A scoping review of recommendations in the English language on conducting research with trauma-exposed populations since publication of the Belmont report; thematic review of existing recommendations on research with trauma-exposed populations

Jefferson, Kevin; Stanhope, Kaitlyn K; Jones-Harrell, Carla; Vester, Aimee; Tyano, Emma; Hall, Casey D. Xavier

doi:10.1371/journal.pone.0254003

Cited by 8 publications

(6 citation statements)

References 138 publications

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“…Some ideas for these strategies include debriefing with participants after meetings, keeping in regular contact with participants, providing participants with mental health support resources (e.g. phone numbers) that they can use to seek support as necessary, and linking Indigenous participants to cultural supports, including Elders and/or Knowledge Holders/keepers ( BC Provincial Mental Health and Substance Use Planning Council, 2013 ; Jefferson et al, 2021 ; Nonomura et al, 2020 ).…”

Section: Discussionmentioning

confidence: 99%

The Unexpected Benefits of a Decolonized Knowledge Translation Initiative for Indigenous Mother Participants

et al. 2023

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Western health research’s approach to knowledge translation (KT) has been criticized by Indigenous scholars, leaders, and communities for its misalignment with Indigenous ways of knowing and relational approaches to sharing knowledge. Conversely, Indigenous KT is understood as ‘sharing what we know about living a good life’ (Kaplan-Myrth & Smylie, 2006). Whereas KT in Euro-Western science contexts focuses on closing the know-do gap implying a separation of knowledge and action, knowledge in the Indigenous context is inherently practical and based on centuries old practices including oral traditions, experiential knowledge, and cross-cultural sharing. This article describes the development of a decolonized KT strategy. This community-engaged KT initiative was developed at the suggestion of Indigenous mothers who participated in a research study in Hamilton, Canada, which examined their experiences using health care to meet the health needs of their infants. Indigenous mothers participated in three main roles related to the KT activities: sharing their story in video, participating as team members on an Advisory Board, and directing the creation of a video series and website educational resource (KT strategy). Five Indigenous mothers participated as members of the Advisory Board. The process of participating had positive impacts on the mothers, namely, empowerment, strength, ‘I am not alone’, and healing. These unexpected findings, which go beyond the original project purpose to create an educational resource, show the significant and important benefits for research participants, particularly those from Indigenous communities, to be involved in decolonized KT strategies.

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Section: Discussionmentioning

confidence: 99%

The Unexpected Benefits of a Decolonized Knowledge Translation Initiative for Indigenous Mother Participants

et al. 2023

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“…Participants received and signed a detailed consent form prior to the meeting, and informed consent was also acquired verbally before the interview. The interview process was guided by trauma-informed principles for research (Campbell et al, 2019; Jefferson et al, 2021). Participants were encouraged to discuss any questions or concerns with the researcher before the interview and to skip questions they did not feel comfortable answering.…”

Section: Methodsmentioning

confidence: 99%

Structural barriers and facilitators to mental health services for international aid workers.

Nerenberg¹,

Kia‐Keating²

2024

Traumatology

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International aid workers provide critical services to millions of people around the world who are facing conflict, poverty, disease, and natural disasters. As such, aid workers routinely encounter danger and adversity, and endure negative mental health sequelae, including traumatic stress. While aid organizations have begun to provide psychosocial support services to their employees, the barriers and facilitators impacting aid workers' access to mental health resources and services are understudied, and it is unclear how organizational actions facilitate or impede aid worker utilization of these services. Fourteen international aid workers participated in 90-min semistructured interviews and reflexive thematic analysis was used to identify key themes from the interviews. Workplace barriers to access and utilization of psychosocial services included expectations of workplace productivity, unsupportive management, fear of negative career consequences, lack of organizational recognition of mental health symptoms, services that do not meet aid workers' needs, and limited resources. Facilitators included positive messaging from employers around mental health, referrals to specific providers experienced in serving aid workers, and training managers about mental health and trauma. Future directions and implications are discussed.

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“…Although used widely in healthcare settings, cultural safety within research has not been explored extensively in the existing literature [43]. Gaps also exist in the literature relating to gold standard approaches to trauma-informed research [78].…”

Section: Gapsmentioning

confidence: 99%

Experiences of Indigenous peoples living with pelvic health conditions: A scoping review

Brown,

Choi,

Kim

et al. 2024

Preprint

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Background - Pelvic health conditions significantly impact quality of life and are prevalent in the general population. Urinary and fecal incontinence, pelvic organ prolapse, and pelvic pain are examples of pelvic health conditions. A scoping review was conducted to understand what is currently known about pelvic health conditions experienced by Indigenous populations worldwide. To date, no such review has been reported. Methods - A scoping review methodology was used. In June 2023, a search was conducted, and then updated in February 2024, capturing both primary and grey literature. An iterative process of abstract and full text screening was conducted by two reviewers before proceeding to data extraction. Inclusion criteria focused on English publications and reports of pelvic health conditions experienced by Indigenous peoples. Data was collected in Google Sheets, and then underwent descriptive statistical analysis. Publications that provided qualitative data were analyzed using thematic analysis. Results – A total of 203 publications were included in the analysis. Several patterns emerged regarding publication region, gender and age representation, pelvic health conditions reported, and representation of Indigenous peoples. Notable gaps were a lack of publications from China, Russia, and Nordic countries, minimal representation of gender diverse populations, few publications reporting on auto-immune and bowel conditions, and limited mention of trauma-informed and culturally safe approaches. Conclusions – This study highlights gaps in the current literature around gender representation, bowel and auto-immune conditions, regional representation, and the use of safety frameworks, which may inform future research initiatives. It also summarizes the existing literature, which may inform clinical and health system-level decision making.

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A scoping review of recommendations in the English language on conducting research with trauma-exposed populations since publication of the Belmont report; thematic review of existing recommendations on research with trauma-exposed populations

Cited by 8 publications

References 138 publications

The Unexpected Benefits of a Decolonized Knowledge Translation Initiative for Indigenous Mother Participants

The Unexpected Benefits of a Decolonized Knowledge Translation Initiative for Indigenous Mother Participants

Structural barriers and facilitators to mental health services for international aid workers.

Experiences of Indigenous peoples living with pelvic health conditions: A scoping review

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