A three‐ to six‐year follow‐up of former long‐stay residents of mental handicap hospitals in Northern Ireland

Donnelly, Michael; McGilloway, Sinéad; Mays, Nicholas; Perry, Sarah H.; Lavery, Christine

doi:10.1111/j.2044-8260.1997.tb01263.x

Cited by 13 publications

(11 citation statements)

References 2 publications

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“…Notwithstanding the magnitude of this development, many studies have investigated small samples of residents and used a cross-sectional design [3][4][5]. Only a few longitudinal studies have yielded important information about this population, consistently indicating the difficulties involved in discharging and placing these patients in independent accommodations [6][7][8][9][10][11][12].…”

Section: Introductionmentioning

confidence: 99%

Is psychiatric residential facility discharge possible and predictable? A multivariate analytical approach applied to a prospective study in Italy

Girolamo

Candini

Buizza

et al. 2013

Soc Psychiatry Psychiatr Epidemiol

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Background A growing number of severely ill patients require long-term care in non-hospital residential facilities (RFs). Despite the magnitude of this development, longitudinal studies surveying fairly large resident samples and yielding important information on this population have been very few. Aims The aims of the study were (1) to describe the socio-demographic, clinical, and treatment-related characteristics of RF patients during an index period in 2010; (2) to identify predictors and characteristics associated with discharge at the 1-year follow-up; (3) to evaluate clinicians' predictions about each patient's likelihood of home discharge (HD). Methods A prospective observational cohort study was conducted involving all patients staying in 23 mediumlong-term RFs of the St John of God Order with a primary psychiatric diagnosis. A comprehensive set of sociodemographic, clinical, and treatment-related information was gathered and standardized assessments (BPRS, HO-NOS, PSP, PHI, SLOF, RBANS) were administered to each participant. Logistic regression analyses were run to identify independent discharge predictors. Results The study involved 403 patients (66.7 % male), with a mean age of 49 years (SD = 10). The participants' average illness duration was 23 years; median value for length of stay in the RF was 2.2 years. The most frequent diagnosis was schizophrenia (67.5 %). 104 (25.8 %) were discharged: 13.6 % to home, 8.2 % to other RFs, 2.2 % to supported housing, and 1.5 % to prison. Clinicians' predictions about HD were generally erroneous. Conclusions Very few patients were discharged to independent accommodations after 1 year. The main variables associated with a higher HD likelihood were: illness duration of \15 years and effective social support during the previous year. Lower severity of psychopathology and higher working skill levels were also associated with a significantly greater HD likelihood.

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Section: Introductionmentioning

confidence: 99%

Is psychiatric residential facility discharge possible and predictable? A multivariate analytical approach applied to a prospective study in Italy

Girolamo

Candini

Buizza

et al. 2013

Soc Psychiatry Psychiatr Epidemiol

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“…There have been thousands of patients deinstitutionalized in Western Europe. Some of these patients with schizophrenia had been previously hospitalized for more than 20 years, and it has been demonstrated that they did well in the community after discharge (Barbato et al, 2004;Donnelly et al, 1997;Furlan et al, 2009;Jones et al, 1986;Kunitoh, 2013;Leff, 1997;Mizuno et al, 2005;Thornicroft et al, 2005). Long-term patients treated in community also demonstrated more favourable outcomes than patients treated in hospitals (James et al, 2006).…”

Section: Discussionmentioning

confidence: 99%

“…It has been especially driven by humanitarian concerns (Aderibigbe, 1997;Haug and Rossler, 1999;Thornicroft and Bebbington, 1989;Yohanna, 2013) responding to the improper treatment and human rights violations associated with long-term hospitalizations in big psychiatric institutions (Drew et al, 2011). Tens of thousands of long-term patients were discharged from mental hospitals as a consequence of deinstitutionalization (Honkonen et al, 1999;Talbott, 2004;Thornicroft and Bebbington, 1989), including a large number of patients with schizophrenia, some of whom were previously hospitalized for more than 20 years (Andrews et al, 1990;Barr and Parker, 1975;Donnelly et al, 1997;McGrew et al, 1999;Rothbard et al, 1999;Salokangas and Saarinen, 1998).…”

Section: Introductionmentioning

confidence: 99%

Long-term hospitalizations for schizophrenia in the Czech Republic 1998–2012

Winkler

Mladá

Krupchanka

et al. 2016

Schizophrenia Research

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Deinstitutionalization has not been pursued in the post-communist Europe until recently. The population of psychiatric patients institutionalized in the regional mental hospitals is, however, largely understudied. The aim of this study is to assess discharges of long-term inpatients with schizophrenia from Czech psychiatric hospitals and to analyse re-hospitalizations within this group. The nationwide register of all-cause inpatient hospitalizations was merged with the nationwide register of all-cause deaths on an individual level basis. Descriptive statistics, survival analysis and logistic regression were performed. 3,601 patients with schizophrenia previously hospitalized for more than a year were discharged from Czech mental hospitals between 1998 and 2012. This included 260 patients hospitalized for more than 20 years. Nearly one fifth (n=707) of the long-term patients died during the hospitalization; and discharges of 19.36 % (n=697) were only administrative in their nature. Out of 2,197 truly discharged patients, 14.88 % (n=327) were re-hospitalized within two weeks after the discharge. The highest odds of rehospitalization were associated with being discharged against medical advice (OR 5.27, p<0.001). These data are important for the ongoing mental health care reforms in the Czech Republic and other countries in the Central and Eastern Europe.

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“…Argues that the initiative contributed to an improved quality of life for a group of children with learning disabilities. Donnelly et al (1997) Use a quality of life framework to assess the impact of resettlement from long stay hospitals. Robinson et al (1997) An exploratory study using quality of life measures to examine quality of care and patient satisfaction within a secure hospital setting.…”

Section: Discussionmentioning

confidence: 99%

Quality of life as a concept for developing learning disability nursing practice?

Northway

Jenkins

2002

Journal of Clinical Nursing

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This paper offers a critical examination of how the concept of Quality of Life might be used to enhance learning disability nursing practice. Quality of Life will increasingly influence the provision and evaluation of services and practice in the field of learning disability. Attempting to define and assess Quality of Life is, however, problematic because of the complexity and multidimensional nature of the concept. The use of domains to measure Quality of Life is advocated by many researchers for both objective and subjective measures and use of Quality of Life as an evaluation tool is seen as a way of improving the life quality of people with learning disabilities. However, there are concerns that the use of such an approach could perpetuate professional agendas rather than empower people with learning disabilities themselves. To date, Quality of Life approaches have not had a major impact on learning disability nursing. However, it is suggested that they can be helpful as sensitizing concepts, a basis for collaborative care planning and a framework for evaluation. Recommendations are made for education, practice and research.

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A three‐ to six‐year follow‐up of former long‐stay residents of mental handicap hospitals in Northern Ireland

Cited by 13 publications

References 2 publications

Is psychiatric residential facility discharge possible and predictable? A multivariate analytical approach applied to a prospective study in Italy

Is psychiatric residential facility discharge possible and predictable? A multivariate analytical approach applied to a prospective study in Italy

Long-term hospitalizations for schizophrenia in the Czech Republic 1998–2012

Quality of life as a concept for developing learning disability nursing practice?

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