A Transformative Framework for Deinstitutionalisation

Fisher, Karen R.; Lutz, Deborah; Gadow, Friederike; Robinson, Sally; Gendera, Sandra

doi:10.1080/23297018.2015.1028089

Cited by 10 publications

(6 citation statements)

References 21 publications

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“…Of the eight papers that used or proposed conceptual frameworks to monitor or evaluate the CRPD or its specific Articles, all pointed to the QOL framework and QOL indicators that must be incorporated into comprehensive instruments to assess progress and identify needs and gaps in implementation. The QOL model proposed by Schalock and Verdugo was the most commonly used [ 1 , 2 , 8 , 9 , 11 ]—although the Cummins model [ 28 ] is also mentioned—and applications in specific contexts—namely “Educational quality of life” [ 29 ]—are also discussed. As shown in Table 3 , five of the studies named, applied or proposed specific measurement tools to assess QOL (QOL-Q, Integral Scale, Gencat Scale, Personal Outcomes Scale, Personal Wellbeing Index), self-determination (AIR Self-Determination Scale), or rights (Rights of Persons with Disabilities ad hoc scale).…”

Section: Resultsmentioning

confidence: 99%

Measurable Indicators of CRPD for People with Intellectual and Developmental Disabilities within the Quality of Life Framework

Gómez

Monsalve

Morán

et al. 2020

IJERPH

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This article proposes the quality of life (QOL) construct as a framework from which to develop useful indicators to operationalize, measure, and implement the Articles of the Convention on the Rights of Persons with Disabilities (CRPD). A systematic review of the scientific literature on people with intellectual and developmental disabilities (IDD) was carried out, with the aim of identifying personal outcomes that can be translated into specific and measurable items for each of the CRPD Articles aligned to the eight QOL domains. Following Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, the systematic review was conducted across the Web of Science Core Collection, Current Contents Connect (CCC), MEDLINE, KCI-Korean Journal Database, Russian Science Citation Index and SciELO Citation Index, for articles published between 2008 and 2020. A total of 65 articles focusing on people with IDD were selected. The results were grouped into four broad categories: conceptual frameworks used to monitor the CRPD; instruments used to assess the rights set out in the CRPD; recommendations on the use of inclusive research; and indicators or personal outcomes associated with specific rights contained in the CRPD.

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Section: Resultsmentioning

confidence: 99%

Measurable Indicators of CRPD for People with Intellectual and Developmental Disabilities within the Quality of Life Framework

Gómez

Monsalve

Morán

et al. 2020

IJERPH

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“…This initiative encompasses a wide range of population groups, including people with disabilities, homeless people, children, adolescents, adults, older adults, and other institutionalized groups. The strategy is founded on the premise of creating alternatives to residential institutions and segregated care settings and thus facilitating the development of community-based services [8,11,12,48,49]. By placing individual life projects at the forefront, this approach aims to transform the support and care model.…”

Section: Achieving Change Through Applying the Scp And The Qolsmmentioning

confidence: 99%

“…Over the last 3-4 decades, the disability field has experienced a number of shifts and witnessed the emergence of new paradigms that have focused on community living and inclusion [7][8][9][10][11][12], personal autonomy [5,13], human and legal rights [14][15][16][17][18][19], and human capacity [20][21][22]. These paradigms have typically emphasized a specific area and conceptual issues (e.g., community living, integrated employment, inclusive education, capacity, or rights) rather than describing a systematic approach to the paradigm's implementation, evaluation, and sustainability.…”

Section: Introductionmentioning

confidence: 99%

A Systematic Approach to Implementing, Evaluating, and Sustaining the Shared Citizenship Paradigm in the Disability Field

Verdugo,

Schalock,

Gómez

et al. 2023

Behavioral Sciences

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The disability field continues to face challenges in transforming and implementing meaningful and effective changes in person-centered services and supports aligned with the principles of the Convention on the Rights of Persons with Disabilities. To guide this transformative process effectively, a paradigm must be operationalized through a systematic approach. This article outlines such a systematic approach, consisting of two components: (a) aligning the paradigm’s foundational pillars to the elements of an explanatory/implementation model (the Quality of Life and Supports Model) to facilitate the paradigm’s operationalization, acceptance, and application and (b) aligning implementation, evaluation, and sustainability strategies with ecological systems, implementation targets, and the paradigm’s foundational pillars to drive change across systems. The synergy and alignment between these components underscore the importance of linking public policies with professional and organizational practices to promote social inclusion and enhance the quality of life for people with disabilities. We provide practical examples highlighting the collaborative potential of this synergy and emphasize the significance of evidence-based and person-centered practices in promoting equal rights and social inclusion for people with disabilities.

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“…Working age disabled people and frail older people have historically relied on inadequate state services, which have either under-provided services (leaving families alone to address care needs) or over-provided (confining people in long-stay institutions). The carers' rights movement has drawn attention to the struggles that families face in meeting high level care needs (Rummery, 2022), while disability rights and aged care campaigners have heavily criticised the enforced segregation of disabled people (Fisher et al, 2015), and inherent paternalism of traditional systems (Yeandle et al, 2012). Change is also demographic: the proportion of people who are ageing with a disability, and living a much longer life, is growing, as are the expectations of people about what they might want from the state as they age.…”

Section: Two Routes To Improving Support For Disabled and Older Peoplementioning

confidence: 99%

Tailored and Seamless: Individualised Budgets and the Dual Forces of Personalisation and Collaboration

Needham

Foster

Fisher

et al. 2022

Social Policy and Society

Self Cite

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This article reviews the design and delivery features of individualised budgets for disabled and older adults to understand the mechanisms for disaggregation and collaboration in the way support is organised and delivered. Individualised funding is often assumed to be a fragmenting force, breaking down mass provision into personalised and tailored support and stimulating diverse provider markets. However, disability campaigners and policy makers are keen that it also be an integrative force, to stimulate collaboration such that a person receives a ‘seamless’ service. The article brings out these tensions within the individualisation of funding and support for older and disabled people in the United Kingdom and Australia, and considers whether there is scope for reconciling these dual forces.

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A Transformative Framework for Deinstitutionalisation

Cited by 10 publications

References 21 publications

Measurable Indicators of CRPD for People with Intellectual and Developmental Disabilities within the Quality of Life Framework

Measurable Indicators of CRPD for People with Intellectual and Developmental Disabilities within the Quality of Life Framework

A Systematic Approach to Implementing, Evaluating, and Sustaining the Shared Citizenship Paradigm in the Disability Field

Tailored and Seamless: Individualised Budgets and the Dual Forces of Personalisation and Collaboration

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