A Scoping Review of Targeted Interventions and Training to Facilitate Medical Encounters for School-Aged Patients with an Autism Spectrum Disorder

Kouo, Jennifer L.; Kouo, Theodore

doi:10.1007/s10803-020-04716-9

Cited by 13 publications

(14 citation statements)

References 52 publications

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“…In particular, the ways that CCLSs conceptualize their role in providing care to children and families, while drawing upon their unique expertise and training, has not been previously addressed and is a unique contribution of this study. As well, this investigation builds upon previous studies (Kouo & Kouo, 2020;Straus et al, 2019) that highlight the importance of education and training for professionals in their efforts to enhance the medical encounters of children who have ASD. Specifically, clinical recommendations on how such training should be implemented in hospital settings is provided with a particular focus on the ways that the CCLSs can play a lead role in such efforts.…”

Section: Discussionmentioning

confidence: 87%

Meeting the Needs of Children With Autism Spectrum Disorder and Their Families in Hospital Settings: The Perspectives of Certified Child Life Specialists and Nurses

Fraatz¹,

Durand

2021

The Journal of Child Life: Psychosocial Theory and Practice

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Children who have Autism Spectrum Disorder (ASD) have complex psychosocial, behavioral, and physiological profiles and are hospitalized at higher rates than their typically developing peers. This study examined the perspectives of two key members of the health care team, certified child life specialists and nurses, on how to meet the needs of children who have ASD and their families in hospital settings. Participants included seven health care professionals from two urban hospitals in the Northeast. One-on-one interviews were held with four child life specialists and three nurses. Qualitative analyses yielded six themes that addressed ways to serve children who have ASD: partner with the family, individualize care, advocate for more education, understand ASD is a spectrum of differences, think psychosocially not just medically, and emphasize consistency in care. Findings illustrate the complexity of the ASD diagnosis in light of the limited training and education health care professionals receive and are discussed with regard to their implications for the ways that institutional policies, including those within the child life profession, can facilitate the delivery of optimal care for this population in hospital environments.

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Section: Discussionmentioning

confidence: 87%

Meeting the Needs of Children With Autism Spectrum Disorder and Their Families in Hospital Settings: The Perspectives of Certified Child Life Specialists and Nurses

Fraatz¹,

Durand

2021

The Journal of Child Life: Psychosocial Theory and Practice

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“…28 These patients commonly have comorbid mental health conditions, including anxiety and depression. 29,30 Children with autism are 4 times more likely to present to EDs than their neurotypical peers, with behavioral issues including acute agitation leading to ED referrals. 31 It is important to communicate with the child's parent or caregiver to understand any accommodations the child may need, his/her preferred communication style, any potential stressors leading up to their presentation, and any effective de-escalation strategies that have worked well in the past.…”

Section: Agitation In Neurodivergent Patientsmentioning

confidence: 99%

“…Neurodivergence describes individuals who perceive the world differently than what is considered typical and includes people with attention-deficit/hyperactivity disorder, learning disabilities, or anyone on the autism spectrum 28 . These patients commonly have comorbid mental health conditions, including anxiety and depression 29,30 . Children with autism are 4 times more likely to present to EDs than their neurotypical peers, with behavioral issues including acute agitation leading to ED referrals 31 .…”

Section: Agitation In Neurodivergent Patientsmentioning

confidence: 99%

De-escalation Techniques for the Agitated Pediatric Patient

Georgadarellis

Baum

2023

Pediatr Emer Care

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The emergency department can be a particularly challenging environment for the care of pediatric patients presenting with acute agitation. Agitation is a behavioral emergency requiring prompt intervention. Timely recognition of agitation and proactive implementation of de-escalation strategies are critical for safe and effective management of agitation, as well as prevention of recurrent episodes. This article reviews the definition of agitation, explores the domains of verbal de-escalation, and considers multidisciplinary management strategies for children with acute agitation.

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“…9 Provider discomfort with and lack of knowledge of ASD, communication challenges with patients, and disregard for caregiver concerns have been identified as barriers to care. 4,9 Multiple approaches have been described to improve care for patients with ASD in acute visit settings. One is the child-and family-centered care model.…”

Section: Autism Spectrum Disorder In the Emergency Departmentmentioning

confidence: 99%

Medical Management of Children With Autism in the Emergency Department

Wolpert¹,

Kim²,

Kodish³

et al. 2022

Pediatr Emer Care

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Autism spectrum disorder (ASD) is an increasingly prevalent diagnosis characterized by impairment of social communication and behavioral regulation. Children with ASD seek care more frequently in the emergency department (ED) than their neurotypical peers and the approach to medical evaluation of this population requires heightened attention to a variety of factors. Communication with caregivers, attention to environmental stimulation, identification of accommodation needs, and understanding frequently associated medical conditions are important considerations in ED encounters. Gastrointestinal problems, seizure disorders, and metabolic disease are common causes for ED presentation in children with ASD. A high index of suspicion for underlying medical issues must be maintained, even when children with ASD present primarily for behavioral concerns. Autism spectrum disorder (ASD) is an increasingly prevalent diagnosis characterized by impairment of social communication and behavioral regulation. Children with ASD seek care more frequently in the emergency department (ED) than their neurotypical peers and the approach to medical evaluation of this population requires heightened attention to a variety of factors. Communication with caregivers, attention to environmental stimulation, identification of accommodation needs, and understanding frequently associated medical conditions are important considerations in ED encounters. Gastrointestinal problems, seizure disorders, and metabolic disease are common causes for ED presentation in children with ASD. A high index of suspicion for underlying medical issues must be maintained, even when children with ASD present primarily for behavioral concerns.

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A Scoping Review of Targeted Interventions and Training to Facilitate Medical Encounters for School-Aged Patients with an Autism Spectrum Disorder

Cited by 13 publications

References 52 publications

Meeting the Needs of Children With Autism Spectrum Disorder and Their Families in Hospital Settings: The Perspectives of Certified Child Life Specialists and Nurses

Meeting the Needs of Children With Autism Spectrum Disorder and Their Families in Hospital Settings: The Perspectives of Certified Child Life Specialists and Nurses

De-escalation Techniques for the Agitated Pediatric Patient

Medical Management of Children With Autism in the Emergency Department

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