A study of the stressors and coping behaviors of parents of Chinese hemophilic children

Peng, Jie; Yang, Hongbin; Gan, Fuxi; Zhao, Xielan; Li, Xin; Chen, Fangping

doi:10.1177/1367493517705736

Cited by 5 publications

(7 citation statements)

References 16 publications

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“…Arabic is the official and mother tongue language and Islam is the main religion in Jordan 12 . The other studies which their findings were compared with the findings of the present study included caregivers from UK 13–14 ; different European countries, including Germany, Italy, Netherlands, Poland, Sweden and Turkey 14 ; Sweden 15 ; Norway 16 ; United States 17 ; and China 18 …”

Section: Discussionmentioning

confidence: 90%

“…In China, Peng et al 18 . reported that the most common stressors among caregivers of children with haemophilia are related to the illness and physical condition of the children, economic problems and child treatment‐related stressors.…”

Section: Discussionmentioning

confidence: 99%

“…and China. 18 The first theme outlines the state of shock and sadness related to the initial child diagnosis, where the mothers have experienced a deep feeling of disturbing sorrow at that point. Mothers have also worried about their ability to provide care for their young children with haemophilia.…”

Section: Discussionmentioning

confidence: 99%

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The lived experience of mothers of children with haemophilia in Jordan: A phenomenological study

Obeidat,

Habashneh,

Dwairej

et al. 2023

Haemophilia

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BackgroundHaemophilia is an inherited bleeding disorder. Mothers of children with haemophilia experience stress, anxiety and different types of burdens that affect their life negatively.ObjectivesThis study aimed to explore the lived experience of mothers of children with haemophilia.MethodsA descriptive phenomenological design was utilized. The participants were selected purposively from the Jordanian Association for Thalassemia and Hemophilia. Data saturation was achieved by interviewing 20 mothers.ResultsFive themes emerged: (1) the challenges related to the diagnosis, the availability and administration of the clotting factors, and the occurrence of the bleeding emergency; (2) physical, social, psychological and financial burden; (3) fear of child death and disability; (4) stigmatization; and (5) lack of educational and medical support.ConclusionMothers of children with haemophilia suffer from physical, psychological and social consequences. Healthcare providers should carry out educational sessions regarding the importance of support for the family and throughout the life of the child.

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Section: Discussionmentioning

confidence: 90%

Section: Discussionmentioning

confidence: 99%

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The lived experience of mothers of children with haemophilia in Jordan: A phenomenological study

Obeidat,

Habashneh,

Dwairej

et al. 2023

Haemophilia

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“…Moreover, the parents communicated in a more direct manner when their children exhibited disruptive behavior, commanding them to effect a desired change in their behavior. Parental management of a child’s behavior using both indirect and direct communication has been shown to be a positive coping strategy in the Chinese cultural context (Peng et al, 2017).…”

Section: Discussionmentioning

confidence: 99%

Exploring Coping Strategies of Parents of Children With Autism Spectrum Disorder in Taiwan: A Qualitative Study

Chin

Chang²,

Chao³

2023

Journal of Nursing Research

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BackgroundChildren with autism spectrum disorder (ASD) experience impairments in their social interactions, language communication, and stereotypical patterns of behavior. Parents of children with ASD experience higher levels of stress and more depression and anxiety than parents of children with other disabilities or typically developing children. Parents of children with disabilities develop coping strategies to counteract the stresses associated with raising a child with special needs. Understanding coping strategies to help counteract the stresses associated with parenting a child with ASD may enhance well-being in parents of children with ASD, improve the quality of care provided to these children, and foster better parent–child relationships.PurposeThe purpose of this study was to explore the coping strategies used by parents in Taiwan parenting a child with ASD.MethodsIn this descriptive qualitative study, thematic analysis was conducted on data collected during face-to-face interviews. Fourteen parents of children with ASD were recruited using purposive sampling. Researchers employed a teamwork approach for data analysis to increase the dependability and consistency of the transcribed interviews. Team members discussed coding and identified the themes collaboratively.ResultsTaiwanese parents of children with ASD coped with the psychological impacts of parenting by employing problem-focused and emotion-focused strategies. Problem-focused strategies included communication, support, and management, whereas emotion-focused strategies included acceptance and adaptation. Findings showed that both coping strategies were useful in addressing specific situations and circumstances. Social and clinical support improved parents’ mental health and children’s external behaviors.Conclusions/Implication for PracticeHealthcare providers should evaluate how parents are coping with the stresses related to raising a child with ASD and consider the cultural factors that might influence how they accept and adapt to parenting children with ASD. Understanding these variables may be used to tailor strategies appropriate to reducing stress and improving the well-being of parents and their children. Support and resource referrals should be considered, including parent support groups, books, web-based services, and recommendations for professional consultations with social workers or therapists.

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“…In China, unpredictability was associated negatively with parents' ability to cope (r = −0.225;p < 0.05) (He et al, 2016). Parents regarded "family members working together as a unit" as the most helpful coping strategy, and "allowing myself to be angry" as the least helpful (Peng et al, 2017).…”

Section: Discussionmentioning

confidence: 99%

Parents' from Poland coping with the illness of a child—Preliminary research. Cultural adaptation and evaluation of the psychometric properties of the coping health inventory for parents - polish version

Bąk

Zarzycka

2022

Journal of Pediatric Nursing

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The goal was to present preliminary research results on how parents cope with the illness of a child using the Coping Health Inventory for Parents (CHIP) after it had been culturally adapted and its psychometric properties evaluated. Design and methods: Taking part in the study were 459 parents of children with asthma (n = 230) or suffering pain (n = 229).A. Results: The content validity of the coefficient of variation ratio (CVR) for each item on the scale ranged from 0.84 to 1.00. Exploratory factor analysis by principal components method with Equamax rotation confirmed the three-factor structure of the test. THe theoretical validity of the tool was confirmed by intercorrelation matrix analysis, and the criterion validity of the CHIP test was evaluated based on analysis of intergroup differences regarding individual measurements of coping by parents of children diagnosed with asthma but differentiated by need of regular medication. CHIP has high Cronbach alpha coefficients values: 0.80-0.86. Results indicate that the children's parents rate as moderately helpful the Support (2.23, ± 0.60) and Family (2.17, ± 0.55) styles. Parents rated the Medical style as least helpful in coping (1.75, ± 0,59). Conclusions: This study confirms both the accuracy and the reliability of the CHIP test, and the obtained coefficient values indicate that the tool can be used for individual and for scientific research. Practice implications: The study shows that assessment of the manner of a parent's coping with the illness of a child is influenced by the child's gender and place of residence.

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A study of the stressors and coping behaviors of parents of Chinese hemophilic children

Cited by 5 publications

References 16 publications

The lived experience of mothers of children with haemophilia in Jordan: A phenomenological study

The lived experience of mothers of children with haemophilia in Jordan: A phenomenological study

Exploring Coping Strategies of Parents of Children With Autism Spectrum Disorder in Taiwan: A Qualitative Study

Parents' from Poland coping with the illness of a child—Preliminary research. Cultural adaptation and evaluation of the psychometric properties of the coping health inventory for parents - polish version

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