A Review of Palliative and Hospice Care in the Context of Islam: Dying with Faith and Family

Mendieta, Maximiliano; Buckingham, Robert W.

doi:10.1089/jpm.2017.0340

Cited by 23 publications

(6 citation statements)

References 22 publications

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“…All participants to this study shared the view that people who either face their own death or are experiencing the imminent death of a loved one are often drawn to spirituality and religion as coping strategies. This finding is not surprising or new; previous studies have shown similar or the same results [31,32] but not always drawing from palliative care professionals and in a period politically and religiously charged in the UK [33].…”

Section: Resultssupporting

confidence: 65%

Palliative Professionals’ Views on the Importance of Religion, Belief, and Spiritual Identities toward the End of Life

Pentaris

Tripathi

2022

IJERPH

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Abundant literature has argued the significance of religion, belief, and spirituality at the end of life. This study aims to add to this literature by exploring palliative professionals’ views in this area. By means of an in-depth interviewing method, this paper reports data from 15 hospice and palliative care professionals. Participants were recruited from five hospice and palliative care organisations, and the data were managed and analysed with thematic analysis and NVivo (version 11). This study found three main reasons that make religion, belief, and spirituality important for patients and their loved ones when facing imminent death: the sense of comfort and security, meaning making, and closure. These reasons are not independent from one another, but complementary. This paper offers some implications for practice and concludes with a call for further research.

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Section: Resultssupporting

confidence: 65%

Palliative Professionals’ Views on the Importance of Religion, Belief, and Spiritual Identities toward the End of Life

Pentaris

Tripathi

2022

IJERPH

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“…13,40 The existing literature has explored the barriers to its use in Muslim communities. 4 However, many of these philosophical concerns are less prominent in our findings, perhaps due to the absence of strong opioids and only limited availability of weak opioids in rural settings. In our sample, community leaders, including imams, emphasise the health professionals’ obligation to employ all available methods to relieve suffering.…”

Section: Discussionmentioning

confidence: 69%

“…3 Research has documented how Islamic beliefs and practices pertain to palliative care issues. 4–7 However, such generalisations of a universal image of Islam can lead to stereotyping and prejudice. 8,9 Islam does have much which unites its global adherents; however, there are ethnic, cultural and social differences in beliefs and practices.…”

Section: Introductionmentioning

confidence: 99%

“…8,9 Islam does have much which unites its global adherents; however, there are ethnic, cultural and social differences in beliefs and practices. 4,10,11 There is therefore a gap in understanding how idiosyncrasies of individuals’ and communities’ interpretations and practices of Islam impact upon how palliative care is perceived in resource-limited Muslim settings. The Islamic Republic of Mauritania in West Africa, a lower middle-income country with a predominantly Muslim population, 12 is an example of such a context.…”

Section: Introductionmentioning

confidence: 99%

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Perceptions of palliative care in a lower middle-income Muslim country: A qualitative study of health care professionals, bereaved families and communities

Fearon

Kane

Aliou³

et al. 2018

Palliat Med

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Background:Palliative care has been successfully integrated into many Muslim-majority countries, most frequently in urbanised areas with developed health care systems. Less is known as to how the concept of palliative care is perceived by Muslim populations and health workers in rural, resource-limited contexts.Aim:This study seeks to explore whether the principles of palliative care are congruent with the perspectives of health professionals, families and communities in rural areas of the Islamic Republic of Mauritania, in West Africa.Design:A qualitative research design was employed underpinned by a constructionist paradigm. Data were collected through 31 interviews and 8 focus groups. Data were analysed using thematic analysis.Setting/participants:A total of 76 participants were recruited from across rural Mauritania; 33 health care professionals, 12 recently bereaved family members and 31 community leaders. Data collection occurred during training events in the capital and visits to villages and rural health posts.Results:Three major themes were identified. First, there is a perceived lack of congruency between an illness which limits life and the strong belief in destiny. The second theme describes the perceived barriers to communication of issues relating to palliative care. Finally, a good death is described, framed within the interplay of religious faith and cultural practices.Conclusion:The palliative care ethos is viewed positively by the majority of participants. The need to understand and respect a Muslim individual’s faith does not diminish our obligation to personalise palliative care provided for them and their family.

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“…Even the difference did not reach the level of significance, a trend towards a lower frequency of choices for hospices by families of Turkish origin was found. End-of-life care in hospices may not exactly match preferences of Turkish or Muslim families who in turn may benefit from a stronger family support [ 18 ].…”

Section: Discussionmentioning

confidence: 99%

Advance care planning and the parental geographical background in pediatric palliative home care: a retrospective chart review

et al. 2022

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The relevance to acknowledge the parental migration history in pediatric palliative care is widely recognized. However, its influence on integral parts of advance care planning (ACP) is unknown. In this non-interventional cohort study, we aimed at identifying systematic differences between pediatric palliative patients with varying parental countries of origin regarding medical orders for life-sustaining treatment and the location of patients’ death. Two hundred eighty-eight pediatric cases in an ambulant pediatric palliative care setting in Germany were retrospectively analyzed using multinomial logistic regression models. Agreements on medical orders for life-sustaining treatment (MOLST) differed significantly between patients with varying parental countries of origin. Full code orders for life-sustaining treatment were made more often in Turkish families than in German families. There were no significant associations between the patients’ location of death and the parental countries of origin. However, confounder-analysis revealed a strong association between the patients’ underlying disease and the orders for life-sustaining treatment as well as the location of death.Conclusions: Even this study indicates that the parental geographical background as an important sociocultural aspect might have an impact on ACP decisions for children and adolescents with life-limiting conditions, other factors as the patients’ underlying disease can be more crucial for decision making in pediatric palliative care. The reason for the differences found might lay in cultural preferences or barriers to appropriate care. The inclusion of sociocultural aspects in decision-making is crucial to guarantee culture-sensitive, patient-centered pediatric palliative care. What is Known:• Decision making processes in pediatric palliative care are influenced by various cultural and religious norms.• So far, there is little knowledge about tangible differences with regard to end-of-life care decisions according to the geographical background of parents. What is New:• End-of-life care decisions varied significantly with the parental country of origin.• Other factors as the underlying disease may be more crucial for decision making in pediatric palliative care.

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A Review of Palliative and Hospice Care in the Context of Islam: Dying with Faith and Family

Abstract: A true opportunity to make a lasting impact at the patient level exists for palliative and hospice care researchers if we seek to understand, gain knowledge, and respect Muslim culture and Islamic issues at the end of life.

Cited by 23 publications

References 22 publications

Palliative Professionals’ Views on the Importance of Religion, Belief, and Spiritual Identities toward the End of Life

Palliative Professionals’ Views on the Importance of Religion, Belief, and Spiritual Identities toward the End of Life

Perceptions of palliative care in a lower middle-income Muslim country: A qualitative study of health care professionals, bereaved families and communities

Advance care planning and the parental geographical background in pediatric palliative home care: a retrospective chart review

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