A Web-Based Telemanagement System for Improving Disease Activity and Quality of Life in Patients With Complex Inflammatory Bowel Disease: Pilot Randomized Controlled Trial

Hoyo, Javier del; Nos, Pilar; Faubel, Raquel; Muñoz, Diana; Dominguez, Dana A.; Bastida, Guillermo; Valdivieso, Bernardo; Correcher, Marisa; Aguas, Mariam

doi:10.2196/11602

Cited by 63 publications

(134 citation statements)

References 46 publications

(70 reference statements)

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“…We performed a qualitative study using focus group discussions to explore the experiences and perceptions of patients with IBD who used the TECCU telemonitoring web platform. This study is embedded within a clinical trial designed to evaluate the impact on health outcomes of the TECCU web platform for telemonitoring patients with complex IBD in comparison with telephone and standard care [19]. Data was collected to gain a more complete understanding of the TECCU app's usability and the patients´needs regarding the app.…”

Section: Methodsmentioning

confidence: 99%

“…The first focus group was held at the University of Valencia on 14 June, 2018. The participants were adult IBD patients (≥ 18 years of age) who used the NOMHADCHRONIC web platform to monitor disease activity after initiating treatment with an immunosuppressant or biological agent in a pilot study developed by our group [19]. A purposive sampling method was used to enroll patients previously followed with the platform, independent of their adherence to telemonitoring.…”

Section: First Focus Group With Patients From the Pilot Teccu Trialmentioning

confidence: 99%

“…There is often insufficient technical training for healthcare providers and patients, and there are concerns about the privacy of health data as well as confusion regarding the reimbursement system for telehealth services [13]. Moreover, and despite the potential cost-savings of eHealth in the IBD setting [14], the efficacy of such approaches in terms of disease outcomes is not consistent across studies [9,10,[15][16][17][18][19]. Remarkably, the attrition rates reported are still high despite the continued adaptation of web platforms and the evolution of mHealth over the last decade [9,[17][18][19][20].…”

Section: Introductionmentioning

confidence: 99%

“…Our research group developed a web-based telemonitoring program known as TECCU ("Telemonitorización de la Enfermedad de Crohn y Colitis Ulcerosa" or Telemonitoring of Crohn's Disease and Ulcerative Colitis) [32]. A previous pilot trial suggested that TECCU is a safe strategy to improve health outcomes for IBD patients [19] with a high probability of being more cost-effective in the short-term than standard and telephone care [14]. Although non-adherence was relatively low in our trial, we hypothesized that the incorporation of new technologies over time and the usability of the platform over longer follow-up periods could modify the patient engagement we observed in our pilot study.…”

Section: Introductionmentioning

confidence: 99%

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Adaptation of TECCU App Based on Patients´ Perceptions for the Telemonitoring of Inflammatory Bowel Disease: A Qualitative Study Using Focus Groups

Hoyo

Nos

Faubel

et al. 2020

IJERPH

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Background: Despite the continuous adaptation of eHealth systems for patients with inflammatory bowel disease (IBD), a significant disconnection persists between users and developers. Since non-adherence remains high, it is necessary to better understand the patients’ perspective on telemonitoring for IBD. Accordingly, this study aimed to adapt the TECCU telemonitoring app to the preferences and needs of IBD patients. Methods: A qualitative study was carried out using successive focus groups of IBD patients. Meetings were audio-recorded and a thematic analysis was employed until data saturation was achieved. The first group included patients who had used the TECCU App in a pilot clinical trial, and subsequent meetings included patients with Crohn’s disease and ulcerative colitis recruited from the Spanish Confederation of patient associations. The information collected at each meeting guided consecutive changes to the platform. Results: Data saturation was reached after three focus groups involving a total of 18 patients. Three main themes emerged: (1) platform usability, (2) the communication process, and (3) platform content. All participants indicated that TECCU is easy to use, permitting continuous and personalized feedback. According to patients´ perspectives, the platform was adapted to foster a flexible follow-up and shared decision-making using open and safe communication networks. Many participants appreciated the educational elements and, consequently, the app was connected to reliable and continuously updated webpages. Conclusions: IBD patients valued the usability and personalized monitoring offered by the TECCU App. Improvements in the messaging system and continuously updated educational content were introduced to address patients´ needs and favor their engagement.

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Section: Methodsmentioning

confidence: 99%

Section: First Focus Group With Patients From the Pilot Teccu Trialmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Adaptation of TECCU App Based on Patients´ Perceptions for the Telemonitoring of Inflammatory Bowel Disease: A Qualitative Study Using Focus Groups

Hoyo

Nos

Faubel

et al. 2020

IJERPH

Self Cite

View full text Add to dashboard Cite

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“…) .The system includes a web page to retrieve data from the user, a server for data analysis, and a database for storing data. Hoyo et al also designed a webbased system to monitor complex bowel disease(Del Hoyo et al 2018) . The system asks the user questions and, according to the results of the study, this web-based system, TECCU, is a safe strategy to improve health outcomes in patients with IBD and reduce the use of health care resources.…”

mentioning

confidence: 99%

A Web-Based Smart Telecare System for Early Diagnosis of Heart Attack

Hosseinpour

Delavar

Baferani

2019

Int. Arch. Photogramm. Remote Sens. Spatial Inf. Sci.

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Acute coronary syndrome which could lead to a heart attack is a common and dangerous disease in many parts of the world. Telecare can accelerate the diagnosis of the disease to provide user information including his/her location in an emergency to a support unit, to reduce the treatment time. Therefore, it is essential to develop a smart telecare system that monitors the status of the user automatically in real-time. This paper has proposed and implemented a web-based smart telecare system. The architecture of this system is based on an architecture for smart care in a smart city. This system receives information from the user and uses linear regression to detect acute coronary syndrome at the initial stage of the disease. This information is descriptive and selected according to the opinion of the cardiologist. Also, in case of diagnosis of acute coronary syndrome, the user's location is determined and sent to a support unit via email. The accuracy of this system is 77.5%. This accuracy is acceptable compared to the same system that predicts myocardial infarction. As the proposed system, unlike the comparator system, does not use electro cardio graphic signals (ECG), it can significantly reduce the time of diagnosis of acute coronary syndrome and its complications through early diagnosis of the disease and its notification. The innovation of this research is the presentation of an intelligent decision maker system that reports the hearth attack to the decision support system via an email message.

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Remote care through telehealth for people with inflammatory bowel disease

Gordon

Sinopoulou

Lakunina

et al. 2023

Cochrane Database of Systematic Reviews

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Background People with inflammatory bowel disease (IBD) require intensive follow‐up with frequent consultations after diagnosis. IBD telehealth management includes consulting by phone, instant messenger, video, text message, or web‐based services. Telehealth can be beneficial for people with IBD, but may have its own set of challenges. It is important to systematically review the evidence on the types of remote or telehealth approaches that can be deployed in IBD. This is particularly relevant following the coronavirus disease 2019 (COVID‐19) pandemic, which led to increased self‐ and remote‐management. Objectives To identify the communication technologies used to achieve remote healthcare for people with inflammatory bowel disease and to assess their effectiveness. Search methods On 13 January 2022, we searched CENTRAL, Embase, MEDLINE, three other databases, and three trials registries with no limitations on language, date, document type, or publication status. Selection criteria All published, unpublished, and ongoing randomised controlled trials (RCTs) that evaluated telehealth interventions targeted at people with IBD versus any other type of intervention or no intervention. We did not include studies based on digital patient information resources or education resources, unless they formed part of a wider package including an element of telehealth. We excluded studies where remote monitoring of blood or faecal tests was the only form of monitoring. Data collection and analysis Two review authors independently extracted data from the included studies and assessed their risk of bias. We analysed studies on adult and paediatric populations separately. We expressed the effects of dichotomous outcomes as risk ratios (RRs) and the effects of continuous outcomes as mean differences (MDs) or standardised mean differences (SMDs), each with their 95% confidence intervals (CIs). We assessed the certainty of the evidence using GRADE methodology. Main results We included 19 RCTs with a total of 3489 randomised participants, aged eight to 95 years. Three studies examined only people with ulcerative colitis (UC), two studies examined only people with Crohn's disease (CD), and the remaining studies examined a mix of IBD patients. Studies considered a range of disease activity states. The length of the interventions ranged from six months to two years. The telehealth interventions were web‐based and telephone‐based. Web‐based monitoring versus usual care Twelve studies compared web‐based disease monitoring to usual care. Three studies, all in adults, provided data on disease activity. Web‐based disease monitoring (n = 254) is probably equivalent to usual care (n = 174) in reducing disease activity in people with IBD (SMD 0.09, 95% CI −0.11 to 0.29). The certainty of the evidence is moderate. ...

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A Web-Based Telemanagement System for Improving Disease Activity and Quality of Life in Patients With Complex Inflammatory Bowel Disease: Pilot Randomized Controlled Trial

Cited by 63 publications

References 46 publications

Adaptation of TECCU App Based on Patients´ Perceptions for the Telemonitoring of Inflammatory Bowel Disease: A Qualitative Study Using Focus Groups

Adaptation of TECCU App Based on Patients´ Perceptions for the Telemonitoring of Inflammatory Bowel Disease: A Qualitative Study Using Focus Groups

A Web-Based Smart Telecare System for Early Diagnosis of Heart Attack

Remote care through telehealth for people with inflammatory bowel disease

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