A rapid umbrella review of the literature surrounding the provision of patient-centred end-of-life care

Hatzikiriakidis, Kostas; Ayton, Darshini; Skouteris, Helen; Patitsas, Luke; Smith, Kelsay; Dhulia, Anjali; Poon, Peter

doi:10.1177/02692163231183007

Cited by 4 publications

References 138 publications

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Palliative and end-of-life care practices for critically ill patients and their families in a peri-intensive care setting: A protocol for an umbrella review

Salins,

Rao,

Dhyani

et al. 2024

Pall Supp Care

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Objectives This umbrella review will summarize palliative and end-of-life care practices in peri-intensive care settings by reviewing systematic reviews in intensive care unit (ICU) settings. Evidence suggests that integrating palliative care into ICU management, initiating conversations about care goals, and providing psychological and emotional support can significantly enhance patient and family outcomes. Methods The Joanna Briggs Institute (JBI) methodology for umbrella reviews will be followed. The search will be carried out from inception until 30 September 2023 in the following databases: Cochrane Library, SCOPUS, Web of Science, CINAHL Complete, Medline, EMBASE, and PsycINFO. Two reviewers will independently conduct screening, data extraction, and quality assessment, and to resolve conflicts, adding a third reviewer will facilitate the consensus-building process. The quality assessment will be carried out using the JBI Critical Appraisal Checklist. The review findings will be reported per the guidelines outlined in the Preferred Reporting Items for Overviews of Reviews statement. Results This umbrella review seeks to inform future research and practice in critical care medicine, helping to ensure that end-of-life care interventions are optimized to meet the needs of critically ill patients and their families.

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Palliative and end-of-life care practices for critically ill patients and their families in a peri-intensive care setting: A protocol for an umbrella review

Salins,

Rao,

Dhyani

et al. 2024

Pall Supp Care

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“We Wanna Be Nurses Because We Want the Human Connection”

Coats,

Shive,

Adrian

et al. 2024

J Hosp Palliat Nurs

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The use of narrative interventions in health care is an effective way to communicate connection between patients and clinicians. The electronic health record (EHR) is a primary mode of communicating patient information across clinical teams. Thus, incorporating a person-centered cocreated narrative with patients into the EHR is an opportunity to share a person's cultural values, beliefs, and preferences; provide connection; and foster positive patient-clinician interactions. This study of a person-centered narrative intervention was a randomized controlled trial to test intervention effects on the person's (patient) perceptions of the quality of communication with their nurses and their psychosocial and existential well-being. This article describes the clinical team's experiences and reach of the cocreated person-centered narrative integration into the patient's EHR. The data collected included (1) exit interviews (n = 14), (2) a usability survey (n = 8), and (3) data collected from the EHR for clinicians (n = 600) who accessed the uploaded narratives. Overall, the System Usability Scale and nurse participant's experiences provided confirmation that the person-centered narrative intervention was usable. There were also interprofessional groups of clinicians in the health care system who accessed the narratives. Future research should continue to identify core components and implementation strategies of EHR-integrated person-centered narratives in complex health care settings.

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The effectiveness of interventions that support women, girls, and people who menstruate to participate in physical activity: a rapid overview of reviews

Csontos,

Brown,

Edwards

et al. 2024

Preprint

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Background Adults (age 18–64 years) are recommended 150–300 minutes of moderate-to-vigorous or 75–150 minutes of vigorous-intensity physical activity per week. Irrespective, the number of women not meeting recommended physical activity is 5% higher than men globally. Women, girls and people who menstruate face multiple barriers to participating in physical activity, including gender bias, low perceived exercise competence, and insufficient support from peers and/or family. Moreover, menstruation is often reported as a barrier. Numerous interventions have been proposed to increase physical activity participation of women and girls, while little is known about interventions for people who menstruate. Therefore, the aim of this rapid overview of reviews was to investigate the effectiveness of interventions that support women, girls, and people who menstruate to participate in physical activity. Additionally, this review examined whether any of these interventions incorporated managing physical activity participation throughout the menstrual cycle. Methods Bibliographic databases (MEDLINE, Emcare, and AMED on OVID platform; CINAHL and SPORTDiscus on EBSCO; Epistemonikos, and Cochrane Database) and grey literature were searched in March 2024. Title/abstract screening was conducted by one reviewer and 20% of records checked by a second. Full-texts screening was performed by two reviewers. Data extraction and critical appraisal (using JBI systematic review checklist) were conducted by one reviewer with another checking accuracy. Findings were summarised narratively. Results Fifteen systematic reviews across 16 reports (published between 2008–2024) met the inclusion criteria. The population included young and adolescent girls (n = 9), adult women (n = 3), mothers and daughters (n = 2), and mixed population (n = 1). A wide range of interventions were identified which were educational, environmental or multicomponent. None of the included systematic reviews described interventions focusing on managing physical activity participation throughout the menstrual cycle. Most reviews found mixed effectiveness in increasing physical activity participation, leading to inconclusive results. Conclusion There is a need for further research to better support women, girls, and people who menstruate to participate in physical activity, with particular focus on addressing barriers related to the menstrual cycle. The findings can inform workplace, educational and other relevant physical activity recommendations for women, girls and people who menstruate.

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A rapid umbrella review of the literature surrounding the provision of patient-centred end-of-life care

Cited by 4 publications

References 138 publications

Palliative and end-of-life care practices for critically ill patients and their families in a peri-intensive care setting: A protocol for an umbrella review

Palliative and end-of-life care practices for critically ill patients and their families in a peri-intensive care setting: A protocol for an umbrella review

“We Wanna Be Nurses Because We Want the Human Connection”

The effectiveness of interventions that support women, girls, and people who menstruate to participate in physical activity: a rapid overview of reviews

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