A survey of handicap registers for pre-school children in England and Wales

Balarajan, R; Weatherall, J. A. C.; Ashley, J. S. A.; Bewley, Beulah R.

doi:10.1007/bf02548605

Cited by 7 publications

(2 citation statements)

References 2 publications

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“…Blair and Shean 4 argue that for rational planning we need registers based on geographically defined areas, enumerating, by year of birth, all individuals with each type of disability, defined by criteria which remain constant over time. The early health registers did not fulfil these requirements, 5 but a number of methodological improvements in the 1980s 6 enabled a number of health registers dedicated to disability to be confident about the accuracy of their data and inclusion of the vast majority of children with disability. 7,8 Whilst not all health registers meet such standards, 9 compiling a register from social service sources might be even more difficult.…”

Section: Introductionmentioning

confidence: 99%

Can a social service register of children with disabilities be used for planning services?

Colver

Atkinson

Short³

2000

Ambulat Child Health

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ObjectiveTo compare a health and a social service register of children with disability in order to assess their potential for planning services. DesignDescriptive. SettingChildren with disability resident in North Tyneside, a Local Government Authority in England. Main variables studiedDisability and its severity. ResultsThere were 1692 children on the health register and 83 on the social service register. Only 20% of the children with the most severe disability were on the social service register. There was good agreement between parents' and paediatricians' rating of severity for the children with the most severe disability. Although the health register had details of all children with disability, it did not record details of current needs. ConclusionsThe social service register did not provide data about all children with disability, and in particular only listed 20% of the children with the most severe disability. Therefore, the social service register does not appear suitable for providing data for overall planning of services, although it is helpful in describing and co-ordinating the care of a smaller number of children and families whose problems were active, complex and unresolved, and where social services had an active role.

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Section: Introductionmentioning

confidence: 99%

Can a social service register of children with disabilities be used for planning services?

Colver

Atkinson

Short³

2000

Ambulat Child Health

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“…[2][3][4][5][6][7] Aims, development, and organisation The three aims of the West Sussex SCR are to improve the care of individual children by ensuring that all those with ongoing medical, developmental or learning problems are identified and followed up, to monitor, evaluate, and plan services, and to facilitate epidemiological research.…”

Section: Introductionmentioning

confidence: 99%

A special conditions register.

Woodroffe

Abra

1991

Archives of Disease in Childhood

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A special conditions register (SCR) linked to the child health system's register of ail children has been in use in West Sussex since 1977. This paper describes the aims, organisation, and use of the SCR and gives examples of the aggegated data that may be obtained. Of the 155 000 children aged 0-17 resident in West Sussex in 1990, 4-3% were included on the SCR. Altogether 45.7% of children on the SCR had physical conditions with mild or no disability and 17-2% had moderate educational problems. The prevalence of severe hearing loss as defined was 1-7 per 1000 aged 5-17. The prevalence of diabetes mellitus was 1.2 per 1000 children aged 0-17. Validation of the SCR for diabetes mellitus found 35/36 of the eligible children were correctly registered and no child was incorrectly included. The conflicting priorities for maintaining a register for the care of individual children, for service planning, and for epidemiological research are discussed.

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