Acceptability and feasibility of family use of The Cellie Cancer Coping Kit

Marsac, Meghan L.; Hildenbrand, Aimee K.; Clawson, Kathleen; Jackson, Leela; Kohser, Kristen L.; Barakat, Lamia P.; Kassam‐Adams, Nancy; Aplenc, Richard; Vinsel, Anne; Alderfer, Melissa A.

doi:10.1007/s00520-012-1475-y

Cited by 24 publications

(66 citation statements)

References 32 publications

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“…Social support can help CYP acquire knowledge and skills regarding how to manage their physical, emotional, and social difficulties (Marsac et al, ; Stewart et al, ). As they master these skills, CYP develop a sense of confidence in their own abilities to manage their future physical (e.g., Barnetz & Feigin, ) and mental (e.g., Jaser, Patel, Linsky, & Whittemore, ) health needs.…”

Section: Resultsmentioning

confidence: 99%

Experiences of interventions aiming to improve the mental health and well‐being of children and young people with a long‐term physical condition: A systematic review and meta‐ethnography

Shaw

Moore

Nunns

et al. 2019

Child

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BackgroundChildren and young people with long‐term physical health conditions are at increased risk of experiencing mental health and well‐being difficulties. However, there is a lack of research that explores the experiences of and attitudes towards interventions aiming to improve their mental health and well‐being. This systematic review seeks to address this gap in the literature by exploring what children and young people with long‐term conditions, their caregivers, and health practitioners perceive to be important aspects of interventions aiming to improve their mental health and well‐being.MethodsAn information specialist searched five academic databases using predefined criteria for qualitative evaluations of interventions aiming to improve the mental health or well‐being of children with long‐term physical conditions. Reviewers also performed supplementary citation and grey literature searches. Two reviewers independently screened titles, abstracts, and full texts that met the inclusion criteria and conducted data extraction and quality assessment. Meta‐ethnography was used to synthesize the findings.ResultsScreening identified 60 relevant articles. We identified five overarching constructs through the synthesis: (a) Getting In and Staying In, (b) Therapeutic Foundation, (c) Social Support, (d) A Hopeful Alternative, and (e) Empowerment. The line of argument that links these constructs together indicates that when interventions can provide an environment that allows young people to share their experiences and build empathetic relationships, it can enable participants to access social support and increase feelings of hope and empowerment.ConclusionThese findings may provide a framework to inform the development of mental health interventions for this population and evaluate existing interventions that already include some of the components or processes identified by this research. Further research is needed to establish which of the constructs identified by the line of argument are most effective in improving the mental well‐being of young people living with long‐term conditions.

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Section: Resultsmentioning

confidence: 99%

Experiences of interventions aiming to improve the mental health and well‐being of children and young people with a long‐term physical condition: A systematic review and meta‐ethnography

Shaw

Moore

Nunns

et al. 2019

Child

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“…Further, because the efficacy of a particular coping strategy varies across categories of stressors and individuals (Aldridge & Roesch, 2007; Miller, K. S. et al, 2009; Schmidt, Petersen, & Bullinger, 2003), interventions should encourage families to develop broad repertoires of strategies and help families strategically select and apply approach and avoidance strategies to manage cancer-related stressors children incur during treatment. Current recommendations for intervention development within pediatric cancer suggest that broad-based, low-cost, easily accessible psychoeducational interventions that can be tailored for each family are needed (Kazak et al, 2007; Marsac et al, 2012). …”

Section: Discussionmentioning

confidence: 99%

A Mixed Methods Assessment of Coping with Pediatric Cancer

Hildenbrand

Alderfer

Deatrick

et al. 2014

Journal of Psychosocial Oncology

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The purpose of this study was to describe child coping and parent coping assistance with cancer-related stressors during treatment. Fifteen children (aged 6-12) with cancer and their parents (N = 17) completed semi-structured interviews and self-report measures to assess coping and coping assistance. Results suggest families utilized a broad array of approach and avoidance strategies to manage cancer and its treatment. Quantitative and qualitative assessments provided complementary and unique contributions to understanding coping among children with cancer and their parents. Using a mixed methods approach to assess coping provides a richer understanding of families’ experiences, which can better inform clinical practice.

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“…In response to this need, the Cellie Coping Kit for Children for Cancer was adapted for children with injury (Marsac et al, ). The goal of the Cellie Coping Kit for Children with Injury (Cellie Kit) is to optimize postinjury health outcomes by providing families with evidence‐based strategies to manage injury‐related challenges.…”

Section: Introductionmentioning

confidence: 99%

The Cellie Coping Kit for Children with Injury: Initial feasibility, acceptability, and outcomes

Marsac

Weiss

Kohser

et al. 2018

Child

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Acceptability and feasibility of family use of The Cellie Cancer Coping Kit

Abstract: The Cellie Kit is an engaging, helpful, and easy-to-use coping tool for families facing pediatric cancer treatment. Future research should examine the efficacy of brief interventions using the Cellie Kit to promote adjustment to pediatric cancer.

Cited by 24 publications

References 32 publications

Experiences of interventions aiming to improve the mental health and well‐being of children and young people with a long‐term physical condition: A systematic review and meta‐ethnography

Experiences of interventions aiming to improve the mental health and well‐being of children and young people with a long‐term physical condition: A systematic review and meta‐ethnography

A Mixed Methods Assessment of Coping with Pediatric Cancer

The Cellie Coping Kit for Children with Injury: Initial feasibility, acceptability, and outcomes

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