A scoping review of the use of photo-elicitation and photovoice with autistic and neurodiverse people. Moving towards more inclusive research?

Courcy, Isabelle; Koniou, Ioulia

doi:10.1080/09687599.2022.2137391

Cited by 6 publications

(4 citation statements)

References 63 publications

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“…Moreover, a person’s lived experience is not something they often discuss or verbalize and photos can be a helpful way to share this information (Hatten et al, 2013). Photo elicitation is a qualitative method used to aid in understanding concepts or constructs that may be more abstract or difficult to articulate (Courcy & Koniou, 2022; Sigstad & Garrels, 2021). Photos, especially photos taken by a research study participant, carry psychological and emotional nuances and values (Hatten et al, 2013; Morley et al, 2011).…”

Section: Methodsmentioning

confidence: 99%

Exploring the Personal Identity of College Students With Intellectual and Developmental Disabilities

Smith Hill,

Fields,

Castle

et al. 2024

Emerging Adulthood

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Emerging adulthood is a period of human development ripe for personal identity exploration and a college campus can be a conducive environment for this to take place. Historically, many transition-age adults with intellectual and developmental disabilities (IDD) have been denied access to college, but with the rise in inclusive postsecondary education (IPSE) programs across the country, that is changing. This study uses a combination of semi-structured interviews and photo elicitation discussions with 11 emerging adults enrolled in a southeastern IPSE program to better understand how these individuals understand and express their personal identity as well as the contextual factors contributing to their experiences with personal identity. Using thematic analysis, we uncovered seven salient themes across the data, including a theme related to the complicated nature of the participants’ disability identity.

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Section: Methodsmentioning

confidence: 99%

Exploring the Personal Identity of College Students With Intellectual and Developmental Disabilities

Smith Hill,

Fields,

Castle

et al. 2024

Emerging Adulthood

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“…In general, a limitation of photo-elicitation and photovoice studies with autistic people can be the power imbalance between the researcher and the participants (Courcy & Koniou, 2022). However, this power imbalance is reduced in this research study because both the researcher and the participants are autistic.…”

Section: Limitationsmentioning

confidence: 85%

“…Participatory photography is becoming increasingly commonly used with autistic people as a more accessible research method than traditional interviews (Courcy & Koniou, 2022;Do et al, 2021). Similarly, it has been used as a way to evaluate the built environment, often at a neighbourhood scale (Alexander, 2013;Bornioli et al, 2018;Labbé et al, 2022;Teixeira & Gardner, 2017).…”

Section: Review Of Methodsmentioning

confidence: 99%

“…Participatory photography is becoming an increasingly popular method to engage autistic people in research (Courcy & Koniou, 2022;Do et al, 2021). Participatory photography studies with autistic people are mostly described as using photovoice (Cheak-Zamora et al, 2018;Danker et al, 2019;Ha & Whittaker, 2016;Hoy et al, 2018;Krutt et al, 2018;Lam et al, 2020;Obrusnikova & Cavalier, 2011;Teti et al, 2016), while others use the term photoelicitation (Danker et al, 2017;Hill, 2014;Lamb et al, 2016).…”

Section: Precedents With Autistic Peoplementioning

confidence: 99%

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Exploring How Interior Electric Lighting Systems meet the Needs of Autistic People

Noble

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Everyone is affected by the built environment, with indoor environment quality (IEQ) linked to comfort, productivity, health, and wellbeing. Autistic people are widely reported to have differences in how they process sensory information compared to neurotypical people, regardless of age or IQ. However, there is limited systematic research linking these two areas, and what does exist is primarily focused on children in educational environments. An earlier study for the author’s Master of Building Science thesis looked at the effect of IEQ on autistic adults across the built environment. While electric lighting factors were rated negatively by autistic adults in this key resource, it could not provide specific information about the types of lighting systems, layouts, etc. that caused issues. It was also not possible to attribute issues with electric lighting to specific building types.This research is an in-depth exploration of autistic people’s perceptions of indoor electric lighting systems in their everyday built environment, using a mixed methods participatory photo diary research design. Autistic participants (n=13) were asked to take photographs of indoor lighting over the course of two weeks and send them in using an online return form. A subsequent direct follow up questionnaire was used to clarify and expand on the initial data analysis. Data collected were a detailed and descriptive mixture of visual photographs, rating scales and text-based comments.Participants were able to self-select what they felt was important to them to submit as photographs. As a result, rich data has been gathered. Participants submitted photographs across a wide range of locations, with a wide range of examples of different lighting systems. In general, there were more negative issues than positive effects that came out of the themes of the data analysis, with over half of the photographs submitted of lighting that participants disliked, a quarter neutral, and a quarter liked.Four themes were identified: lighting attributes (including location, lighting system layout, lamp shapes, types and number), technical factors (including flicker, noise, colour, glare, brightness, shadows/patterns, reflections and control), reactions to lighting (physical and emotional) and descriptive language. The use of a participatory photography method was successful also in collecting data in a way that was novel and adapted to be accessible to autistic participants. Limitations of the research include the requirement of digital access, and use of questionnaire-based follow-up. This research was also performed in the context of the COVID-19 pandemic, with data collection occurring in late 2019 and follow-up in early 2020 as lockdowns were beginning in New Zealand.This research provides many avenues for future research to create more accessible indoor environments. These include the design of electric lighting for comfort in specific environments such as medical waiting rooms and community spaces, preferences of colour temperature of lighting, the need for a technical understanding of flicker parameters for autistic people particularly around dimmable LEDs, investigation of the positive effects of lighting, understanding of the problems of linear lighting laid out in an array, and how people describe lighting that they like and dislike.

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Working as facilitators and co-researchers: opportunities, tensions and complexities in educational participatory research

Martinez-Vargas,

Mathebula,

Cin

et al. 2024

Educational Action Research

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A scoping review of the use of photo-elicitation and photovoice with autistic and neurodiverse people. Moving towards more inclusive research?

Cited by 6 publications

References 63 publications

Exploring the Personal Identity of College Students With Intellectual and Developmental Disabilities

Exploring the Personal Identity of College Students With Intellectual and Developmental Disabilities

Exploring How Interior Electric Lighting Systems meet the Needs of Autistic People

Working as facilitators and co-researchers: opportunities, tensions and complexities in educational participatory research

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