Abuse and Neglect of Clients in Agency-Based and Consumer-Directed Home Care

Matthias, Ruth E.; Benjamin, A. E.

doi:10.1093/hsw/28.3.174

Cited by 32 publications

(38 citation statements)

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“…A third explicitly included women with both physical and intellectual disabilities, as well as women with physical disabilities alone. Two studies [Matthias and Benjamin, 2003;Oktay and Tompkins, 2004] examined maltreatment perpetrated by personal assistants, and one [Bryen et al, 2003] studied maltreatment experienced by users of augmentative and alternative communication. Although these studies may have incidentally included individuals with ID, they focused primarily on physical disabilities and were based on self-report surveys that may have precluded participation by people with significant cognitive impairments.…”

Section: Resultsmentioning

confidence: 99%

“…In studies of personal assistant maltreatment, the results of Matthias and Benjamin [2003] and Oktay and Tompkins [2004] provide some indication that this type of maltreatment may be even more prevalent than Powers et al [2002] found either for women with both ID and physical disabilities or for women with physical disabilities alone. However, it is difficult to compare these studies given the different sampling methodologies utilized and the fact that studied lifetime prevalence of maltreatment from any personal assistants, while Oktay and Tompkins studied maltreatment from current personal assistants, and Matthias and Benjamin studied personal assistant maltreatment that had occurred within the past year.…”

Section: Comparing People With Id To People With Other Disabilitiesmentioning

confidence: 95%

“…Theft and extortion by primary personal assistants were reported by 9 and 8% of the respondents, respectively, while 29 and 15% had experienced theft and extortion, respectively, from other personal assistants. Matthias and Benjamin [2003] conducted telephone interviews of recipients of both consumer-directed (511 respondents) and professional agency-directed (584 respondents) in-home care in California. The sampling frame consisted of all individuals who had been in California's In-Home Supportive Services program for at least 6 months and who did not have severe cognitive impairments.…”

Section: Summary Of Studies and Findingsmentioning

confidence: 99%

“…While Powers et al [2002] asked respondents whether they had ever in their lifetimes experienced certain problem behaviors from any personal assistants, Oktay and Tompkins [2004] asked whether any of the individual's current personal assistants had ever maltreated them, and Matthias and Benjamin [2003] asked about prevalence of maltreatment only within the past year.…”

Section: Prevalence For People With Id Compared To People With Other mentioning

confidence: 99%

See 3 more Smart Citations

Prevalence of maltreatment of people with intellectual disabilities: A review of recently published research

Horner‐Johnson

Drum

2006

Ment. Retard. Dev. Disabil. Res. Rev.

199

107

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Maltreatment can have a profound adverse effect on the health of individuals with intellectual disabilities (ID). People with ID may also be more likely to experience maltreatment than other groups. Historically, data on prevalence of maltreatment among people with ID have been sparse and methodologically weak but have suggested that the scope of the problem is considerable. Studies published between 1995 and 2005 were reviewed to determine estimated maltreatment prevalence among people with ID based on recent literature. Prevalence estimates for people with ID were compared to estimates for people with no disabilities and people with other types of disabilities. Only five studies provided maltreatment prevalence estimates for people with ID. The limited data suggest that maltreatment is more prevalent for people with ID than for people with no disabilities and may be higher for people with ID than for people with certain other disabilities. Most of the available research is still based on convenience samples. More population-level data are needed to provide reliable estimates of the prevalence of this important health problem. Key Words: maltreatment; prevalence; intellectual disability (mental retardation) M altreatment has been identified as a significant health issue for people with intellectual and other disabilities [Sobsey, 1994;Curry et al., 2001;USDHHS 2002]. Among the general population, exposure to maltreatment has been shown to produce a range of sequelae, including physical trauma, compromised psychological health, or death [Tjaden and Thoennes, 2000;Ireland, 2002]. In addition to these consequences, people with disabilities may develop secondary disabilities and/or suffer loss of independence [Mitchell and Buchele-Ash, 2000;Swedlund and Nosek, 2000]. For example, a person with an intellectual disability may develop emotional problems as a result of psychological maltreatment or develop a secondary mobility disability as a result of physical abuse.Unfortunately, while maltreatment in the general population has been recognized as a national priority with large-scale efforts to measure the prevalence of maltreatment and violence (e.g., National Child Abuse and Neglect Data System (NCANDS); National Violence Against Women Survey), little attention has been devoted to collecting comprehensive data on maltreatment of people with disabilities. Although the most recent report based on NCANDS data included disability as a demographic category, the data are acknowledged to be underestimates [USDHHS, 2005]. The data that are provided are for children with disabilities in general, with no information about specific types of disabilities.A number of authors [Jaudes and Diamond, 1985;Ammerman and Baladerian, 1993;Sobsey, 1994] have reported that individuals with disabilities are more likely to be maltreated than individuals without disabilities. Moreover, it has been asserted that individuals with intellectual disabilities (ID) are at especially high risk [Levy and Packman, 2004]. One oft-cited study [Cross et a...

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Section: Resultsmentioning

confidence: 99%

Section: Comparing People With Id To People With Other Disabilitiesmentioning

confidence: 95%

Section: Summary Of Studies and Findingsmentioning

confidence: 99%

Section: Prevalence For People With Id Compared To People With Other mentioning

confidence: 99%

See 2 more Smart Citations

Prevalence of maltreatment of people with intellectual disabilities: A review of recently published research

Horner‐Johnson

Drum

2006

Ment. Retard. Dev. Disabil. Res. Rev.

199

107

View full text Add to dashboard Cite

show abstract

“…Research into the context where interpersonal violence against people with disabilities occurs has focused largely on institutional or congregate settings (Cambridge, 1999;Crossmaker, 1991;McCarthy & Thompson, 1996) and private residences whereby the perpetrator is an intimate partner (Brownridge, 2006;Coker et al, 2005;Smith, 2007), family member, or paid care provider (Matthias & Benjamin, 2003;Oktay & Tompkins, 2004;Powers et al, 2002;Saxton et al, 2001;Saxton et al, 2006). Little attention has been paid to geographic context, particularly the rural community context, and relevance for understanding interpersonal violence against people with disabilities.…”

mentioning

confidence: 99%

Interpersonal Violence Against People With Disabilities: Understanding the Problem From a Rural Context

Fitzsimons

Hagemeister

Braun

2011

Journal of Social Work in Disability & Rehabilitation

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Interpersonal violence against people with disabilities is a significant social problem. Little attention has focused on the rural context and the relevance for understanding violence. Given the dearth of literature exploring interpersonal violence, disability, and rurality, a review of rural-focused literature on domestic violence, sexual violence, and elder abuse was conducted to identify themes that could provide insight into this problem for people with disabilities. Themes include geographic isolation, traditional cultural values and norms, lack of anonymity, lack of resources, and poor response of systems. Implications for understanding interpersonal violence against rural people with disabilities and for social work practice are discussed.

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The disability self‐direction movement: Considering the benefits and challenges for an Australian response

Crozier¹,

Muenchberger²,

Colley³

et al. 2013

Aust J Social Issues

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The following article provides a snapshot of the current self-direction movement within the disability sector across the industrialised world, with particular emphasis on the Australian context. As a global movement, self-direction has been in progress for several decades through a variety of implemented responses. Despite implementation variation, all self-direction models aim to facilitate individual control and decision making in care and support services. We describe self-direction, its various models and programs, and explore its benefits and challenges. We conclude by making broad recommendations for decision makers involved in self-direction. In particular, we offer a hierarchical decision tree that can be used to inform policy decisions at a systems -government policy -and organisational level.

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Abuse and Neglect of Clients in Agency-Based and Consumer-Directed Home Care

Cited by 32 publications

References 0 publications

Prevalence of maltreatment of people with intellectual disabilities: A review of recently published research

Prevalence of maltreatment of people with intellectual disabilities: A review of recently published research

Interpersonal Violence Against People With Disabilities: Understanding the Problem From a Rural Context

The disability self‐direction movement: Considering the benefits and challenges for an Australian response

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