A140 Ibd Dashboard: An Innovative E-Health Program for Providing Equal Access to Quality Care for All Inflammatory Bowel Disease Patients

Sutton, Reed T.; Wishart, E; Dhami, Neil; Sadowski, Dan; Siffledeen, Jesse; Sauve, Michel; Hundal, Rajveer; Ismond, Kathleen P.; Zanten, Sander van; Huang, Vivian

doi:10.1093/jcag/gwy009.140

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“…Patients were also enrolled into the IBD Dashboard program which allowed for tight control monitoring. The IBD Dashboard is a secure web-based portal for patients to submit their clinical disease activity scores, quality of life, and medication adherence reports in each trimester of pregnancy for review by health care providers 34 . The IBD dashboard was also designed to extract results from the IBDoc portal, and thus contained FCP results from multiple testing points.…”

Section: Methodsmentioning

confidence: 99%

Optimizing maternal and neonatal outcomes through tight control management of inflammatory bowel disease during pregnancy: a pilot feasibility study

Jogendran

O’Connor

Jeyakumar

et al. 2023

Sci Rep

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A home point-of care FCP test (IBDoc) and a self-reported clinical disease activity program (IBD Dashboard) may improve routine monitoring of IBD activity during pregnancy. We aimed to evaluate the feasibility of tight control management using remote monitoring in pregnant patients with IBD. Pregnant patients (< 20 weeks) with IBD were prospectively enrolled from Mount Sinai Hospital between 2019 and 2020. Patients completed the IBDoc and IBD Dashboard at three core time points. Disease activity was measured clinically using the Harvey–Bradshaw Index (mHBI) for CD and partial Mayo (pMayo) for UC, or objectively using FCP. A feasibility questionnaire was completed in the third trimester. Seventy-seven percent of patients (24 of 31) completed the IBDoc and IBD Dashboard at all core time points. Twenty-four patients completed the feasibility questionnaires. All survey respondents strongly preferred using the IBDoc over standard lab-based testing and would use the home kit in the future. Exploratory analysis identified discordance rates of more than 50% between clinical and objective disease activity. Tight control management using remote monitoring may be feasible among pregnant patients with IBD. A combination of both clinical scores and objective disease markers may better predict disease activity.

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Section: Methodsmentioning

confidence: 99%