need for policy that recognizes and supports female caregivers ("silent cornerstone") to reduce burden and ensure high quality care of people living with HIV/AIDS (PLWHA) in Nigeria is advocated.Keywords female caregivers, PLWHA, burden of caregiving, Nigeria 2 SAGE Open consequences from physically and emotionally demanding work of caregiving. The physical tasks performed by the caregivers transcend minor to complex tasks, which is similar to those carried out by paid health or social service providers. These impart a great degree of burden on the caregivers especially, as they combine the caregiving services with their official roles in the society. Caregiving has increased the burden of care on many households particularly the females, by worsening their economic status and subjecting them to imminent poverty. The need for heal thcare system and government to promulgate policies that will support female caregivers and also enhance quality of care to PLWHA in Nigeria becomes imperative. This study therefore highlights the extent of burden experienced by female caregivers compared to male counterparts and the support available to all caregivers of PLWHA in Calabar Municipality, Nigeria. Women and Burden of CareWomen constitute about 50% of the people living with HIV today worldwide (WHO, 2013). In 2007, the prevalence of HIV infection had been on men than women (UNAIDS, 2008), but with the turn of events women now bear the burden of this devastating disease more than men (WHO/ UNICEF/ UNFPA/World Bank, 2010). In sub-Saharan Africa, women constitute 60% of people living with HIV and the proportion of women living with HIV has been increasing in the last 10 years (WHO, 2013). These figures vindicate the words of Lewis (2005) that HIV/AIDS in Africa has a "female face." Apart from biological vulnerability of women to HIV, the African traditional gender norms stipula...