A Systematic Review of Therapeutic Recreation Camp Impact on Families of Children With Chronic Health Conditions

Rea, Kelly E.; Quast, Lauren F; Stolz, Mary; Blount, Ronald L.

doi:10.1093/jpepsy/jsz003

Cited by 14 publications

(8 citation statements)

References 27 publications

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“…A relatively small number of publications are currently available describing existing programmes aimed at promoting good functioning among well‐siblings who have a brother or sister with a serious illness or medical condition, with interventions including well‐sibling camps (e.g. Rea et al, 2019), one‐day sibling and parent programmes (Besani et al, 2018), and other manualized, multisession psychosocial sibling group programs (Haukeland et al, 2020). The results from the current study highlight the need for further development, implementation and evaluation of such interventions addressing the psychosocial well‐being of siblings.…”

Section: Discussionmentioning

confidence: 99%

Living with a child who has a life‐limiting condition: The functioning of well‐siblings and parents

Jaaniste

Cuganesan

Chin

et al. 2021

Child

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Background: Living with a child who has a life-limiting condition (LLC) is likely to have a major impact on all family members. There is a need to have a clearer understanding of the nature and extent of this impact on parents and well-siblings. The current study aimed to investigate the psychosocial functioning of well-siblings and parents living with a child with an LLC. Further, the study aimed to assess the resilience resources of both well-siblings and parents, giving consideration to how these relate to psychosocial functioning. Methods: Participants included 48 well-siblings (6-21 years) and 42 parents of children with LLCs. Parents and well-siblings independently completed validated measures of child and adult functioning and personal resilience. Parents provided demographic information about the patient and family.Results: The emotional, social and school functioning of well-siblings in the current study was found to be significantly poorer than published norms (all p's < .01). Parental self-reported depression, anxiety and stress scores were also all significantly poorer than published norms (all p's < .01). There was negligible agreement between well-sibling self-reported functioning and parental proxy-report of the well-siblings functioning (all r's < .126, all p's > .464). Sibling self-reported resilience was positively correlated with each of the measures of psychosocial functioning (all r's > .318, p's < .05). Parental resilience was significantly negatively correlated with depressive symptoms (r = À.369, p < .05) and anxiety symptoms (r = À.473, p < .01) but not stress scores (r = À.074, p = .644). Conclusion:Family members living with a child who has an LLC were found to have significantly poorer psychosocial functioning than published norms. Although one cannot infer a causal direction from the current study, greater self-reported wellsibling and parental resilience were associated with aspects of better self-reported psychosocial functioning. Future studies should assess the impact of psychosocial interventions aimed at enhancing the resilience and functioning of both well-siblings and parents.

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Section: Discussionmentioning

confidence: 99%

Living with a child who has a life‐limiting condition: The functioning of well‐siblings and parents

Jaaniste

Cuganesan

Chin

et al. 2021

Child

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“…Two systematic reviews and one meta-analysis synthesized the impact of the group-based interventions on social support for caregivers of children with chronic diseases (34,39,44). No consensus had been reached.…”

Section: Supportive Groupsmentioning

confidence: 99%

Interventions and strategies to improve social support for caregivers of children with chronic diseases: An umbrella review

et al. 2022

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BackgroundSocial support is an important approach to improve the psychosocial health status and promote positive coping for caregivers of children with chronic diseases. Such an approach can reduce parenting stress, help resolve parenting difficulties through the use of various social support relationships.MethodsWe performed an umbrella review methodology using the method of examination, analysis and synthesis of systematic reviews. A PRISMA flow diagram was used to show the search process. The Joanna Briggs Institute was used to appraise the quality of papers and a narrative synthesis was undertaken. Relevant English and Chinese systematic reviews were searched in Embase, PubMed, Web of science, OVID, CNKI, CBM, Wan Fang and Cochrane Library databases, until November 2021, June 2022.ResultsOut of 1,905 records, we included fourteen systematic reviews for a synthesis. Evidence to promote social support for caregivers of children with chronic diseases was identified from four key aspects: (i) Intervention content; (ii) Intervention forms; (iii) Intervention time; and (iv) Sources of support.ConclusionsThe findings of this review suggest that a combination of differing interventions, especially for early family, including the content of parenting training or education, attitude building and resource provision, which can implement online is recommend. More interventional studies and quantitative evidence syntheses are still needed.ImpactAdequate social support is essential to promote the psychological wellbeing of caregivers of children with chronic diseases. In the early stage of children's diseases, integrating different content and forms of interventions for caregivers' families and actively helping caregivers to identify available support resources can improve social support. The findings from this review can be used to guide caregivers of children with chronic diseases and provide evidence for healthcare professionals and social workers to carry out relevant interventions.

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“…Finally, it is likely that the camp had a positive impact on parents as well as the young person, and such impacts should be explored in further work in future given the close interplay between parental mental health and child well-being (Kish et al, 2018). Research on TR camps for families of children with chronic illnesses has shown that they can have a positive impact on parents and siblings, whereby parents report camps to be a place of social support and respite from daily life and siblings find camp to be enjoyable and a place of belonging (Rea et al, 2019).…”

Section: Limitationsmentioning

confidence: 99%

An investigation into the psychosocial impact of therapeutic recreation summer camp for youth with serious illness and disability

Yang

Shafran

Bennett

et al. 2021

Clin Child Psychol Psychiatry

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Objectives This study aimed to evaluate the impact on emotional, social, physical and educational functioning of a therapeutic recreation camp provided by ‘Over The Wall’, a UK charity for children and young people with chronic illness or disability. Method Two hundred and sixty four people registered to attend camp were sent the Pediatric Quality of Life Inventory version Child Self-Report Scale before camp, immediately after camp, 1 month after camp and 3 months after camp. Results Of those invited to participate, 178 children completed the pre-camp survey (67% response rate). Of those, 105 completed both the post-camp 1 and pre-camp questionnaires (59% of pre-camp respondents), and 60 of those participants subsequently completed the 1-month post-camp questionnaire as well (34% of pre-camp respondents). Only 32 participants completed the 3-month follow-up data (18% of pre-camp respondents). Across the first three timepoints (pre-Camp, post-Camp and 1 month follow-up), a repeated measures ANOVA indicated a significant improvement in emotional and social functioning, but not physical or school functioning ( p < 0.05). Post-hoc analyses on pre-camp and post-camp scores revealed small-medium effect sizes of 0.317 and 0.272 for emotional and social functioning, respectively. Discussion The therapeutic recreation summer camp provided for children and young people with health challenges had a significant, positive impact on emotional and social functioning. Such camps can therefore be considered as having empirical support for their aims. Further work is warranted to increase the response rate to establish the longer term impact of the camps and the wider impact of the camps on the wider family.

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A Systematic Review of Therapeutic Recreation Camp Impact on Families of Children With Chronic Health Conditions

Cited by 14 publications

References 27 publications

Living with a child who has a life‐limiting condition: The functioning of well‐siblings and parents

Living with a child who has a life‐limiting condition: The functioning of well‐siblings and parents

Interventions and strategies to improve social support for caregivers of children with chronic diseases: An umbrella review

An investigation into the psychosocial impact of therapeutic recreation summer camp for youth with serious illness and disability

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