Acceptability of the health‐related quality of life instrument EQ‐5D‐Y‐5L among patients in child and adolescent psychiatric inpatient care

Krig, Sonja; Åström, Mimmi; Kulane, Asli; Burström, Kristina

doi:10.1111/apa.15547

Cited by 9 publications

(7 citation statements)

References 28 publications

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“…Further research should assess other quantitative psychometric properties, such as test–retest reliability. But, in line with other studies [ 31 – 33 ], our study highlights the importance that beyond a quantitative approach, it is essential to explore how the instrument succeeds in measuring outcomes that matter to patients, as well as patient’s understanding of the questions asked. For such purpose, qualitative methods can be applied such as, face validity, response process validity, cognitive interviewing, and comments to open-ended survey questions.…”

Section: Discussionsupporting

confidence: 80%

The assessment of psychometric properties for the subjective wellbeing-5 dimensions (SWB-5D) questionnaire in the general Dutch population

2022

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Purpose Financial resources for health care are limited, so assessment of intervention effectiveness in terms of health in relation to its costs is important. Measuring health outcomes in cost-effectiveness analyses is usually done by health-related quality of life measures, like the EQ-5D. However, over the past decade, innovations on the conceptual level of health have evolved and novel approaches are rising such as the capability approach, subjective wellbeing, and Positive Health. This study assesses the psychometric properties of the subjective wellbeing-5 dimension (SWB-5D) outcome measure. Methods A quantitative, cross-sectional study design was used to determine the concurrent and construct (convergent and known group) validity for the SWB-5D. Concurrent and convergent validity were estimated as correlations between the SWB-5D and the Dutch version of the EQ-5D, ICECAP-A, and PH-17. Assessment of known-groups validity was based on the variables illness, education, and the overall happiness (Cantril Ladder) and overall health scale (EQ-5D VAS). Results A representative sample of 1016 respondents of the Dutch population completed an online questionnaire. The SWB-5D showed reasonable concurrent validity and showed good convergent and known-group validity. The SWB-5D had a lower ceiling effect compared to the EQ-5D and ICECAP-A. Conclusion Compared to traditional health measurement approaches, novel approaches are more focused on the mental and social pillars of health. The SWB-5D shows psychometric feasibility of comprehensive measurement of health, as indicated by a range of validity measures in a large representative sample of the Dutch population.

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Section: Discussionsupporting

confidence: 80%

The assessment of psychometric properties for the subjective wellbeing-5 dimensions (SWB-5D) questionnaire in the general Dutch population

2022

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“…The strength of association of EQ VAS was high with activities of daily living (ADLs) instruments (0. 61 used qualitative methods to assess the content validity of the EQ-5D-Y-5L questionnaire in children and adolescents within psychiatric inpatient care. The study results indicated that these patients, in general, could self-report their health in a meaningful way with the EQ-5D-Y-5L questionnaire.…”

Section: Validitymentioning

confidence: 99%

Measurement Properties of the EQ-5D-Y: A Systematic Review

Golicki¹,

Młyńczak²

2022

Value in Health

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“…Thus, the response options of the youth version, EQ-5D-Y, were recently expanded to five levels [no/not, a little bit, some/quiet, a lot/really, cannot/extreme(ly)], resulting in 3125 (5 5 ) health states [6]. Expanding the response option on the EQ-5D-Y-3L has generally shown improved performance in general population and patient populations with decreased ceiling effect when compared to the expanded five level version, EQ-5D-Y-5L [7][8][9][10][11][12][13][14][15].…”

Section: Introductionmentioning

confidence: 99%

Measurement properties and responsiveness of the EQ-5D-Y-5L compared to the EQ-5D-Y-3L in children and adolescents receiving acute orthopaedic care

Verstraete¹,

Marthinus

Dix-Peek³

et al. 2022

Health Qual Life Outcomes

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Objective The aim of this study is a head-to-head comparison of the instrument performance and responsiveness of the EQ-5D-Y-3L and the expanded English version of the EQ-5D-Y-5L in children/adolescents receiving acute orthopaedic management in South Africa. Methods Children/adolescents aged 8–15 years completed the EQ-5D-Y-5L, EQ-5D-Y-3L, self-rated health (SRH) question and PedsQL at baseline. The EQ-5D-Y-5L, EQ-5D-Y-3L and SRH question were repeated after 24 and 48 h. Performance of the EQ-5D-Y-5L and EQ-5D-Y-3L was determined by comparing feasibility (missing responses), redistribution of dimensions responses, discriminatory power, concurrent validity, and responsiveness. Results Eighty-three children/adolescents completed baseline measures and seventy-one at all three time-points. Reporting of 11111 decreased by 20% from the EQ-5D-Y-3L to the EQ-5D-Y-5L. Informativity of dimensions improved on average by 0.267 on the EQ-5D-Y-5L with similar evenness. There was a range of 11–27% inconsistent responses when moving from the EQ-5D-Y-3L to the EQ-5D-Y-5L. There was a low to moderate and significant association on the EQ-5D-Y-3L and EQ-5D-Y-5L to similar items on the PedsQL and SRH scores. Percentage change over time was greater for the EQ-5D-Y-5L (range 0–182%) than EQ-5D-Y-3L (range 0–100%) with the largest reduction for both measures between 0 and 48 h. For those who respondents who showed an improved SRH the EQ-5D-Y-5L and EQ-5D-Y-3L showed significant paired differences. Conclusion The English version of the EQ-5D-Y-5L appears to be a valid and responsive extension of the EQ-5D-Y-3L for children receiving acute orthopaedic management. The expanded levels notably reduce the ceiling effect and has greater discriminatory power. Concurrent validity of the EQ-5D-Y-3L and EQ-5D-Y-5L was low to moderate with similar PedsQL items and SRH. The EQ-5D-Y-5L generally showed greater change than the EQ-5D-Y-3L across all dimensions with the greatest change observed for 0–48 h. Responsiveness was comparable across the EQ-5D-Y-3L and EQ-5D-Y-5L for those with improved SRH. Greater sensitivity to change may be observed on comparison of utility scores, once preference-based value sets are available for the EQ-5D-Y-5L.

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Acceptability of the health‐related quality of life instrument EQ‐5D‐Y‐5L among patients in child and adolescent psychiatric inpatient care

Cited by 9 publications

References 28 publications

The assessment of psychometric properties for the subjective wellbeing-5 dimensions (SWB-5D) questionnaire in the general Dutch population

The assessment of psychometric properties for the subjective wellbeing-5 dimensions (SWB-5D) questionnaire in the general Dutch population

Measurement Properties of the EQ-5D-Y: A Systematic Review

Measurement properties and responsiveness of the EQ-5D-Y-5L compared to the EQ-5D-Y-3L in children and adolescents receiving acute orthopaedic care

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