Acceptance and Well-Being in Adolescents and Young Adults with Cystic Fibrosis: A Prospective Study

Casier, Annabelle; Goubert, Liesbet; Theunis, Marleen; Huse, Danielle; Baets, Frans De; Matthys, Dirk; Crombez, Geert

doi:10.1093/jpepsy/jsq111

Cited by 35 publications

(47 citation statements)

References 52 publications

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“…Mean goal-related self-efficacy was 3.08 (SD = .34). Mean positive mood was 16.65 (M CF = 17.62; M dia = 15.35), whereas mean negative mood was 3.72 (M CF = 2.87; M dia = 4.85), which seems to be in line with previous research in adolescents with CF and diabetes (e.g., Casier et al, 2011;De Wit et al, 2010). The mean for goal facilitation was 9.53 (SD = 7.05) and 2.71 (SD = 4.01) for goal interference.…”

Section: Aggregated Datasupporting

confidence: 91%

“…In line with previous research in adolescents with chronic illness (e.g., Casier et al, 2011), higher levels of acceptance were found to relate to better daily well-being (i.e. mood).…”

Section: Running Head: Acceptance Well-being Goals In Chronic Illnesupporting

confidence: 90%

“…A total of 737 days were completed out of a possible 798 days (completion rate = 92.36 %). As presented in Table 1, mean score for acceptance was 19.32 (SD = 3.04), which is in line with previous research in adolescents with CF (Casier et al, 2011). Adolescents reported on average 1.11 negative life events during the past year (SD = 1.09).…”

Section: Aggregated Datasupporting

confidence: 89%

“…Acceptance can be defined as 'recognizing the need to adapt to chronic illness while perceiving the ability to tolerate the unpredictable, uncontrollable nature of the disease and handle its averse consequences' (Evers et al, 2001(Evers et al, , p. 1027. Questionnaire studies have shown that acceptance may have a protective role in the well-being of adolescents with illnesses such as chronic pain (e.g., McCracken, Gauntlett-Gilbert, & Eccleston, 2010;Wicksell, Olssen, & Hayes, 2011), juvenile arthritis (Feinstein et al, 2011), sickle cell disease (Masuda, Cohen, Wicksell, Kemani, & Johnson, 2011), and cystic fibrosis (e.g., Casier et al, 2011). Specifically, this research has shown that higher acceptance of chronic illness is related to positive outcomes such as less anxiety, less depression, less disability, and better emotional, social, and physical functioning.…”

Section: Acceptance Well-being and Goals In Adolescents With Chronimentioning

confidence: 99%

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Acceptance, well-being and goals in adolescents with chronic illness: a daily process analysis

Casier

Goubert

Gebhardt

et al. 2013

Psychology & Health

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Section: Aggregated Datasupporting

confidence: 91%

“…In line with previous research in adolescents with chronic illness (e.g., Casier et al, 2011), higher levels of acceptance were found to relate to better daily well-being (i.e. mood).…”

Section: Running Head: Acceptance Well-being Goals In Chronic Illnesupporting

confidence: 90%

Section: Aggregated Datasupporting

confidence: 89%

Section: Acceptance Well-being and Goals In Adolescents With Chronimentioning

confidence: 99%

See 2 more Smart Citations

Acceptance, well-being and goals in adolescents with chronic illness: a daily process analysis

Casier

Goubert

Gebhardt

et al. 2013

Psychology & Health

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“…How well parents, siblings and affected children adjust to CF is not only reflective of the severity of the illness, but also by family members' acceptance and parental coping strategies (Casier et al 2010, Wong & Heriot 2008; it is behavioural and cognitive efforts that people use which influence their coping strategies in stressful situations (Lazarus & Folkman 1984). Much of Ellen's extended family feel some sense of responsibility and guilt for her inherited lifelimiting condition.…”

Section: Living With Cf: Family Influencesmentioning

confidence: 99%

How holistic nursing can enhance the quality of life of children with cystic fibrosis

Tointon

Hunt

2016

Nursing Children and Young People

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Abstract:Cystic fibrosis is one of the most common life limiting autosomal recessive genetically inherited conditions affecting Caucasians. It is caused by mutations of chromosome 7 responsible for encoding amino acid protein 1480, the cystic fibrosis transmembrane conductance regulator (CFTR) protein. The most common mutation, affecting 75% of patients with CF in the UK, is that of delta F508 which results in the omission of phenylalanine at position 508 in the 1480 chain. However, other rarer mutations exist resulting in differing presentations of the condition. Ellen, a teenager with a rarer presentation of CF, and her family, are drawn upon in this case study to discuss living with CF and its impact upon quality of life and well-being in life limiting conditions of childhood.

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Prevalence and Incidence of Anxiety and Depression Among Children, Adolescents, and Young Adults With Life-Limiting Conditions

et al. 2019

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IMPORTANCE Children, adolescents, and young adults with life-limiting conditions experience various challenges that may make them more vulnerable to mental health problems, such as anxiety and depression. However, the prevalence and incidence of anxiety and depression among this population appears to be unknown. OBJECTIVE To conduct a systematic review and meta-analysis to estimate the prevalence and/or incidence of anxiety and depression in children, adolescents, and young adults with life-limiting conditions. DATA SOURCES Searches of MEDLINE (PubMed), PsycInfo, and Embase were conducted to identify studies published between January 2000 and January 2018. STUDY SELECTION Studies were eligible for this review if they provided primary data of anxiety or depression prevalence and/or incidence, included participants aged 5 to 25 years with a life-limiting condition, were conducted in an Organisation for Economic Cooperation and Development country, and were available in English. DATA EXTRACTION AND SYNTHESIS Random-effects meta-analyses were generated to provide anxiety and depression prevalence estimates. Meta-regression was conducted to analyze associations between study characteristics and each prevalence estimate. MAIN OUTCOMES AND MEASURES Prevalence of anxiety and depression. RESULTS A total of 14 866 nonduplicate articles were screened, of which 37 were included in the review. Of these, 19 studies reported anxiety prevalence, and 36 studies reported depression prevalence. The mean (range) age of participants was 15.4 (6-25) years. The meta-analysis of anxiety prevalence (n = 4547 participants) generated a pooled prevalence estimate of 19.1% (95% CI, 14.1%-24.6%). Meta-regression analysis found statistically significant differences in anxiety prevalence by assessment tool; diagnostic interviews were associated with higher anxiety prevalence (28.5% [95% CI, 13.2%-46.8%]) than self-reported or parent-reported measures (14.9% [95% CI, 10.9%-19.4%]). The depression meta-analysis (n = 5934 participants) found a pooled prevalence estimate of 14.3% (95% CI, 10.5%-18.6%). Meta-regression analysis revealed statistically significant differences in depression prevalence by the mean age of the sample (β = 0.02 [95% CI, 0.01-0.03]; P = .001). CONCLUSIONS AND RELEVANCE In this systematic review and meta-analysis, the prevalence of anxiety and depression among children, adolescents, and young adults with life-limiting conditions was high, highlighting the need for increased psychological assessment and monitoring. Further research is required to determine the prevalence and incidence of anxiety and depression in a larger sample of children, adolescents, and young adults with a broader range of life-limiting conditions.

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Acceptance and Well-Being in Adolescents and Young Adults with Cystic Fibrosis: A Prospective Study

Cited by 35 publications

References 52 publications

Acceptance, well-being and goals in adolescents with chronic illness: a daily process analysis

Acceptance, well-being and goals in adolescents with chronic illness: a daily process analysis

How holistic nursing can enhance the quality of life of children with cystic fibrosis

Prevalence and Incidence of Anxiety and Depression Among Children, Adolescents, and Young Adults With Life-Limiting Conditions

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