Abstract B20: Community bridges to cancer clinical trials: Evaluating community education modules

Green, Melissa A.; Michaels, Margo; Blakeney, Natasha; Richmond, Alan; Long, Debra G.; Robinson, William S.; Elliott-Bynum, Sharon; Corbie-Smith, Giselle

doi:10.1158/1055-9965.disp-10-b20

Cited by 2 publications

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“…On a larger, community level, given the willingness to participate in non-treatment trials and the altruism shown by participants in the current study, perhaps non-treatment trials can be used to establish familiarity with clinical trials in general and increase acceptability of treatment trials within the community. Ongoing studies such as the NCI-funded pilot study Community Bridges to Cancer Clinical Trials , will help further inform the cancer research community regarding these and related issues of community knowledge and favorable attitudes towards clinical trials [47]. …”

Section: Discussionmentioning

confidence: 99%

Perceptions of Cancer Clinical Research Among African American Men in North Carolina

Trantham

Carpenter

DiMartino

et al. 2015

Journal of the National Medical Association

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Objective The problem of cancer health disparities is substantial. Clinical trials are widely advocated as a means of reducing disparities and bringing state-of-the-art care to the broader community, where most cancer care is delivered. This study sought to develop a better understanding of why disproportionately few African American men enroll in clinical trials given their substantial cancer burden. Design This study applied community-based participatory research (CBPR) methods to design and conduct four focus groups of African American male cancer survivors and their caregivers in North Carolina. Results Among major themes, participants expressed confusion about the relationship between clinical trials, treatment, and research, signifying patient confusion and misinterpretation of common clinical trial terminology. Social norms including gender barriers and generational differences remain problematic; participants often reported that men do not talk about health issues, are unwilling to go to the doctor, and exhibit misapprehension and distrust regarding trials. Participants perceived this as detrimental to community health and expressed the need for more clarity in clinical trials information and a more fundamental social openness and communication about cancer detection and treatment. Conclusion Findings indicate the importance of clinical trials education in both traditional provider referral to trials and also in general patient navigation. To dispel pervasive misapprehension regarding placebos, clinical trials information should emphasize the role of standard care in modern cancer treatment trials. Many participants described willingness to participate in a trial upon physician recommendation, suggesting merit in improving patient-physician communication through culturally competent terminology and trial referral systems.

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Section: Discussionmentioning

confidence: 99%

Perceptions of Cancer Clinical Research Among African American Men in North Carolina

Trantham

Carpenter

DiMartino

et al. 2015

Journal of the National Medical Association

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“…The curriculum was influenced by previous training developed by the instructors. Examples include the Meharry-Vanderbilt Community Engaged Research Core “Art of Recruitment” module which was originally created in 2014 and subsequently adapted and tailored for specific trials [ 29 ], the curricula developed by the Education Network to Advance Cancer Clinical Trials (ENACCT) to train cancer clinical trial research staff on improving recruitment and retention practices, especially for minority groups [ 24 , 30 ], and train-the-trainer programs with community leaders to increase cancer clinical trial participation among minority groups [ 30 – 35 ].…”

Section: Methodsmentioning

confidence: 99%

Design and implementation of a massive open online course on enhancing the recruitment of minorities in clinical trials – Faster Together

Kusnoor

Villalta-Gil

Michaels

et al. 2021

BMC Med Res Methodol

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Background Racial and ethnic minorities are often underrepresented in clinical trials, threatening the generalizability of trial results. Several factors may contribute to underrepresentation of minorities in clinical trials, including lack of training for researchers and staff on the importance of diversity in clinical trials and effective strategies for recruiting and retaining minority populations. Methods Applying community engaged research principles, we developed a massive open online course (MOOC) to help research team members develop knowledge and skills to enhance the recruitment of minorities in clinical trials. A transdisciplinary working group, consisting of clinical researchers, community engagement specialists, minority clinical trial recruitment and retention educators and specialists, and knowledge management information scientists, was formed to develop an evidence-based curriculum. Feedback from the Recruitment Innovation Center Community Advisory Board was incorporated to help finalize the curriculum. The course was implemented in Coursera, an online learning platform offering MOOCs. A bootstrap paired sample t-test was used to compare pre- and post-assessments of knowledge, attitudes, and intentions as it relates to minority recruitment. Results The final course, entitled Faster Together, was divided into eight 1-h modules. Each module included video presentations, reading assignments, and quizzes. After 10 months, 382 individuals enrolled in the course, 105 participants completed the pre-test, and 14 participants completed the post-test. Participants’ knowledge scores were higher with an increase in the mean number of correct answers from 15.4 (95% CI:12.1–18.7) on the pre-test to 18.7 (95% CI:17.42–20.2) on the post-test. All post-test respondents (n = 14) indicated that the course improved their professional knowledge, and 71.4% of respondents indicated that they were very likely to make changes to their recruitment practices. Conclusions Faster Together, a massive open online course, is an acceptable, accessible approach to educating research teams on minority recruitment in clinical trials. Preliminary evidence indicates the course increased knowledge on how to recruit minorities into clinical trials and could promote change in their recruitment practices.

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Abstract B20: Community bridges to cancer clinical trials: Evaluating community education modules

Cited by 2 publications

References 0 publications

Perceptions of Cancer Clinical Research Among African American Men in North Carolina

Perceptions of Cancer Clinical Research Among African American Men in North Carolina

Design and implementation of a massive open online course on enhancing the recruitment of minorities in clinical trials – Faster Together

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