A Web-Based Intervention for Relatives of People Experiencing Psychosis or Bipolar Disorder: Design Study Using a User-Centered Approach (Preprint)

Honary, Mahsa; Fisher, Naomi Ruth; McNaney, Róisín; Lobban, Fiona

doi:10.2196/preprints.11473

Cited by 5 publications

(1 citation statement)

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“…• Integrate into the new online family intervention formats and in a complementary way, some strategies used in cognitive behavioural therapy and contextual therapies [34][35][36][37][38][39][40][41][42].…”

Section: Introductionmentioning

confidence: 99%

Online Family Intervention for Caregivers of Persons with Severe Mental Disorder: Narrative Review of Current Landscape

Ruiz*

2023

J Biomed Res Environ Sci

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Background: In recent decades, it has been observed that the literature and research on face-to- face family interventions for caregivers of people with Severe Mental Disorders (SMD) has decreased significantly. However, the use of online interventions with family members of people affected by SMD seems to emerge as a promising complementary strategy to face-to-face care, and although in an incipient and limited way, it is occupying a growing focus of interest in the literature. Objectives: The article presents a brief narrative review of the current landscape of online family interventions aimed at caregivers of people with SMD. The main novelty of the narrative review presented in this article is the breakdown of the different elements and components explored in the limited literature on online interventions, providing a synthesis of the following aspects: Digital interventions in mental health; Components and quality criteria; Research on network interventions; Psychoeducational interventions. Methodology: As this was a narrative review of online family interventions and given the limited literature available, no specific research methodology was used and no specific criteria were established for the selection of the studies included in this review. The methodology used was qualitative. Results and Conclusions: As this is a narrative review, it is not possible to offer specific results or conclusions based on evidences. However, after the review conducted if it is possible to point out these two elements for future research: [1] Online care and support for family members of people with SMD can be a complementary intervention strategy to face-to-face care. [2] The online family intervention format could be incorporated into routine clinical practice in health care services and should be the subject of further research.

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Section: Introductionmentioning

confidence: 99%

Online Family Intervention for Caregivers of Persons with Severe Mental Disorder: Narrative Review of Current Landscape

Ruiz*

2023

J Biomed Res Environ Sci

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Perceived Acceptability and Experiences of a Digital Psychoeducation and Peer Support Intervention (COPe-support): Interview Study With Carers Supporting Individuals With Psychosis

Batchelor¹,

Gulshan²,

Shritharan³

et al. 2022

J Med Internet Res

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Background Web-based mental health interventions offer a novel, accessible, and self-paced approach to care delivery to family carers (ie, relatives and close friends who support a loved one with psychosis). We coproduced COPe-support (Carers fOr People with Psychosis e-support), a psychoeducational intervention delivered via an enriched web-based learning environment with network support from professionals and peers. In addition to the rigorous investigation of the effectiveness of COPe-support on the well-being of carers and mental health outcomes, it is imperative to understand the experiences of using the web-based intervention by carers and its associated web-based implementation and facilitation strategies. Objective This study aims to explore the experiences of carers and perceived acceptability of COPe-support and its different components, how carers found engagement with COPe-support affected their own well-being and caregiving, and the ideas of carers for improving COPe-support and its delivery to inform any future wider implementation. Methods We conducted a qualitative study, individually interviewing 35 carers, following their use of COPe-support for 8 months through a web-based, randomized controlled trial across England. A semistructured guide with open-ended questions was used to explore the experiences of carers and perceived acceptability of the intervention and their ideas to improve the provision. All interviews were conducted remotely through mobile phones or internet communication media, audio recorded and transcribed verbatim. We used a thematic analysis framework to analyze the data. Results Three key themes were identified: remote, flexible, and personalized support; impacts on well-being and outlook on caregiving; and future implementation and integration with existing services. Overall, carers found COPe-support a flexible source of knowledge and support from professionals and peers that they could personalize to suit their own needs and convenience. Participants described gaining self-confidence, hope, and a sense of connectivity with others in a similar situation, which helped ameliorate isolation and perceived stigma. Most importantly, COPe-support promoted self-care among the carers themselves. Participants’ experiences, use, and activity on COPe-support varied greatly and differed among carers of various ages and levels of computer literacy. Conclusions Nearly all participants had a positive experience with COPe-support and supported its wider implementation as a beneficial adjunctive support resource for carers in the future. Any future scale-up of such an intervention needs to consider feedback from carers and suggestions for further improvement. These included having more graphics and audiovisual content materials, improving the navigation, and building in more interactional and customization options to suit various user styles, such as emoji reactions, live web-based chat, opting in and out of updates, and choosing the frequency of reminders. To ensure successful implementation, we should also consider factors pertinent to reaching more carers and integrating the web-based resources with other conventional services. Trial Registration International Standard Randomized Controlled Trial Number (ISRCTN) 89563420; https://www.isrctn.com/ISRCTN89563420 International Registered Report Identifier (IRRID) RR2-10.1186/s12888-020-02528-w

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Methods for Human-Centered eHealth Development: Narrative Scoping Review

Kip¹,

Keizer²,

Silva³

et al. 2022

J Med Internet Res

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Background Thorough holistic development of eHealth can contribute to a good fit among the technology, its users, and the context. However, despite the availability of frameworks, not much is known about specific research activities for different aims, phases, and settings. This results in researchers having to reinvent the wheel. Consequently, there is a need to synthesize existing knowledge on research activities for participatory eHealth development processes. Objective The 3 main goals of this review are to create an overview of the development strategies used in studies based on the CeHRes (Center for eHealth Research) Roadmap, create an overview of the goals for which these methods can be used, and provide insight into the lessons learned about these methods. Methods We included eHealth development studies that were based on the phases and/or principles of the CeHRes Roadmap. This framework was selected because of its focus on participatory, iterative eHealth design in context and to limit the scope of this review. Data were extracted about the type of strategy used, rationale for using the strategy, research questions, and reported information on lessons learned. The most frequently mentioned lessons learned were summarized using a narrative, inductive approach. Results In the included 160 papers, a distinction was made between overarching development methods (n=10) and products (n=7). Methods are used to gather new data, whereas products can be used to synthesize previously collected data and support the collection of new data. The identified methods were focus groups, interviews, questionnaires, usability tests, literature studies, desk research, log data analyses, card sorting, Delphi studies, and experience sampling. The identified products were prototypes, requirements, stakeholder maps, values, behavior change strategies, personas, and business models. Examples of how these methods and products were applied in the development process and information about lessons learned were provided. Conclusions This study shows that there is a plethora of methods and products that can be used at different points in the development process and in different settings. To do justice to the complexity of eHealth development, it seems that multiple strategies should be combined. In addition, we found no evidence for an optimal single step-by-step approach to develop eHealth. Rather, researchers need to select the most suitable research methods for their research objectives, the context in which data are collected, and the characteristics of the participants. This study serves as a first step toward creating a toolkit to support researchers in applying the CeHRes Roadmap to practice. In this way, they can shape the most suitable and efficient eHealth development process.

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A Web-Based Intervention for Relatives of People Experiencing Psychosis or Bipolar Disorder: Design Study Using a User-Centered Approach (Preprint)

Cited by 5 publications

References 53 publications

Online Family Intervention for Caregivers of Persons with Severe Mental Disorder: Narrative Review of Current Landscape

Online Family Intervention for Caregivers of Persons with Severe Mental Disorder: Narrative Review of Current Landscape

Perceived Acceptability and Experiences of a Digital Psychoeducation and Peer Support Intervention (COPe-support): Interview Study With Carers Supporting Individuals With Psychosis

Methods for Human-Centered eHealth Development: Narrative Scoping Review

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