A review of mobile apps for epilepsy self-management

Escoffery, Cam; McGee, Robin E.; Bidwell, Jonathan; Sims, Christopher A.; Thropp, Eliana Kovitch; Frazier, Cherise; Mynatt, Elizabeth D.

doi:10.1016/j.yebeh.2017.12.010

Cited by 89 publications

(64 citation statements)

References 25 publications

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“…During an epidemic, the Apps stand out for the convenience of communication, thus significantly reducing unnecessary transportation in seeking for medical assistance while providing necessary information in dealing with epilepsy and epidemic. However, surprisingly, the function of making appointment with or consulting a doctor only exists in two out of 20 Apps in Escoffery's study [32], suggesting that most epilepsy Apps are unable to provide sufficient medical support to PWE. Meanwhile, Apps with these important functions are designed either by hospitals or health organizations, indicating a necessity for strong collaboration between doctors and program developers.…”

Section: Self-management Of Epilepsymentioning

confidence: 94%

“…Smartphone application and remote medical care in epilepsy management Smartphone applications (APPs) and other remote medical care approaches are familiar things to patients with chronic disease. In epilepsy alone, a series of studies [32][33][34] have tested the value of Apps in management of seizures and other issues. Digital technology in the management of epilepsy features a new trend in epilepsy control.…”

Section: Self-management Of Epilepsymentioning

confidence: 99%

“…In 2018, Escoffery et al reviewed over 20 Apps from Apple Store for their functionality, esthetics, and information contained. They found that most Apps in epilepsy management are designed for adults and focused on treatment, seizure tracking, response and safety, which cover a significant portion of self-management [32]. Although the population sampled was small, Apps for epilepsy management significantly improved users' epilepsy knowledge, personal safety management and adherence to AEDs [35,36].…”

Section: Self-management Of Epilepsymentioning

confidence: 99%

“…For example, to raise social awareness of epilepsy and meet the social needs of PWEs, an App has been developed to offer social network function for PWEs. Other think-out-of-box attemps include a specifically-designed game for Vegus Nerve Stimulation (VNS) education [32]. In an exciting study aimed to facilitate diagnosis of epilepsy in community by non-professional local caregivers using an App, researchers revealed a roughly equal specificity for correct diagnosis to physicians [37].…”

Section: Self-management Of Epilepsymentioning

confidence: 99%

“…Also, they conceptually represent different management measures in epilepsy. The patient & family level focuses on self-management, including all six components mentioned above [32] and is facilitated by epilepsy-related Apps, while the community support level, consisting of general physicians and other local caregivers from the community, acts both as a threshold for hospitalization and an outpost for providing basic intervention, including education, adjusting AED doses, rehabilitation and mental health management. By emphasizing the role of the community, this system requires patient to report their health problems to community supporters for evaluation before going to hospital.…”

Section: Proposed Epilepsy Management Framework Under Epidemic Situatmentioning

confidence: 99%

See 4 more Smart Citations

Epilepsy control during an epidemic: emerging approaches and a new management framework

Deng

Zhu

Lin

et al. 2020

Acta Epileptologica

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Epidemics are a big threat to world health. The ongoing pandemic of corona virus disease 2019 (COVID-19) has caused a series of challenges to public health. One such challenge is the management of chronic diseases such as epilepsy during an epidemic event. Studies on this topic are rather limited and the related medical practice is full of uncertainty. Here we review recent development of potential approaches for epilepsy control during an epidemic and propose a new three-level management framework to address these challenges.

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Section: Self-management Of Epilepsymentioning

confidence: 94%

Section: Self-management Of Epilepsymentioning

confidence: 99%

Section: Self-management Of Epilepsymentioning

confidence: 99%

Section: Self-management Of Epilepsymentioning

confidence: 99%

Section: Proposed Epilepsy Management Framework Under Epidemic Situatmentioning

confidence: 99%

See 3 more Smart Citations

Epilepsy control during an epidemic: emerging approaches and a new management framework

Deng

Zhu

Lin

et al. 2020

Acta Epileptologica

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Digital health applications in the self‐management of epilepsy—A survey on patients' perspective

Houta,

Bader,

Effert

et al. 2023

Epilepsia Open

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ObjectiveDigital health applications can be prescribed since 2019 in Germany, which is likely to facilitate a broad use of epilepsy self‐management applications, possibly directly connected to clinical systems via telematics infrastructures. This article reports on patients' interest in digital support for epilepsy self‐management, influencing factors and patients' knowledge about digitization of health care in Germany.MethodsThis work is based on self‐reported data from 115 people with epilepsy participating in an anonymous online survey with a total of 54 questions covering several topics, including sociodemographics and epilepsy manifestation, use of technology in general and for treatment support, training programs, affinity for technology, knowledge on the digital infrastructure in Germany, and self‐efficacy in dealing with chronic illness. The self‐constructed questionnaire uses existing instruments like TA‐EG, SES6G, and Hoffmeyer‐Zlotnik sociodemographic questionnaire. To analyze the knowledge about digitalization in health care, a combination of self‐assessment and knowledge quiz was used. The analysis was performed using descriptive methods and inferential statistics (t‐test, reliability analysis, and correlations).ResultsParticipants were most interested in seizure alerting and documentation with the possibility to share documentation with physicians. The analysis of technology affinity showed medium enthusiasm, with positively perceived consequences being rated higher than the negatively perceived consequences of technology use. Knowledge on national health infrastructures was mediocre and training on this was judged to be essential and desired. Furthermore, a significant correlation was found between interest in use and affinity for technology (enthusiasm for technology [r = 0.29; P = 0.00]) and positively perceived consequences of technology (r = 0.33; P = 0.00).SignificanceOur results underline the high relevance of digital solutions for patients and the importance of individual training opportunities in digital health literacy, thereby enabling patients to decide competently for or against offered digital solutions.

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The Role of Digital Care Pathway for Epilepsy on Patients’ Treatment Burden: Clinicians’ Perspective

Polus,

Keikhosrokiani,

Uusimaa

et al. 2024

Communications in Computer and Information Science

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Epilepsy is a chronic neurological disorder, requiring long-term treatment. The workload and impact of treatment causes a significant burden to patients. Digital care pathways may have potential for reducing treatment burden, but there also may be concerns of additional burden caused by digital healthcare. The aim of this study is to investigate the role of digital care pathway on treatment burden for patients with epilepsy. This was a single case study with the digital care pathway for epilepsy in the Wellbeing Services County of North Ostrobothnia (Pohde), in Finland, as a unit of analysis. The data was collected by observing an expert meeting of three clinicians. The meeting focused on five pre-defined domains of treatment burden: Medication burden, Time and travel burden, Financial burden, Social and emotional burden, and Healthcare access burden. The data was analyzed qualitatively and organized based on the pre-defined categories. The results suggest that the digital care pathway supports patients with treatment burden for all the pre-defined domains. Reported benefits include reduced travel, options for remote appointments, providing informational support and easier ways to contact healthcare professionals (HCPs). The main concerns clinicians had was could the use of digital care pathway cause rushed treatment decisions, difficulties of building trust and seeking support from HCPs, and difficulties of using the digital systems. A new theme emerged from the data, Diverse burdens, highlighting the variety of patients with epilepsy with differing needs for treatment.

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A review of mobile apps for epilepsy self-management

Cited by 89 publications

References 25 publications

Epilepsy control during an epidemic: emerging approaches and a new management framework

Epilepsy control during an epidemic: emerging approaches and a new management framework

Digital health applications in the self‐management of epilepsy—A survey on patients' perspective

The Role of Digital Care Pathway for Epilepsy on Patients’ Treatment Burden: Clinicians’ Perspective

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