A Review of the Essential Components of Quality Palliative Care in the Home

Seow, Hsien; Bainbridge, Daryl

doi:10.1089/jpm.2017.0392

Cited by 65 publications

(45 citation statements)

References 43 publications

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“…Whilst the inclusion of a mixture of settings within many studies reflects the reality of the patient experience, the focus on community settings is in line with international and national policy [ 7 , 21 ]. In order to improve community based palliative care, some key areas for priority and consideration have been identified in the literature, including integration and timeliness of access to services, holistic management of pain and other symptoms, and compassionate and skilled providers [ 22 ]. In addition, future research needs to enhance the evidence base around different models of care, demonstrating not only effectiveness in terms of patient and family outcomes, but also cost effectiveness for practice, as evidence to date is inconclusive [ 23 ].…”

Section: Discussionmentioning

confidence: 99%

Examining palliative and end of life care research in Ireland within a global context: a systematic mapping review of the evidence

et al. 2018

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BackgroundGlobally the state of palliative care research remains uncertain. Questions remain regarding impact, funding, and research priorities. Building upon previous research, this review examines palliative care research in Ireland and contributes to a wider international debate on the state of palliative care research.MethodsA systematic mapping review was undertaken. Eight bibliographic databases and thesis repositories were searched from May 2012 to April 2017. Palliative care related search terms were combined with “Ireland” or “Irish” to increase search sensitivity. Inclusion criteria were applied by two independent reviewers. Descriptive analysis was completed using IBM SPSS v23. Thematic analysis was undertaken using a data-driven approach to develop new themes.ResultsIn total, 808 studies were screened and 151 papers from 117 studies were included for review. The top two areas of research focus included: (1) specific groups, services, and settings (n = 70); and (2) identification, communication and education (n = 37). A diverse variety of research methods were used including mixed methods (25%), surveys (22%), interviews (20%), and reviews (17%). One randomised control trial was conducted. The predominance of research papers focused solely on health care professionals (n = 35%), and the community setting was the most frequent location for data collection (41%). The majority of data was collected across the two jurisdictions of the Republic of Ireland (ROI) and Northern Ireland (NI) (37%), and 23% of studies included data outside of Ireland and the UK. The most frequent sources of funding were: consortiums (n = 40); government (n = 24); and philanthropic bodies (n = 20). Forty percent (n = 60) of papers were either unfunded or did not acknowledge a funder.ConclusionsThere is a continued increase in palliative care research in Ireland with increased collaborative working nationally and internationally. The quantity and impact of research has increased from the previous review, which can be attributed to significant investment in research funding and collaborative networks. However, research gaps continue to exist including out of hours’ care, physical and psychological symptom control, intervention studies, and the patient and family perspective. Areas for attention include the need to ensure knowledge exchange and demonstrate impact of the research on patient and family carer outcomes.Electronic supplementary materialThe online version of this article (10.1186/s12904-018-0364-7) contains supplementary material, which is available to authorized users.

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Section: Discussionmentioning

confidence: 99%

Examining palliative and end of life care research in Ireland within a global context: a systematic mapping review of the evidence

et al. 2018

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“…The COVID-19 pandemic has brought about a reframing of contemporary society's approach and attitude toward death and dying. Where this may have been considered pre-pandemic, 47 the current events highlight exacerbations to the previously doubted experience of dying, providing an opportune moment to promote meaningful decision-making at EoL. 48 Dying is uncertain and unpredictable, but elements that are valuable are related as much to holistic and family care, compassion, communication and teamworking as to the formal management of pain and other physical symptoms.…”

Section: Dyingmentioning

confidence: 99%

The dying patient: taboo, controversy and missing terms of reference for designers—an architectural perspective

2020

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Contemporary society has grown seemingly detached from the realities of growing old and subsequently, dying. A consequence, perhaps, of death becoming increasingly overmedicalised, nearly one in two UK nationals die institutional deaths. In this article we, two architectural scholars engaged in teaching, research and practice and a nurse and healthcare scholar with a focus on end-of-life care and peoples’ experiences, wish to draw attention to a controversy resulting from a paucity in current literature on the terms of reference of the dying ‘patient’ as we navigate the future implications of the COVID-19 pandemic. This contributes to a relative lack of touchstones for architects to refer to when designing person-centred palliative care environments. Unlike common building types, architects are extremely unlikely to have lived experience of palliative care environments as patients; and therefore, require the help of healthcare professionals to imagine and empathise with the requirements of a person dying away from home. This paper includes a review of ageing and dying literature to understand, and distil from an architectural perspective, who, design professionals, are designing for and to remember the nuanced characteristics of those we hold a duty of care toward. We ask readers to heed the importance of accurate terms of reference, especially when commissioning and/or designing environments of palliative care. Furthermore, we put forward an appeal for interdisciplinary collaboration to develop a framework for codesigning positive experiences of person-centred care and environments at the end of life.

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“…Seow et al pointed out that inter-professional cooperation is an element that could enhance quality of home-based palliative care. Thus, there should be coordination and cooperation among different elements of health care services including home, hospital, primary health care physicians, and health centers [18]. When health care providers work closely together as team members, they can share patient information; consequently, they avoid unnecessary parallel work and offer comprehensive services.…”

Section: Discussionmentioning

confidence: 99%

Exploring health care providers’ perceptions about home-based palliative care in terminally ill cancer patients

Heydari

Hojjat-Assari²,

Almasian

et al. 2019

BMC Palliat Care

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Background According to the World Health Organization, palliative care is one of the main components of healthcare. As the incidence of cancer is increasing in the world, home-based palliative care can be beneficial for many patients. This study was designed to explore health care providers’ perceptions about home-based palliative care in terminally ill cancer patients. Methods This qualitative study was carried out using the conventional content analysis from October 2016 to September 2018 in Iran. Participants were home care providers who were selected using purposive sampling. The data were collected through 18 individual interviews, and a focus group meeting. Data were analyzed based on the method proposed by Lundman and Graneheim. Results from the data analysis, 511 initial codes were extracted, which were categorized into the two main categories of challenges and opportunities for home-based palliative care and 10 subcategories. The subcategories of challenges included deficiencies in inter-sectoral and inter-professional cooperation, lack of infrastructures for end-of-life care, challenges related to the management of death, challenges of transferring patients to home, providing non-academic palliative care, lack of political commitment of the government and Spiritual vacuum . The category of opportunities included subcategories of cost-effectiveness, moving towards socializing health, and structure of the health system. Conclusions Home-based palliative care requires government and health system support. Structural and process modification in the healthcare can provide conditions in which terminally ill cancer patients receive appropriate care in home and experience death with dignity through support of family, friends and healthcare.

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A Review of the Essential Components of Quality Palliative Care in the Home

Cited by 65 publications

References 43 publications

Examining palliative and end of life care research in Ireland within a global context: a systematic mapping review of the evidence

Examining palliative and end of life care research in Ireland within a global context: a systematic mapping review of the evidence

The dying patient: taboo, controversy and missing terms of reference for designers—an architectural perspective

Exploring health care providers’ perceptions about home-based palliative care in terminally ill cancer patients

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