A134: Validation of Patient Reported Outomes Measurement Information System Modules for use in Childhood‐;onset Lupus

Jones, Jordan T.; Nelson, Shannen; Wootton, Janet; Ying, Jun; Liberio, Brianna; Greenler, Alexandria J.; Wiley, Kasha; Lee, Jiha; Huggins, Jennifer; Schanberg, Laura E.; Brunner, Hermine

doi:10.1002/art.38555

Cited by 6 publications

(9 citation statements)

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“…There is little data to support one technique over the other for TBW of olecranon fractures [ 5 , 9 , 13 , 14 ]. In this study we applied a numerical grading of the technical aspects of TBW fixation for olecranon fracture; assessed the interobserver agreement of each criterion; and measured the correlation of the technical grading and objective and subjective long-term outcomes.…”

Section: Discussionmentioning

confidence: 99%

“…The tension band principle as applied to transverse olecranon fractures fixed by tension band wiring (TBW) is based on the premise that distraction forces on the outer cortex of the ulna during elbow flexion are converted to compression forces on the articular surface of the olecranon at the fracture site [ 14 ]. The specific technical aspects of the TBW for simple olecranon fracture are subject to ongoing debate as there is little evidence to support any specific technique [ 5 , 9 , 13 , 14 ]. Nevertheless, the specific surgical technique or technical aspects of the procedure are preferred based more upon the eminence of the surgeon or group rather than the data.…”

Section: Introductionmentioning

confidence: 99%

“…Nevertheless, the specific surgical technique or technical aspects of the procedure are preferred based more upon the eminence of the surgeon or group rather than the data. For instance, the AO technique emphasizes parallel and intramedullary Kirschner wires, but it is not clear that those specific technical aspects confer an advantage [ 5 , 9 , 13 , 14 ].…”

Section: Introductionmentioning

confidence: 99%

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Tension band wiring for simple olecranon fractures: evaluation of surgical technique

et al. 2017

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BackgroundIn some settings, specific techniques for open reduction and internal fixation are preferred based on the eminence of a surgeon or professional organization. An emphasis on technical aspects of surgery that are not proved superior and vary substantially from surgeon to surgeon can be confusing for trainees. This study applied a numerical grading of the technical aspects of tension band wire (TBW) fixation for olecranon fracture; assessed the interobserver agreement of each criterion; and measured the correlation of the technical grading and objective and subjective long-term outcomes.Materials and methodsForty observers were invited to rate the technical aspects of TBW fixation of the olecranon on 26 post-operative radiographs. The interobserver reliability of the rating was measured using the intra-class correlation coefficient. The correlation between the rating and motion, Mayo elbow performance index, and disabilities of the arm, shoulder and hand score was tested with the Spearman’s rank correlation test.ResultsNone of the figure-of-eight TBW constructs were considered perfect according to the numerical grading: the majority of observers found three deviations per fixation. The interobserver agreement was only fair for the total number of deviations and no correlation between the number of deviations and long-term objective and subjective outcome was found.ConclusionsA rating of the technical aspects of TBW for olecranon fractures was unreliable and did not correlate with subjective and objective outcomes. Emphasis on specific technical aspects of fixation might be confusing for trainees and could distract them from the principles of effective treatment.Level of evidenceLevel IV diagnostic study.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Tension band wiring for simple olecranon fractures: evaluation of surgical technique

et al. 2017

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“…The body of literature demonstrating the validity of PROMIS measures in specific clinical populations is still very much in a nascent stage but has included several studies in patients with SLE including one with juvenile-onset SLE [56] and several studies of adults with SLE described below. A cross-sectional study of SLE patients recruited through an internet panel company used measures from PROMIS and another NIH-funded initiative, Quality of Life in Neurological Disorders (Neuro-QoL), to assess the PRO measures’ associations with patient-reported SLE disease severity [57].…”

Section: Generic Pro Instrumentsmentioning

confidence: 99%

Patient-Reported Outcomes in Systemic Lupus Erythematosus

Mahieu

Yount

Ramsey‐Goldman

2016

Rheumatic Disease Clinics of North America

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Successful management of complex conditions such as systemic lupus erythematosus, SLE, and comorbid conditions benefit significantly from patient-reported outcomes (PRO) instruments that validly and precisely measure relevant aspects of health status (e.g., symptoms) and health related quality of life. Measuring health related quality of life and other aspects of health status (e.g., symptoms, functioning) with PROs provides SLE patients with an opportunity to participate in their treatment and to facilitate better communication with the multi-disciplinary team of health professionals involved in their care. Health outcomes research has produced a number of well-validated instruments that can be used across diseases whereas some have been specifically developed for SLE. The use of either a generic and SLE-specific PRO depends on the particular needs of a variety of clinical applications including population monitoring, treatment decision-making in clinical practice, clinical trials research, and for evaluating and comparing the effect of therapies across conditions, therapies, trials and patients in clinical research studies.

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“…More recently, PROMIS® item banks regarding upper extremity function have been constructed, and validated among children with cancer-related diagnoses and inflammatory arthropathies. 13,14 The PROMIS® Upper Extremity Item Bank contains 29 items and has previously undergone extensive testing in large diverse groups of children in order to establish unidimensionality. However, it has not yet been applied to children with severe upper extremity disability, including congenital hand differences.…”

mentioning

confidence: 99%

Applying the Patient-Reported Outcomes Measurement Information System to Assess Upper Extremity Function among Children with Congenital Hand Differences

Waljee

Carlozzi

Franzblau

et al. 2015

Plastic and Reconstructive Surgery

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Purpose Few studies have evaluated self-assessment tools among children with congenital hand differences. We compared three upper extremity disability instruments with the Patient Reported Outcomes Measurement Information System (PROMIS®) Pediatric Upper Extremity Item Bank. Methods Thirty-three children (ages 6–17) with congenital hand differences completed the Pediatric Outcomes Data Collection Instrument (PODCI), the Michigan Hand Outcomes Questionnaire (MHQ), the Disability of the Arm, Shoulder, and Hand (DASH), and the PROMIS® Upper Extremity short form (SF) and computerized adaptive test (CAT). Hand function was also assessed using grip and pinch strength and the Nine-Hole Peg Test. We used Spearman correlation coefficients to determine construct validity, and examined feasibility by comparing completion time, reading level, need for assistance, and patient preference among the instruments. Results PROMIS® demonstrated good construct validity. SF and CAT versions of PROMIS® were highly correlated with DASH scores (r > 0.80, p<0.001) and all PODCI domains except sports (r>0.70, p<0.001). Correlations with the MHQ were moderate (r> 0.40, p < 0.05). PROMIS® SF and CAT scores also correlated with grip strength (r≥0.60, p<0.001) and pinch strength (r>0.50, p<0.001). Compared to the other questionnaires, PROMIS® was much more feasible. It took the least time to complete, fewer children required assistance, and it is written at a lower, more age-appropriate reading level than the MHQ and DASH. Conclusions PROMIS® is highly correlated with both functional tests and traditional hand function questionnaires. Our results provide encouraging evidence that PROMIS® may be an efficient, feasible option to capture hand function among children with congenital hand differences. Level of Evidence: III

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A134: Validation of Patient Reported Outomes Measurement Information System Modules for use in Childhood‐;onset Lupus

Cited by 6 publications

References 0 publications

Tension band wiring for simple olecranon fractures: evaluation of surgical technique

Tension band wiring for simple olecranon fractures: evaluation of surgical technique

Patient-Reported Outcomes in Systemic Lupus Erythematosus

Applying the Patient-Reported Outcomes Measurement Information System to Assess Upper Extremity Function among Children with Congenital Hand Differences

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