A Systematic Review of Health Literacy Interventions for People Living with HIV

Perazzo, Joseph; Reyes, Darcel; Webel, Allison R.

doi:10.1007/s10461-016-1329-6

Cited by 64 publications

(43 citation statements)

References 30 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…It is a strategy that addresses not only the shortfalls of the individuals in terms of skills and knowledge but also the deficits health services may display in answering the needs of the population (for instance by increasing the readability of consent forms and improving communication skills of health care providers) [8][9][10]. This dual purpose lead to numerous investigations to better capture the scope of HL and also to devise better strategies to improve people's HL, particularly in the clinical context [11][12][13][14][15][16][17]. Adolescent programs to improve food literacy [18], patient education programs [12], vaccination [19], and mobile applications to improve alcohol HL [20] are only some of them.…”

Section: Resultsmentioning

confidence: 99%

Health Literacy: From a Property of Individuals to One of Communities

Kendir

Breton

2020

IJERPH

View full text Add to dashboard Cite

Health literacy (HL) is increasingly hailed as a strategy to improve the control individuals have over their health. A central critic of HL intervention is its overemphasis on individual level factors, something recognised in the 2008 report of the Commission of Social Determinants of Health (SDoH) that recommended expanding the scope of HL to cover the SDoH. The objective of our study was to assess the extent to which recent progress on HL captures the need for collective action on the SDoH. We conducted a scoping review on PubMed looking for review papers published between 2013–2018 in English and French. Definitions of HL were analysed against two main dimensions (i.e., locus of change of HL strategies and foreseen outcome of HL improvements). Despite a number of authors calling for more research on HL interventions at the community level and an expansion of the definition to cover the SDoH, we found that the recommendation of the Commission has yet to be implemented. Even when the definitions include the capacities of individuals on distal determinants, both the locus of change and outcomes of HL improvement do not go beyond intra individual factors (knowledge, skills, etc.). It is noteworthy that communities were either framed as a setting outside of health care services or as an aggregate of individuals. We found no instance of HL intervention regarding communities as complex systems of actors sharing a common space and dynamic. We conclude by suggesting a new definition of HL and by drawing attention to the research gap in addressing the upstream SDoH through HL actions.

show abstract

Section: Resultsmentioning

confidence: 99%

Health Literacy: From a Property of Individuals to One of Communities

Kendir

Breton

2020

IJERPH

View full text Add to dashboard Cite

show abstract

“…Although the efficacy of education-only strategies is unclear [50,51], patient-centered education (e.g. tailoring information to address concerns, use of relevant metaphors) is essential for standard medical treatment [52,53].…”

Section: Categories Of Adherence Interventionsmentioning

confidence: 99%

Improving antiretroviral therapy adherence in resource‐limited settings at scale: a discussion of interventions and recommendations

Haberer

Sabin

Amico

et al. 2017

Journal of the International AIDS Society

166

137

View full text Add to dashboard Cite

Introduction: Successful population‐level antiretroviral therapy (ART) adherence will be necessary to realize both the clinical and prevention benefits of antiretroviral scale‐up and, ultimately, the end of AIDS. Although many people living with HIV are adhering well, others struggle and most are likely to experience challenges in adherence that may threaten virologic suppression at some point during lifelong therapy. Despite the importance of ART adherence, supportive interventions have generally not been implemented at scale. The objective of this review is to summarize the recommendations of clinical, research, and public health experts for scalable ART adherence interventions in resource‐limited settings. Methods: In July 2015, the Bill and Melinda Gates Foundation convened a meeting to discuss the most promising ART adherence interventions for use at scale in resource‐limited settings. This article summarizes that discussion with recent updates. It is not a systematic review, but rather provides practical considerations for programme implementation based on evidence from individual studies, systematic reviews, meta‐analyses, and the World Health Organization Consolidated Guidelines for HIV, which include evidence from randomized controlled trials in low‐ and middle‐income countries. Interventions are categorized broadly as education and counselling; information and communication technology‐enhanced solutions; healthcare delivery restructuring; and economic incentives and social protection interventions. Each category is discussed, including descriptions of interventions, current evidence for effectiveness, and what appears promising for the near future. Approaches to intervention implementation and impact assessment are then described. Results and discussion: The evidence base is promising for currently available, effective, and scalable ART adherence interventions for resource‐limited settings. Numerous interventions build on existing health care infrastructure and leverage available resources. Those most widely studied and implemented to date involve peer counselling, adherence clubs, and short message service (SMS). Many additional interventions could have an important impact on ART adherence with further development, including standardized counselling through multi‐media technology, electronic dose monitoring, decentralized and differentiated models of care, and livelihood interventions. Optimal targeting and tailoring of interventions will require improved adherence measurement. Conclusions: The opportunity exists today to address and resolve many of the challenges to effective ART adherence, so that they do not limit the potential of ART to help bring about the end of AIDS.

show abstract

“…Some studies have applied (existing and tailored) health literacy measures to our understanding of treatment adherence and health outcomes among people living with HIV (Perazzo, Reyes, and Webel 2017;Reynolds et al 2019). Much of this research has focused on young people and/or the individual-level (Haruna et al 2019;Freeman et al 2018;Vamos et al 2018;Lin, Zhang, and Cao 2018;Kaczkowski and Swartout 2019) and while a few studies have begun to examine health literacy inequities among gay, bisexual and other men who have sex with men (Rosenberger et al 2011;Manduley et al 2018;Gilbert et al 2019;Brookfield et al 2019;Rucker et al 2018;Eliason, Robinson, and Balsam 2018;Oliffe et al 2019), sexual health literacy as a concept remains under-developed.…”

Section: Introductionmentioning

confidence: 99%

Sexual health literacy among gay, bisexual and other men who have sex with men: a conceptual framework for future research

McDaid

Flowers

Ferlatte

et al. 2020

Culture, Health & Sexuality

View full text Add to dashboard Cite

Good sexual health requires navigating intimate relationships within diverse power dynamics and sexual cultures, coupled with the complexities of increasing biomedicalisation of sexual health. Understanding this is important for the implementation of biomedical HIV prevention. We propose a socially nuanced conceptual framework for sexual health literacy developed through a consensus building workshop with experts in the field. We use rigorous qualitative data analysis to illustrate the functionality of the framework by reference to two complementary studies. The first collected data from five focus groups (FGs) in 2012 (n ¼ 22), with gay, bisexual and other men who have sex with men aged 18-75 years and 20 in-depth interviews in 2013 with men aged 19-60 years. The second included 12 FGs in 2014/15 with 55 patients/service providers involved in the use/implementation of HIV self-testing or HIV prevention/care. Sexual health literacy goes well beyond individual health literacy and is enabled through complex community practices and multi-sectoral services. It is affected by emerging (and older) technologies and demands tailored approaches for specific groups and needs. The framework serves as a starting point for how sexual health literacy should be understood in the evaluation of sustainable and equitable implementation of biomedical sexual healthcare and prevention internationally.

show abstract

A Systematic Review of Health Literacy Interventions for People Living with HIV

Cited by 64 publications

References 30 publications

Health Literacy: From a Property of Individuals to One of Communities

Health Literacy: From a Property of Individuals to One of Communities

Improving antiretroviral therapy adherence in resource‐limited settings at scale: a discussion of interventions and recommendations

Sexual health literacy among gay, bisexual and other men who have sex with men: a conceptual framework for future research

Contact Info

Product

Resources

About