A Review of Validated Quality-of-Life Patient-Reported Outcome Measures in Pediatric Plastic Surgery

Roller, Janine M.; Courtemanche, Rebecca; Courtemanche, Douglas J.

doi:10.1097/prs.0000000000004841

Cited by 7 publications

(4 citation statements)

References 70 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The patient-reported outcomes measure (PROM) evaluates a patient's quality of life by the way of scales to promote communication, inspect and identify HRQOL issues, enhance patient-centered treatment, and increase patient satisfaction [14]. PROM is widely used in HRQOL and combines all aspects of emotional, psychological, physical, and social functions, and even includes an individual's subjective perception of health [15,16].…”

Section: Introductionmentioning

confidence: 99%

A nomogram based on a patient-reported outcomes measure: predicting the risk of readmission for patients with chronic heart failure

Han

Ren

Tian

et al. 2020

Health Qual Life Outcomes

View full text Add to dashboard Cite

Background: Health-related quality of life, as evaluated by a patient-reported outcomes measure (PROM), is an important prognostic marker in patients with chronic heart failure. This study aimed to use PROM to establish an effective readmission nomogram for chronic heart failure. Methods: Using a PROM as a measurement tool, we conducted a readmission nomogram for chronic heart failure on a prospective observational study comprising of 454 patients with chronic heart failure hospitalized between May 2017 to January 2020. A Concordance index and calibration curve were used to evaluate the discriminative ability and predictive accuracy of the nomogram. A bootstrap resampling method was used for internal validation of results. Results: The median follow-up period in the study was 372 days. After a final COX regression analysis, the gender, income, health care, appetite-sleep, anxiety, depression, paranoia, support, and independence were identified and included in the nomogram. The nomogram showed moderate discrimination, with a concordance index of 0.737 (95% CI 0.673-0.800). The calibration curves for the probability of readmission for patients with chronic heart failure showed high consistency between the probability, as predicted, and the actual probability. Conclusions: This model offers a platform to assess the risk of readmission for different populations with CHF and can assist clinicians with personalized treatment recommendations.

show abstract

Section: Introductionmentioning

confidence: 99%

A nomogram based on a patient-reported outcomes measure: predicting the risk of readmission for patients with chronic heart failure

Han

Ren

Tian

et al. 2020

Health Qual Life Outcomes

View full text Add to dashboard Cite

show abstract

“…[12,13] The patient-reported outcomes measure (PROM) evaluates a patient's quality of life by the way of scales to promote communication, inspect and identify HRQOL issues, enhance patient-centered treatment, and increase patient satisfaction. [14] PROM is widely used in HRQOL and combines all aspects of emotional, psychological, physical, and social functions, and even includes an individual's subjective perception of health. [15,16] Over the years, there has been considerable progress in the measurement, analysis, and interpretation of PROM, which has been validated by multifarious studies.…”

Section: Introductionmentioning

confidence: 99%

A Nomogram based on a Patient-reported Outcomes Measure: Predicting the Risk of Readmission for Patients with Chronic Heart Failure

Han

Tian

Yang

et al. 2020

Preprint

View full text Add to dashboard Cite

Background Health-related quality of life, evaluated by a patient-reported outcomes measure, is an important prognostic marker in patients with chronic heart failure. This study aimed to use PROM to establish an effective readmission nomogram for chronic heart failure.Methods Using patient-reported outcomes measure as a measurement tool, we conducted a readmission nomogram for chronic heart failure on a prospective observational study comprising 454 patients with chronic heart failure hospitalized between May 2017 to January 2020. Concordance index and calibration curve were used to evaluate the discriminative ability and predictive accuracy of the nomogram. A bootstrap resampling method was used for internal validation of results. ResultsThe median follow-up period in the study was 197 days. After a final COX regression analysis, the computed gender, income, health care, appetite-sleep, anxiety, depression, paranoia, support, and independence were identified and included in the nomogram. The nomogram showed moderate discrimination, with concordance index of 0.737 (95% CI 0.673-0.800). The calibration curves for the probability of readmission for patients with chronic heart failure showed high consistency between the probability, as predicted, and the actual probability.Conclusions This model offers a platform to assess the risk of readmission for different populations with CHF and can assist clinicians with personalized treatment recommendations.

show abstract

“…Patient-reported acceptability and intelligibility of speech as well as participation in communication were also included in the initial COS. QOL refers to the judgment of value placed on patient's health-related experiences. Roller et al demonstrated that the majority of PRO instruments used in pediatric plastic surgery are generic, rather than specific to the condition being treated (Roller et al, 2018). Interestingly, such measures tend not to be responsive to changes in functional status as a result of surgical intervention (Schönmeyr et al, 2015).…”

Section: Patient-reported Outcomesmentioning

confidence: 99%

Core Outcome Set for Reporting Outcomes of Interventions for Velopharyngeal Dysfunction: Final Results of the COS-VPD Initiative

Blacam

Baylis

Kirschner

et al. 2021

The Cleft Palate Craniofacial Journal

View full text Add to dashboard Cite

Objective To date, the recording of outcomes of interventions for velopharyngeal dysfunction (VPD) has not been standardized. This makes a comparison of results between studies challenging. The aim of this study was to develop a core outcome set (COS) for reporting outcomes in studies examining the management of VPD. Design A two-round Delphi consensus process was used to develop the COS. Patients, Participants The expert Delphi panel comprised patients and caregivers of patients with VPD, surgeons and speech and language therapists specializing in cleft palate, and researchers with expertise in VPD. Interventions A long list of outcomes was derived from the published literature. In each round of a Delphi survey, participants were asked to score outcomes using the Grading of Recommendations, Assessment, Development, and Evaluations scale of 1 to 9, with 1 to 3 labeled “not important,” 4 to 6 labeled “important but not critical,” and 7 to 9 labeled “critical.” Main outcome measure Consensus criteria were specified a priori. Outcomes with a rating of 75% or more of the panel rating 7 to 9 and 25% or fewer rating 1 to 3 were included in the COS. Results A total of 31 core outcomes were identified from the Delphi process. This list was condensed to combine topic areas to produce a final COS of 10 outcomes, including both processes of care and patient-reported outcomes that should be considered for reporting in future studies of VPD. Conclusions Implementation of the COS-VPD will facilitate consistency of outcomes data collection and comparison of results across studies.

show abstract

A Review of Validated Quality-of-Life Patient-Reported Outcome Measures in Pediatric Plastic Surgery

Cited by 7 publications

References 70 publications

A nomogram based on a patient-reported outcomes measure: predicting the risk of readmission for patients with chronic heart failure

A nomogram based on a patient-reported outcomes measure: predicting the risk of readmission for patients with chronic heart failure

A Nomogram based on a Patient-reported Outcomes Measure: Predicting the Risk of Readmission for Patients with Chronic Heart Failure

Core Outcome Set for Reporting Outcomes of Interventions for Velopharyngeal Dysfunction: Final Results of the COS-VPD Initiative

Contact Info

Product

Resources

About