2014
DOI: 10.1136/bmjqs-2014-002804
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Accelerating the rate of improvement in cystic fibrosis care: contributions and insights of the learning and leadership collaborative

Abstract: IntroductionThe Learning and Leadership Collaborative (LLC) supports cystic fibrosis (CF) centres’ responses to the variation in CF outcomes in the USA. Between 2002 and 2013, the Cystic Fibrosis Foundation (CFF) designed, tested and modified the LLC to guide front line staff efforts in these efforts. This paper describes the CFF LLC evolution and essential elements that have facilitated increased improvement capability of CF centres and improved CF outcomes.MethodsCF centre improvement teams across the USA ha… Show more

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Cited by 45 publications
(40 citation statements)
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“…5,6 These programs were supported by the CF Foundation through the Leadership and Learning Quality Improvement Collaborative. 7 The CF Foundation also supports the development of evidence-based care guidelines. One of the guidelines recommends that patients age 6 to 17 years attend at least 4 clinic visits and receive 4 respiratory cultures and 2 pulmonary function tests (PFTs) per annum.…”
mentioning
confidence: 99%
“…5,6 These programs were supported by the CF Foundation through the Leadership and Learning Quality Improvement Collaborative. 7 The CF Foundation also supports the development of evidence-based care guidelines. One of the guidelines recommends that patients age 6 to 17 years attend at least 4 clinic visits and receive 4 respiratory cultures and 2 pulmonary function tests (PFTs) per annum.…”
mentioning
confidence: 99%
“…20 In contrast to many subspecialty QI efforts that focus on a group of patients with a specific condition or diagnosis (eg, cystic fibrosis, inflammatory bowel disease), general pediatricians have no similar opportunities. 21,22 Efforts by the American Academy of Pediatrics to develop learning modules that incorporate QI methods and projects sponsored by American Academy of Pediatrics' chapters throughout the country have likely resulted in the rates of participation being as high as we found. 23 The same may be true of the ABP MOC requirements for participation in QI activities.…”
Section: Involvement In Qi Activitiesmentioning
confidence: 56%
“…As noted in a recent Cochrane review [28], the key elements of IPE remain to be determined and the authors call for studies assessing the effectiveness of IPE interventions compared to profession-specific interventions; clinical trials with the inclusion of qualitative research methods examining processes relating to the IPE and practice changes; and cost-benefit analyses contrasting traditional with interprofessional approaches. Finally, transferring successful or promising strategies used in other chronic pediatric fields and adapting these for discovery and quality improvement in the area of DSD may prove valuable [29][30][31]. Table 2 Structure and function of DSD research networks/learning collaboratives and efforts at standardization of clinical care.…”
Section: Standardization ▼mentioning
confidence: 99%