A SHARP Response: Developing COVID-19 Research Aims in Partnership with the Seniors Helping as Research Partners (SHARP) Group

Elliott, Jacobi; Whate, Alexandra; McNeil, Heather; Kernoghan, Alison; Stolee, Paul

doi:10.1017/s0714980821000453

Cited by 7 publications

(6 citation statements)

References 16 publications

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“…Importantly, most participants felt they were able to maintain their patient-doctor relationship despite the change in the mode of care delivery, thus alleviating some of the concern raised by Senderovich and Wignarajah [13] about maintaining the quality of the therapeutic alliance. Our study participants described the convenience of virtual visits as well as increased safety, including the avoiding of unsafe travel conditions, similar to findings by Elliott et al [29]. Participants also felt virtual care would be more time efficient for the provider, but we note that some studies of virtual care have not found cost-saving benefits [30].…”

Section: Comparison With Prior Worksupporting

confidence: 82%

The Impact of COVID-19 on Older Adults’ Perceptions of Virtual Care: Qualitative Study

Abdallah¹,

Stolee²,

Lopez³

et al. 2022

JMIR Aging

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Background In response to the COVID-19 pandemic, older adults worldwide have increasingly received health care virtually, and health care organizations and professional bodies have indicated that virtual care is “here to stay.” As older adults are the highest users of the health care system, virtual care implementation can have a significant impact on them and may pose a need for additional support. Objective This research aims to understand older adults’ perspectives and experiences of virtual care during the pandemic. Methods As part of a larger study on older adults’ technology use during the pandemic, we conducted semistructured interviews with 20 diverse older Canadians (mean age 76.9 years, SD 6.5) at 2 points: summer of 2020 and winter/early spring of 2021. Participants were asked about their technology skills, experiences with virtual appointments, and perspectives on this type of care delivery. Interviews were digitally recorded and transcribed. A combination of team-based and framework analyses was used to interpret the data. Results Participants described their experiences with both in-person and virtual care during the pandemic, including issues with accessing care and long gaps between appointments. Overall, participants were generally satisfied with the virtual care they received during the pandemic. Participants described the benefits of virtual care (eg, increased convenience, efficiency, and safety), the limitations of virtual care (eg, need for physical examination and touch, lack of nonverbal communication, difficulties using technology, and systemic barriers in access), and their perspectives on the future of virtual care. Half of our participants preferred a return to in-person care after the COVID-19 pandemic, while the other half preferred a combination of in-person and virtual services. Many participants who preferred to access in-person services were not opposed to virtual care options, as needed; however, they wanted virtual care as an option alongside in-person care. Participants emphasized a need for training and support to be meaningfully implemented to support both older adults and providers in using virtual care. Conclusions Overall, our research identified both perceived benefits and perceived limitations of virtual care, and older adult participants emphasized their wish for a hybrid model of virtual care, in which virtual care is viewed as an addendum, not a replacement for in-person care. We recognize the limitations of our sample (small, not representative of all older Canadians, and more likely to use technology); this body of literature would greatly benefit from more research with older adults who do not/cannot use technology to receive care. Findings from this study can be mobilized as part of broader efforts to support older patients and providers engaged in virtual and in-person care, particularly post–COVID-19.

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Section: Comparison With Prior Worksupporting

confidence: 82%

The Impact of COVID-19 on Older Adults’ Perceptions of Virtual Care: Qualitative Study

Abdallah¹,

Stolee²,

Lopez³

et al. 2022

JMIR Aging

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“…Intentional dialogue pathways such as email, telephone or letters were instrumental methods of interaction (25,31,47,50). Creative methods such as role play and parallel workshops were utilised (36, 41, 45) and virtual meetings once a rapport was established (24,30). Some studies recognised the challenges of digital literacy in older adults and designated an 'embedded researcher' who had an 'open-door' policy to facilitate the concerns of the PPI stakeholders (25,31,39,44).…”

Section: Tailoring Communication Methodsmentioning

confidence: 99%

Effective approaches to public involvement in care home research: a systematic review and narrative synthesis

Burgher

Shepherd

Nollett

2023

Preprint

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Background Public involvement (often referred to as patient and public involvement or PPI) integrates the voices of the public in health and care research. However, groups such as care home residents are often excluded from involvement opportunities due to the complexities of involving people with additional care and communication needs. Despite a range of approaches being used, there is little understanding about how best to incorporate their experiences, and those of other care home stakeholders, into the design and conduct of research. Objective A systematic review was conducted to identify PPI methods that better meet the specific needs of care home stakeholders. This was undertaken by i) outlining effective PPI approaches used in care home research and the key stakeholders involved; ii) describing the role of PPI in different care home contexts and iii) identifying stakeholders’ experiences and attitudes towards PPI in care homes. Methods Databases CINAHL, Embase, MEDLINE, PsycINFO and Scopus were searched for English language papers from inception to November 2021. A narrative synthesis approach was utilised to organise the extracted data into five themes. Results The search initially yielded 2314 articles (following de-duplication), with 27 meeting the inclusion criteria. Articles reported a range of input from stakeholders (including residents, staff, relatives and community stakeholders), with the impact of PPI varying according to the type of care establishment and research context. The experiences and reflections of stakeholders’ about their involvement in care home research was explored at differing levels. Some articles explicitly evaluated the effectiveness of the PPI approach using specific outcome measures whilst others indirectly described the impact of their approach. Five themes were identified as characterising an effective PPI approach: i) valuing stakeholders’ perspectives, ii) awareness of the multi-faceted research context, iii) ensuring inclusivity and transparency, iv) maintaining flexibility and adaptability and v) utilising resources and wider support. Conclusion Effective PPI in care home research requires researchers to create person-centred opportunities to adequately involve groups with physical and cognitive impairments. The findings led to the creation of evidence-based practical recommendations to support future involvement opportunities and help researchers develop strategies for inclusive opportunities for involvement. Systematic Review Registration: The review was prospectively registered on PROPSERO (CRD42021293353).

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“…The input, ideas and expertise of these older adults, caregivers and community health and social care providers will be collected through eDelphi surveys, focus groups and key-informant interviews. These perspectives are not typically engaged in research or health system design, 98 99 so we anticipate their involvement to enhance the likelihood of acceptability of a new LTlifeC model with end-users 100 and increase the potential for positive system change. 101 Patients/the public were not involved in the design of the study and will not be involved in recruitment or the conduct of the study.…”

Section: Methods and Analysismentioning

confidence: 99%

Developing an evidence-informed model of long-term life care at home for older adults with medical, functional and/or social care needs in Ontario, Canada: a mixed methods study protocol

Giosa

Saari

Holyoke³

et al. 2022

BMJ Open

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IntroductionThe COVID-19 pandemic exacerbated existing challenges within the Canadian healthcare system and reinforced the need for long-term care (LTC) reform to prioritise building an integrated continuum of services to meet the needs of older adults. Almost all Canadians want to live, age and receive care at home, yet funding for home and community-based care and support services is limited and integration with primary care and specialised geriatric services is sparse. Optimisation of existing home and community care services would equip the healthcare system to proactively meet the needs of older Canadians and enhance capacity within the hospital and residential care sectors to facilitate access and reduce wait times for those whose needs are best served in these settings. The aim of this study is to design a model of long-term ‘life care’ at home (LTlifeC model) to sustainably meet the needs of a greater number of community-dwelling older adults.Methods and analysisAn explanatory sequential mixed methods design will be applied across three phases. In the quantitative phase, secondary data analysis will be applied to historical Ontario Home Care data to develop unique groupings of patient needs according to known predictors of residential LTC home admission, and to define unique patient vignettes using dominant care needs. In the qualitative phase, a modified eDelphi process and focus groups will engage community-based clinicians, older adults and family caregivers in the development of needs-based home care packages. The third phase involves triangulation to determine initial model feasibility.Ethics and disseminationThis study has received ethics clearance from the University of Waterloo Research Ethics Board (ORE #42182). Results of this study will be disseminated through peer-reviewed publications and local, national and international conferences. Other forms of knowledge mobilisation will include webinars, policy briefs and lay summaries to elicit support for implementation and pilot testing phases.

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A SHARP Response: Developing COVID-19 Research Aims in Partnership with the Seniors Helping as Research Partners (SHARP) Group

Cited by 7 publications

References 16 publications

The Impact of COVID-19 on Older Adults’ Perceptions of Virtual Care: Qualitative Study

The Impact of COVID-19 on Older Adults’ Perceptions of Virtual Care: Qualitative Study

Effective approaches to public involvement in care home research: a systematic review and narrative synthesis

Developing an evidence-informed model of long-term life care at home for older adults with medical, functional and/or social care needs in Ontario, Canada: a mixed methods study protocol

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