A voice to be heard: patient and public involvement in health technology assessment and clinical practice guidelines in Malaysia

Kamaruzaman, Hanin Farhana; Rahim, Ku Nurhasni Ku Abd; Ghazali, Izzuna Mudla Mohamed; Yusof, Mohd Aminuddin Mohd

doi:10.1017/s0266462321000118

Cited by 2 publications

(1 citation statement)

References 7 publications

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“…Recommendations from a Citizens’ Council indirectly inform NICE’s guidance through their inclusion in the NICE “Social Value Judgements” document (34). Several frameworks for PPIE have been proposed since then, including in Australia (35), Canada (36), Malaysia (37), and Ireland (38). Despite the growing effort to facilitate PPIE, there remain fundamental questions about the extent, quality, and impact of these frameworks.…”

Section: Patient and Public Involvement And Engagement And Social Valuementioning

confidence: 99%

Expanding health technology assessment towards broader value: Ireland as a case study

Kinchin

Walshe

Normand

et al. 2023

Int J Technol Assess Health Care

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Healthcare innovations often represent important improvements in population welfare, but at what cost, and to whom? Health technology assessment (HTA) is a multidisciplinary process to inform resource allocation. HTA is conventionally anchored on health maximization as the only relevant output of health services. If we accept the proposition that health technologies can generate value outside the healthcare system, resource allocation decisions could be suboptimal from a societal perspective. Incorporating “broader value” in HTA as derived from social values and patient experience could provide a richer evaluative space for informing resource allocation decisions. This article considers how HTA is practiced and what its current context implies for adopting “broader value” to evaluating health technologies. Methodological challenges are highlighted, as is a future research agenda. Ireland serves as an example of a healthcare system that both has an explicit role for HTA and is evolving under a current program of reform to offer universal, single-tier access to public services. There are various ways in which HTA processes could move beyond health, including considering the processes of care delivery and/or expanding the evaluative space to some broader concept of well-being. Methods to facilitate the latter exist, but their adaptation to HTA is still emerging. We recommend a multi-stakeholder working group to develop and advance an international agenda for HTA that captures welfare/benefit beyond health.

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Section: Patient and Public Involvement And Engagement And Social Valuementioning

confidence: 99%

Expanding health technology assessment towards broader value: Ireland as a case study

Kinchin

Walshe

Normand

et al. 2023

Int J Technol Assess Health Care

View full text Add to dashboard Cite

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Stakeholder perspectives on the current status and potential barriers of patient involvement in health technology assessment (HTA) across Europe

Holtorf,

Bertelsen,

Jarke

et al. 2024

Int J Technol Assess Health Care

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Background There are wide variations in the practices of patient involvement in health technology assessment (HTA) in Europe. The field is lacking a consensus on good practices, leading to divergent processes, methods, and evaluation of patient involvement. To identify potential good practice approaches and current gaps, a structured online survey was conducted among HTA stakeholders, including HTA practitioners, patient stakeholders, industry representatives, and others who had experienced patient involvement in HTA. Methods The questionnaire was co-created by HTA experts, patient stakeholders, and industry representatives and disseminated between 29 April and 14 September 2022. Results Responses (n = 168) were submitted from thirty-two European countries by HTA practitioners (n = 33), patient stakeholders (n = 75), industry stakeholders (n = 42), providers (n = 5), academics (n = 7), and others (n = 6). The responses indicated that “allowing access to treatments that have demonstrated value”is the principle rationale for conducting HTA. In terms of the importance of patient involvement, there was consensus across stakeholder groups that “patients have insights and information [that] no other stakeholder has” and that patient involvement is important “to inform HTA which evidence is most patient-relevant”. Shortcomings were identified in the lack of systematic and transparent processes, an unsatisfactory level of information and guidance, and minimal communication and collaboration. Conclusions The diverse stakeholders who responded highlighted the need for improving specific aspects of patient involvement practices, including better guidance and information, a more consistent flow of communication between the HTA body and participating patient stakeholders, and the need to develop and implement a consensus on good practices.

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A voice to be heard: patient and public involvement in health technology assessment and clinical practice guidelines in Malaysia

Cited by 2 publications

References 7 publications

Expanding health technology assessment towards broader value: Ireland as a case study

Expanding health technology assessment towards broader value: Ireland as a case study

Stakeholder perspectives on the current status and potential barriers of patient involvement in health technology assessment (HTA) across Europe

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