A Systematic Review of Educational Interventions to Equip Health and Social Care Professionals to Promote End-of-Life Supportive Care when a Parent with Dependent Children is Dying with Cancer

Sheehan, Sarah; Hanna, Jeffrey R; Drury, Amanda; McCance, Tanya; Semple, Cherith; O'Neill, Carla

doi:10.1016/j.soncn.2023.151474

Cited by 6 publications

(3 citation statements)

References 43 publications

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“…While findings highlight a clear need and benefit for evidence‐based educational interventions to promote‐family centred end of life cancer care in practice, a recent systematic review identified a dearth ( n = 2) of existing interventions 15 . Unfortunately, professionals often report a lack of training opportunities leads to a failing to engage in parent‐child end of life discussions 11,12,14 .…”

Section: Discussionmentioning

confidence: 99%

“…To date there has been inadequate funding, lack of training, and insufficient clinical supervision to support family‐centred end of life supportive conversations 15,44 . Aligned with international policy recommendations, there is a need to improve access to training (undergraduate and postgraduate) on how to initiate and deliver transparent, realistic and sensitive end of life discussions across professional disciplines 34,45 .…”

Section: Discussionmentioning

confidence: 99%

“…Consistently, professionals highlight a lack of knowledge, skills and confidence to provide this important aspect of family‐centred cancer supportive care, necessitating a need for training 11–14 . A recent systematic review identified there is a dearth of evidence‐based educational interventions available for professionals to equip them with the skills and strategies to support families at end of life 15 . Developing robust educational interventions that equip professionals with the skills, strategies and confidence on how best to support parents at end of life could lead to better mental and physical health outcomes for the whole family at end of life and bereavement 15,16 …”

Section: Introductionmentioning

confidence: 99%

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Mixed‐methods evaluation of a face‐to‐face educational intervention for health and social care professionals to deliver family‐centred cancer supportive care when a parent with dependent children is at end of life

Hanna,

Semple

2024

Psycho-Oncology

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ObjectiveTo deliver and evaluate an educational intervention to equip health and social care professionals (professionals) on how best to support parents at end of life with cancer concerning their dependent children (<18).MethodsAn evidence‐based and theory‐driven face‐to‐face educational intervention was developed and evaluated using three levels of Kirkpatrick's Model of Evaluation. Pre‐test, post‐test surveys were completed immediately before‐and‐after the intervention using a validated self‐efficacy scale and single‐item questions evaluating perceived usefulness and relevance (levels one/two). Qualitative interviews ≥ 3‐months post‐intervention explored if, and how the intervention impacted professionals' practice (level three). Fourteen sessions were delivered at oncology settings to 347 professionals between 2021 and 2023. Two hundred seventy four professionals completed the pre‐test survey, with 239 completing the post‐test survey. Fourteen professionals were interviewed between three‐and 19‐months post‐intervention.ResultsQuantitative findings demonstrated a statistically significant improvement in self‐efficacy post‐educational intervention (p < 0.001). Qualitative data highlighted professionals gained new approaches to progress end of life conversations with parents, despite some familial resistance to sharing the reality of the situation with children. Positive intervention content shaping clinical practice included the bereaved parent's lived experience, communication framework and roleplay videos. Some professionals considered a booster session and opportunities to practice conversations necessary to further consolidate learning into practice.ConclusionsEvidence and theory‐driven education can positively impact professionals' provision of family‐centred cancer care. Future studies should explore the impact of this educational intervention on familial outcomes. Alongside a sustainable delivery of this intervention, advanced communication skills programmes should incorporate parent‐child end of life conversations.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Mixed‐methods evaluation of a face‐to‐face educational intervention for health and social care professionals to deliver family‐centred cancer supportive care when a parent with dependent children is at end of life

Hanna,

Semple

2024

Psycho-Oncology

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The usage of family audiobooks as a legacy for grieving children — an exploratory quantitative analysis among terminally ill parents and close persons

Ateş,

Hesse,

Cuhls

2024

Support Care Cancer

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Background Since 2017, terminally ill parents with dependent children under the age of 18 have been able to record an audiobook for their dependent children. This service allows them to narrate how they would like to be remembered in their voice. The family audiobook is a professionally supported, voluntary, free service that is unique in Germany. There is little research on digital memories for children. The study aims to understand how this service is used and its influence on children through responses of terminally ill parents and close persons. Methods An anonymous online survey, accessible between September 2023 and November 2023, was conducted among terminally ill parents and their close persons with support from the Family Audiobook Association in Germany. Analyses were carried out using SPSS. Results 186 respondents, 95 terminally ill parents, and 91 close persons completed the online survey. Almost all terminally ill parents felt eased to have recorded a family audiobook. The two groups showed differences in how they used the family audiobook and how often they listened to it. While some children listen to the family audiobook with their bereaved parents or friends, other children are not yet ready for this, according to the open-ended responses of terminally ill parents and close persons. Conclusions The family audiobook provides a valuable opportunity for terminally ill parents with dependent children under the age of 18 to tell their own biographical story, offer support to the bereaved in remembering, and preserve the voice of the deceased for the children. In addition, this approach could help healthcare professionals to reduce the stress associated with providing end-of-life care for terminally ill parents.

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Adapting and testing an eLearning resource for professionals to support families when a significant caregiver for children is dying with cancer

O’Neill,

Hanna,

Sheehan

et al. 2024

BMC Palliat Care

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Purpose Health and social care professionals (professionals) often lack knowledge, skills and confidence to support adults at end of life with significant caregiving responsibilities for children, < 18. A recent systematic review highlighted a dearth of educational interventions (n = 2) to equip professionals to provide supportive care to families when a parent has cancer. Addressing an evident gap in education, this paper details the adaption and optimisation of a face-to-face educational intervention to an accessible eLearning resource. Methods Guided by the ‘Person-based Approach’, a theory-driven and evidence-based face-to-face educational intervention was adapted and optimised as an eLearning resource. This incorporated current evidence, alongside insights from an expert group, learning technologists and research team, leading to the design of an eLearning prototype. This was optimised for acceptability and usability using think-aloud interviews with end-users (n = 13) and patient and public involvement (n = 4). Results An iterative adaption and optimisation process enabled implementation of navigational improvements, changes to enhance clarity on language and appropriateness of images and interactive components. During optimisation, positive feedback was reported; especially regarding the ‘look and feel’ and on the educational videos and reflective exercises embedded throughout the eLearning resource. Conclusion The systematic adaption and optimisation of this novel eLearning resource has aimed to promote relevance, appropriateness, and applicability of an accessible evidence-based and theory-driven training resource for professionals. It has the potential to promote family-centred supportive end of life cancer care, which ultimately can promote better bereavement outcomes. An evaluation of the intervention is required to explore impact on practice.

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A Systematic Review of Educational Interventions to Equip Health and Social Care Professionals to Promote End-of-Life Supportive Care when a Parent with Dependent Children is Dying with Cancer

Cited by 6 publications

References 43 publications

Mixed‐methods evaluation of a face‐to‐face educational intervention for health and social care professionals to deliver family‐centred cancer supportive care when a parent with dependent children is at end of life

Mixed‐methods evaluation of a face‐to‐face educational intervention for health and social care professionals to deliver family‐centred cancer supportive care when a parent with dependent children is at end of life

The usage of family audiobooks as a legacy for grieving children — an exploratory quantitative analysis among terminally ill parents and close persons

Adapting and testing an eLearning resource for professionals to support families when a significant caregiver for children is dying with cancer

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