A survey of Internet utilization among patients with cancer

Castleton, K B; Fong, Thomas; Wang‐Gillam, Andrea; Waqar, Muhammad Atif; Jeffe, Donna B.; Kehlenbrink, L.; Gao, Feng; Govindan, Ramaswamy

doi:10.1007/s00520-010-0935-5

Cited by 136 publications

(120 citation statements)

References 24 publications

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“…Results from the Health Information and National Trends Survey (HINTS) in the United States and an Australian survey show the public to be increasingly engaged with online health information (18)(19)(20)(21). In the cancer field, use of online information by cancer survivors is well documented (22)(23)(24)(25)(26), and the Internet is being used as a resource for cancer-related information in the general population (27). These findings are complemented by evidence that online behavior change materials can achieve comparable effects to print-based or telephone modalities (28,29).…”

Section: Introductionmentioning

confidence: 99%

Internet Use and Cancer-Preventive Behaviors in Older Adults: Findings from a Longitudinal Cohort Study

Xavier

d’Orsi

Wardle

et al. 2013

Cancer Epidemiology, Biomarkers &Amp; Prevention

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Background: The Internet is a key provider of health information, but little is known about its associations with cancer-preventive behaviors. This study investigated the associations between Internet use and cancerpreventive behaviors among older adults.Methods: Data were taken from Waves 1 to 5 (2002-2011) of the English Longitudinal Study of Aging, a cohort study of men and women 50 years or older in England, United Kingdom. Internet use was recorded at each wave. Breast and colorectal screening, fruit and vegetable consumption, physical activity, and smoking were recorded at Wave 5. Social, cognitive, and physical function variables recorded at Wave 1 were analyzed as predictors of Internet use and included as covariates in analyses linking Internet use to behavior.Results: Of 5,943 respondents, 41.4% did not report any Internet use, 38.3% reported using it in one to three waves ("intermittent users"), and 20.3% used it in all waves ("consistent users"). Internet use was higher in younger, male, White, wealthier, more educated respondents, and those without physical limitations. Multivariable analysis showed that consistent users were more likely than "never users" to report CRC screening, weekly moderate/vigorous physical activity, and five or more daily servings of fruit and vegetables, and less likely to report smoking. There was no significant association between Internet use and breast screening.Conclusions: Internet use showed a quantitative association with cancer-preventive behaviors even after controlling for various social, cognitive, and physical correlates of Internet use.Impact: Promoting Internet use among older adults from all backgrounds could contribute to improving cancer outcomes and reducing inequalities. Cancer Epidemiol Biomarkers Prev; 22(11); 2066-74. Ó2013 AACR.

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Section: Introductionmentioning

confidence: 99%

Internet Use and Cancer-Preventive Behaviors in Older Adults: Findings from a Longitudinal Cohort Study

Xavier

d’Orsi

Wardle

et al. 2013

Cancer Epidemiology, Biomarkers &Amp; Prevention

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“…These reasons, coupled with the rise of the Web as a common information source for cancer patients [Satterlund et al 2003], have led to further study of online information seeking for cancer [Castleton et al 2011;Helft 2012]. In a recent study, resonating with motivations of this article, Ofran et al [2012] analyzed cancer-related search engine queries to infer general patterns of cancer information seeking.…”

Section: Information Seeking By Cancer Patientsmentioning

confidence: 77%

“…Permissions may be requested from Publications Dept., ACM, Inc., 2 Penn Plaza, Suite 701, New York, NY 10121-0701 USA, fax +1 (212) 869-0481, or permissions@acm.org. c 2016 ACM 1559-1131/2016/04-ART13 $15.00 DOI: http://dx.doi.org/10.1145/2893481 ones seeking understanding and guidance increasingly rely on Web search for locating helpful information [Castleton et al 2011;Helft 2012;Ofran et al 2012;Satterlund et al 2003]. …”

Section: Introductionmentioning

confidence: 99%

Search and Breast Cancer

2016

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We seek to understand the evolving needs of people who are faced with a life-changing medical diagnosis based on analyses of queries extracted from an anonymized search query log. Focusing on breast cancer, we manually tag a set of Web searchers as showing patterns of search behavior consistent with someone grappling with the screening, diagnosis, and treatment of breast cancer. We build and apply probabilistic classifiers to detect these searchers from multiple sessions and to identify the timing of diagnosis using temporal and statistical features. We explore the changes in information seeking over time before and after an inferred diagnosis of breast cancer by aligning multiple searchers by the estimated time of diagnosis. We employ the classifier to automatically identify 1,700 candidate searchers with an estimated 90% precision, and we predict the day of diagnosis within 15 days with an 88% accuracy. We show that the geographic and demographic attributes of searchers identified with high probability are strongly correlated with ground truth of reported incidence rates. We then analyze the content of queries over time for inferred cancer patients, using a detailed ontology of cancer-related search terms. The analysis reveals the rich temporal structure of the evolving queries of people likely diagnosed with breast cancer. Finally, we focus on subtypes of illness based on inferred stages of cancer and show clinically relevant dynamics of information seeking based on the dominant stage expressed by searchers.CCS Concepts: r Information systems → Web searching and information discovery; Web log analysis; Users and interactive retrieval; r Applied computing → Consumer health;Additional Key Words and Phrases: Medical search, cancer, behavior analysis ACM Reference Format: Michael J. Paul, Ryen W. White, and Eric Horvitz. 2016. Search and breast cancer: On episodic shifts of attention over life histories of an illness.

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“…Although there is an abundance of literature on the topics of education, IT, and Internet information seeking in health care [14][15][16][17][18][19][20][21][22][23][24][25][26][27][28], up-to-date literature comparing computer-based learning systems (CBLSs) with standard education in cancer populations is scarce. Although several systematic reviews compare CBLSs with standard education [1,[29][30][31][32][33], these reviews include studies dating from 1983 [30].…”

Section: Patient Educationmentioning

confidence: 99%

A Literature Review of Patient Education: Is IT Time to Move Forward?

McIntyre

Craig

2015

Journal of Medical Imaging and Radiation Sciences

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Introduction: Patient education is fundamental to high-quality care, enabling patient empowerment and improving outcomes and quality of life. Therefore, identifying the most effective education method should take precedence. Modern society relies heavily on technology and the Internet. Consequently, computer-based learning systems (CBLSs) have been introduced to increase information efficacy. This review aims to establish whether CBLSs should replace standard education for cancer populations.Methods: A systematic review of up-to-date studies comparing CBLSs and standard education for cancer patients was conducted. Results were assessed in terms of outcomes (knowledge, satisfaction, and decision making) and patient characteristics (age, sex, and socioeconomic status).Results: Results are conflicting. Although CBLSs scored highly in certain outcomes, standard education was more suited to some patient characteristics. Additionally, subgroups of society (older and low socioeconomic populations) were poorly represented in studies.Conclusions: Up-to-date research on cancer patient education is lacking. Results indicate that although CBLSs for cancer education show promise, further research is required. R ESUM E Introduction : L' education du patient est un aspect fondamental de la qualit e des soins, en permettant la responsabilisation du patient et l'am elioration des r esultats et de la qualit e de vie. La d etermination de la m ethode d' education la plus efficace est donc primordiale. Comme la soci et e moderne s'appuie fortement sur la technologie et internet, les syst emes d'apprentissage assist e par ordinateur (SAAO) ont et e mis en place pour augmenter l'efficacit e de l'information. Cette revue vise a d eterminer si les SAAO devraient remplacer les modalit es standard d' education pour les patients atteints de cancer. M ethodologie : Une revue syst ematique des etudes a jour comparant les SAAO et les modalit es standard pour les patients a et e r ealis ee. Les r esultats ont et e evalu es en termes de produits (connaissances, satisfaction, prise de d ecision) et de caract eristiques du patient (âge, sexe, statut socio economique).R esultats : Les r esultats sont ambigus. Bien que les SAAO obtiennent une note elev ee pour certains produits, les modalit es d' education standard sont mieux adapt ees a certaines caract eristiques des patients. Par ailleurs, certains sous-groupes sociaux (populations plusâg ees et de niveau socio economique plus faible) etaient sous-repr esent es dans les etudes.Conclusions : Il y a un manque de recherches a jour sur l' education des patients atteints de cancer. Les r esultats indiquent que d'autres recherches sont n ecessaires, même si les syst emes d'apprentissage assist e par ordinateur semblent prometteurs.

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A survey of Internet utilization among patients with cancer

Abstract: Approximately two thirds of patients with cancer used the Internet to obtain information about their disease. Factors affecting Internet use for cancer information included age, race, and education. Clinical decisions can be affected by Internet use.

Cited by 136 publications

References 24 publications

Internet Use and Cancer-Preventive Behaviors in Older Adults: Findings from a Longitudinal Cohort Study

Internet Use and Cancer-Preventive Behaviors in Older Adults: Findings from a Longitudinal Cohort Study

Search and Breast Cancer

A Literature Review of Patient Education: Is IT Time to Move Forward?

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