A three-year national follow-up study on the development of community-level cancer rehabilitation in Denmark

Kristiansen, Maria; Adamsen, Lis; Piil, Karin; Halvorsen, Ida; Nyholm, Nanna; Hendriksen, Carsten

doi:10.1177/1403494817746535

Cited by 11 publications

(18 citation statements)

References 29 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A recent multi-institutional study concluded that HNC patients prefer multiple modes of information delivery (72%), with one-to-one consultation being the most preferred method for cancer education followed by internet-based interventions [38]. Our findings are also in line with a national study concerning cancer rehabilitation in Denmark, which concluded that there is a need for more well-validated documentation based on patient needs [43].…”

Section: Discussionsupporting

confidence: 86%

“…Rehabilitation responsibilities at various authorities and on different governmental levels reported as a factor that can cause dissatisfaction, confusion or lower the trust of patients, as the allocation of responsibilities and authority is not always transparent. The municipalities do not posse specialized proficiency needed to elaborate rehabilitation of HNC patients, due to differences in population size and therefore to number of cancer incidence [43]. Both knowledge and professional skills are divided across great distances, which often hinders closer collaboration across professional groups and united specialized knowledge.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Needs of Head and Neck Cancer Patients and Stakeholders During Rehabilitation

Karampela

Porat

Mylonopoulou

2019

Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare

View full text Add to dashboard Cite

The foreseen growth of Head and Neck cancer (HNC) incidents will require future rehabilitation services to meet the needs of a wider population. This study reports the empirical findings of a case study conducted at a cancer rehabilitation center in Copenhagen, aiming to elicit the needs of HNC patients, informal caregivers and healthcare professionals (HCPs). Our results point out that patients and stakeholders' needs are interrelated, as they faced common challenges pertinent to provision and distribution of information. This study, though preliminary, underlines the importance of inclusion of all actors in the design of future interventions. BACKGROUNDGlobally, Head and Neck cancer (HNC) results in more than 550,000 new cases and 380,000 deaths annually [25], and the number of cases is rising [14]. In Europe, there were approximately 250,000 cases and 63,500 deaths in 2012 [27]. Primary risk factors leading to the development of HNC include tobacco use, alcohol consumption, human papillomavirus infection, and Epstein-Barr virus infection [25], while the most common types of HNC are in pharynx, larynx and oral cavity [55]. HNC rehabilitation is accompanied with high morbidity compromising vital functions, such as swallowing, respiration and speech. These functions are directly related to the quality Permission to make digital

show abstract

Section: Discussionsupporting

confidence: 86%

Section: Discussionmentioning

confidence: 99%

Needs of Head and Neck Cancer Patients and Stakeholders During Rehabilitation

Karampela

Porat

Mylonopoulou

2019

Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare

View full text Add to dashboard Cite

show abstract

“…However, ongoing monitoring and behavioral change support by a cancer exercise professional for those opting for generic activities are essential for success. Currently, there are more than 20 publications describing the implementation and, in many cases, the evaluation of community‐based programs for patients with cancer and survivors in North America, Australia, and Northern Europe . Below, we describe the largest programs in the United Kingdom and the United States, respectively.…”

Section: Types Of Programmingmentioning

confidence: 99%

Exercise is medicine in oncology: Engaging clinicians to help patients move through cancer

Schmitz

Campbell

Stuiver

et al. 2019

CA A Cancer J Clinicians

533

465

View full text Add to dashboard Cite

Multiple organizations around the world have issued evidence‐based exercise guidance for patients with cancer and cancer survivors. Recently, the American College of Sports Medicine has updated its exercise guidance for cancer prevention as well as for the prevention and treatment of a variety of cancer health‐related outcomes (eg, fatigue, anxiety, depression, function, and quality of life). Despite these guidelines, the majority of people living with and beyond cancer are not regularly physically active. Among the reasons for this is a lack of clarity on the part of those who work in oncology clinical settings of their role in assessing, advising, and referring patients to exercise. The authors propose using the American College of Sports Medicine's Exercise Is Medicine initiative to address this practice gap. The simple proposal is for clinicians to assess, advise, and refer patients to either home‐based or community‐based exercise or for further evaluation and intervention in outpatient rehabilitation. To do this will require care coordination with appropriate professionals as well as change in the behaviors of clinicians, patients, and those who deliver the rehabilitation and exercise programming. Behavior change is one of many challenges to enacting the proposed practice changes. Other implementation challenges include capacity for triage and referral, the need for a program registry, costs and compensation, and workforce development. In conclusion, there is a call to action for key stakeholders to create the infrastructure and cultural adaptations needed so that all people living with and beyond cancer can be as active as is possible for them.

show abstract

“…Literature confirms that there exist key challenges for the delivery of services between municipalities; inadequate referral and recruitment procedures; lack of needs assessment tools; obstacles to ensuring collaboration and referral of patients between hospitals and municipalities; and inadequate evidence on the rehabilitation’s effect (Kristiansen et al, ; Kristiansen, Adamsen, Brinkmann, Krasnik, & Hendriksen, ). Future research should target interventions, for example education and training (Bartolo, et al, ) assisting interdisciplinary HCTs to provide best clinical practice based on evidence.…”

Section: Resultsmentioning

confidence: 99%

“…Betts et al found that clinical specialists encountered lifelong learning by taking on new responsibilities and may seek to close knowledge gaps (Betts, O'Donoghue, Aikin, Kelly, & Boudewyns, 2016) in efforts to keep their competences at an "updated level". Literature confirms that there exist key challenges for the delivery of services between municipalities; inadequate referral and recruitment procedures; lack of needs assessment tools; obstacles to ensuring collaboration and referral of patients between hospitals and municipalities; and inadequate evidence on the rehabilitation's effect (Kristiansen et al, 2017;Kristiansen, Adamsen, Brinkmann, Krasnik, & Hendriksen, 2015). Future research should target interventions, for example education and training assisting interdisciplinary HCTs to provide best clinical practice based on evidence.…”

Section: Organisation and Education And Training Of Hctsmentioning

confidence: 99%

Research agenda for life-threatening cancer

2018

Self Cite

View full text Add to dashboard Cite

Objectives The aim of this study was to identify future research agendas that reflect the concerns and unexplored areas of interest for patients with life‐threatening cancer, their relatives and the clinical specialists during the cancer trajectory. Methods Six focus group discussions were conducted addressing two different cancer trajectories: primary malignant brain tumour and acute leukaemia. For each of the two cancer trajectories, separate FGIs were carried out with patients, relatives and clinical specialists to identify important concerns, challenges and uncertainties. The FGIs were video/audio‐recorded, transcribed and thematically analysed within and across FGI groups to construct research topics. Finally, the literature was reviewed for existing evidence concerning the identified research topic(s) to strengthen the suggested research agendas. Results New research agendas related to high‐grade glioma brain tumour and acute leukaemia with corresponding research questions were formulated within the topics of supportive care/palliation, education/information, rehabilitation, complementary and alternative therapy and organization of health care. Conclusion User involvement in identifying research agendas has the potential to improve quality of care for patients and caregivers across the cancer trajectory, while minimizing the gap in research between the healthcare user and healthcare provider.

show abstract

A three-year national follow-up study on the development of community-level cancer rehabilitation in Denmark

Cited by 11 publications

References 29 publications

Needs of Head and Neck Cancer Patients and Stakeholders During Rehabilitation

Needs of Head and Neck Cancer Patients and Stakeholders During Rehabilitation

Exercise is medicine in oncology: Engaging clinicians to help patients move through cancer

Research agenda for life-threatening cancer

Contact Info

Product

Resources

About