A Scoping Review of Barriers and Facilitators Affecting the Lives of People With Disabilities During COVID-19

Croft, Samantha; Fraser, Sarah

doi:10.3389/fresc.2021.784450

Cited by 25 publications

(14 citation statements)

References 85 publications

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“…For example, following recommendations from the Centers for Disease Control and Prevention (CDC) and the WHO, governments in Europe, North/South America, Africa, and Asia including 12 low-income, middle-income and high-income countries tried to reduce the duration of inpatient treatments ( 31 ). To this effect, a scoping review with studies from different countries including most commonly the US, the U.K., and Brazil, showed significant disruption to healthcare during the pandemic and worsening health outcomes in persons with disabilities ( 7 ). In Germany, the pandemic caused a reduction in the number of medical rehabilitation requests by 14.5% ( 33 ).…”

Section: Responses To Covid-19 Across the Globementioning

confidence: 99%

“…The negative physical and mental health outcomes associated with COVID-19, stressed the importance of timely quality care for patients within vulnerable communities, including people with disabilities and other pre-existing health conditions who were at a higher risk of infection ( 14 , 15 ). Despite the barriers that emerged during the pandemic, changes to care and rehabilitation were also found to be a facilitator affecting the lives of vulnerable populations through for example new innovations ( 7 ).…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Evolution of rehabilitation services in response to a global pandemic: reflection on opportunities and challenges ahead

Bossuyt

Bogdanova

Kingsley

et al. 2023

Front. Rehabil. Sci.

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The rapidly evolving COVID-19 public health emergency has disrupted and challenged traditional healthcare, rehabilitation services, and treatment delivery worldwide. This perspective paper aimed to unite experiences and perspectives from an international group of rehabilitation providers while reflecting on the lessons learned from the challenges and opportunities raised during the COVID-19 pandemic. We discuss the global appreciation for rehabilitation services and changes in access to healthcare, including virtual, home-based rehabilitation, and long-term care rehabilitation. We illustrate lessons learned by highlighting successful rehabilitation approaches from the US, Belgium, and Japan.

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Section: Responses To Covid-19 Across the Globementioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Evolution of rehabilitation services in response to a global pandemic: reflection on opportunities and challenges ahead

Bossuyt

Bogdanova

Kingsley

et al. 2023

Front. Rehabil. Sci.

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show abstract

“…These measures often included physical distancing policies, economic lockdowns, and a rapid shift to virtual life (1). These restrictions changed the structure of everyday life for all individuals, and created a set of unique challenges for people with rare disorders (2). Rare disorders are disorders that affect less than 1:2000 individuals (3).…”

Section: Introductionmentioning

confidence: 99%

Trajectories of Depression and Anxiety in Adults with Rare Disorders across 13 Months During the COVID-19 Pandemic

Halsøy,

Orm,

Cogo-Moreira

et al. 2024

Preprint

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Background Adults with rare disorders experience multiple psychosocial risk factors beyond their medical symptoms, including impaired quality of life, social isolation, loneliness, and mental health problems. These risk factors were amplified during the COVID-19 pandemic, when health care appointments and social/vocational activities were reduced or cancelled. Methods We conducted a monthly survey of 58 adults aged between 19 and 71 years (M = 45.1 years, SD = 12.6) with rare disorders across 13 months during the COVID-19 pandemic. We measured symptoms of anxiety and depression with the Hopkins Symptom Checklist-5. Covid fear was measured with the Coronavirus Anxiety Scale. We examined the mental health and covid fear trajectories across the 13 months with multi-level growth curve models with repeated measures at Level 1 and individuals at Level 2. To account for differences in governmental restrictions throughout the 13 months, we used the stringency index from The Oxford Covid-19 Government Response Tracker. Results The growth models indicated stable levels of anxiety and depression over 13 months that were elevated compared to existing population data and were unpredicted by pandemic restrictions. The level of covid fear was significantly associated with the levels of anxious and depressive symptoms. Conclusions The current study found no improvement in mental health symptoms throughout the pandemic for persons with rare disorders. This highlights the necessity of investigating the long-lasting influence of the pandemic on mental health among individuals with rare disorders.

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“…Some international studies have already reported increased stress and anxiety among individuals with NDCs and their families in relation to the pandemic (Iovino et al, 2021;Pettinicchio et al, 2021;Siracusano et al, 2021;Navas et al, 2022). Nevertheless, published reports have highlighted the gaps in our knowledge and the limited amount of robust and good quality research concerning COVID-19 and people with NDCs (Croft and Fraser, 2021;Doody and Keenan, 2021). The present study aims to document more of the concerns of families of children with NDCs by including a large and representative sample of the entire population of individuals with NDCs, by conducting inferential analysis to allow for predictions, by investigating the impact of family conflicts and financial concerns, and by assessing the influence of specific inclusive and protective policy measures implemented in Switzerland during the COVID-19 pandemic.…”

Section: Introductionmentioning

confidence: 99%

Anxiety in families of individuals with neurodevelopmental conditions in the early months of the COVID-19 pandemic in Switzerland

Poi

Dukes²,

Meuleman³

et al. 2023

Front. Educ.

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In the spring of 2020, the COVID-19 pandemic generated a health, social, political, and economic crisis that dramatically reduced the institutional support for families of individuals with neurodevelopmental conditions (NDCs). To understand how these families may have experienced and coped with the pandemic, we created an online questionnaire that reached more than 10,000 families in 78 countries. The current manuscript - framed within the International Classification of Functioning, Disability and Health (ICF-10) model - investigates the impact of specific health conditions and personal or environmental factors on the anxiety of families living in Switzerland during the early months of the pandemic. To assess how differences in anxiety over time were predicted by specific health conditions or personal and environmental factors, two separate multilevel analyses were conducted for parents and their children with NDCs (N = 256). First, results showed that only parents reported an increase in anxiety when the pandemic started. Second, concerns related to loss of institutional support and financial and economic problems were the most anxiety-provoking factors for parents, whereas parents reported that the most anxiety-provoking factor for children was their concern about becoming bored. Many parents may have struggled with economic problems and managed multiple extra roles and tasks in their daily lives because institutional support was no longer available. As reported by their parents, although individuals with NDCs did not show an increase in anxiety, they may have struggled with boredom. This result may represent the inability to engage in satisfactory activities in daily life associated with a partial unawareness of the pandemic and the respective protective measures. Further research should more thoroughly investigate the potential effects of the individual’s primary condition, presence and severity of intellectual disability and awareness of the pandemic on the anxiety of individuals with NDCs. Ultimately, we present a series of reflections and practical suggestions that could help guide policymakers in potential future periods of crisis, social estrangement, and distance learning.

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A Scoping Review of Barriers and Facilitators Affecting the Lives of People With Disabilities During COVID-19

Cited by 25 publications

References 85 publications

Evolution of rehabilitation services in response to a global pandemic: reflection on opportunities and challenges ahead

Evolution of rehabilitation services in response to a global pandemic: reflection on opportunities and challenges ahead

Trajectories of Depression and Anxiety in Adults with Rare Disorders across 13 Months During the COVID-19 Pandemic

Anxiety in families of individuals with neurodevelopmental conditions in the early months of the COVID-19 pandemic in Switzerland

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