A Systematic Review of Qualitative Research of the Experiences of Young People and their Caregivers Affected by Suicidality and Self-harm: Implications for Family-Based Treatment

Simes, Di; Shochet, Ian M.; Murray, Kate; Sands, Isobel G.

doi:10.1007/s40894-021-00164-3

Cited by 15 publications

(22 citation statements)

References 74 publications

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“…A systematic review of qualitative data exploring suicidal behaviour in young people and caregivers through a family system lens cited a lack of information on how to get help for suicidal behaviour 35 : this corresponds to the identified unmet need of specific self-harm guidance for supporting individuals in this review. A meta-ethnography of relatives' experiences providing care for individuals with suicidal behaviour found that peer-support was important in easing relatives' distress: similarly, our review found that the support of those with lived-experience has a key role in helping individuals manage selfharm in young people specifically.…”

Section: Discussionmentioning

confidence: 99%

The experiences and needs of supporting individuals of young people who self-harm: A systematic review and thematic synthesis

et al. 2022

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Section: Discussionmentioning

confidence: 99%

The experiences and needs of supporting individuals of young people who self-harm: A systematic review and thematic synthesis

et al. 2022

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“…Although the benefits of seeking professional help were widely acknowledged among most parents (Kelada et al 2016;Raphael et al 2006;Rissanen et al 2009), when parents did seek help, they had varying negative experiences with mental health professionals. This is worrisome given that negative experiences with the health services could discourage parents from seeking help there in the future (Simes et al 2021). Meanwhile, parents reported a lack of information and support from health care professionals in dealing with their intense emotions and managing their child's selfharm risk.…”

Section: Not Downgraded Moderatementioning

confidence: 99%

The lived experiences of parents providing care to young people who self‐harm: A meta‐aggregative synthesis of qualitative studies

Zhao

Liu²,

et al. 2022

Int J Mental Health Nurs

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Self‐harm, which affects the whole family system, is an international public health concern. Empirical evidence supports the efficacy of interventions incorporating a family/parent training component for self‐injurious thoughts and behaviours, and a quantitative synthesis of these empirical studies has been undertaken and updated. A qualitative synthesis of the experiences of parents whose child self‐harms remains limited. This report aimed to systematically review qualitative research about the experiences, preferences, and expectations of parents whose children self‐harmed. A comprehensive search was conducted across ten databases and four grey literature sources, along with the manual search of reference lists and relevant websites. Study screening, data extraction, and quality appraisal were all performed by two independent researchers. Twenty‐four articles, two of which were mixed‐methods studies, were included and analysed using a meta‐aggregation approach. Five synthesized findings were identified: initial negative reactions to the discovery of their child's self‐harm, the ongoing impact of self‐harm on parents and the wider family, parents' various coping strategies, parents' negative experiences with mental health professionals expectations, and the lack of and need for psychoeducational resources. Our review finds that parents express keen interest in engaging with the treatment process, and our results support family‐based therapy. However, with the overwhelming emotions most parents experience, clinicians should approach them with sensitivity, empathy and finesse. Psychoeducational self‐help resources should also be made readily available to parents who are reluctant to seek help.

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“…A third, more recent review also took a broad approach, including both young people and their caregivers affected by suicidal and SH behaviours, yet focused more specifically on their experiences of and needs towards professional help. 43 In light of this, a synthesis of qualitative studies exploring the lived experiences of parents whose child SHs is lacking.…”

Section: Introductionmentioning

confidence: 99%

“…For example, a recent qualitative systematic review, from the perspectives of those who engaged in NSSI, has shed light on our understanding of the important role of interpersonal processes in the occurrence of NSSI, which further highlights the potential benefits of relational therapies for clinicians 42. Among the previously published systematic reviews of qualitative literature concerning parents whose child SHs,16 43 44 one has mainly focused on parent-related factors for SH (eg, poor parent–child communication, lack of parental support, parental loss or separation/divorce), the role of parents in help-seeking and the impact of youth SH on parents’ well-being and parenting, yet it does not have a specific focus on parents’ overall experiences and perceptions 16. Another review44 examined the experiences and perspectives of both young people and parents; it took the form of a narrative synthesis and failed to employ the method of systematic review, subjecting the findings to limited inclusiveness and comprehensiveness.…”

Section: Introductionmentioning

confidence: 99%

“…Another review44 examined the experiences and perspectives of both young people and parents; it took the form of a narrative synthesis and failed to employ the method of systematic review, subjecting the findings to limited inclusiveness and comprehensiveness. A third, more recent review also took a broad approach, including both young people and their caregivers affected by suicidal and SH behaviours, yet focused more specifically on their experiences of and needs towards professional help 43. In light of this, a synthesis of qualitative studies exploring the lived experiences of parents whose child SHs is lacking.…”

Section: Introductionmentioning

confidence: 99%

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Lived experiences of parents providing care to young people who self-harm: a protocol for a meta-aggregative synthesis of qualitative studies

et al. 2022

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IntroductionThe self-harm of young people can cause tremendous distress to their parents/carers and impair parents’ ability to provide care. At the same time, parents play an essential role in supporting their child during the management and treatment of self-harm. The synthesis of evidence about parental experiences and needs can inform mental health practice and the development of interventions to provide better care to young people who self-harm and their parents.Methods and analysisA comprehensive search will be conducted across several information sources, including multiple electronic databases (eg, PubMed, Embase, CINAHL, PsycINFO, ProQuest, CNKI, Wanfang, VIP and SinoMed), grey literature, the websites of specific organisations and hand-searched reference lists of all the relevant studies. Qualitative studies published in English or Chinese and focusing on the lived experiences of parents whose child self-harms will be included. Two reviewers will independently screen all the retrieved articles according to the flow diagram proposed by PRISMA (the Preferred Reporting Items for Systematic Reviews and Meta-Analyses). Two independent reviewers will then appraise the methodological quality of all the included articles using the JBI (Joanna Briggs Institute) critical appraisal checklist for qualitative research. The meta-aggregation approach will be used to synthesise the findings of the included qualitative studies, and the level of confidence in the synthesised findings will be assessed using the Confidence in the Qualitative synthesised finding approach.Ethics and disseminationNo additional ethical clearance is required since this review is a secondary analysis of published primary studies. The findings will be disseminated through publication in a peer-reviewed journal and conference presentations.PROSPERO registration numberCRD42021265525.

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A Systematic Review of Qualitative Research of the Experiences of Young People and their Caregivers Affected by Suicidality and Self-harm: Implications for Family-Based Treatment

Cited by 15 publications

References 74 publications

The experiences and needs of supporting individuals of young people who self-harm: A systematic review and thematic synthesis

The experiences and needs of supporting individuals of young people who self-harm: A systematic review and thematic synthesis

The lived experiences of parents providing care to young people who self‐harm: A meta‐aggregative synthesis of qualitative studies

Lived experiences of parents providing care to young people who self-harm: a protocol for a meta-aggregative synthesis of qualitative studies

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