Access and engagement with places in the community, and the quality of life among people with spinal cord damage

Lakhani, Ali; Parekh, Sanjoti; Watling, David P.; Grimbeek, Peter Moodie; Ross, Daniel; Charlifue, Susan; Kendall, Elizabeth

doi:10.1080/10790268.2020.1860867

Cited by 4 publications

(2 citation statements)

References 43 publications

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“…Questions and measures were identified via a collaborative approach to identify research priorities amongst university researchers and people with lived experience of disability (Lakhani, et al 2021 ). Outcome data included measures for participation and autonomy, quality of life, health service access, and health conditions.…”

Section: Methodsmentioning

confidence: 99%

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What happens post‐lockdown for people with disability? Autonomy, quality of life, service access and health changes for people with spinal cord injury in Victoria, Australia after COVID ‐19 social distancing restrictions

Lakhani

Dema

Hose³

et al. 2022

Health Social Care Comm

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Social distancing restrictions are undoubtedly important for controlling the spread of COVID‐19 however, they are also adversely impacting population health and health service access. It is important that priority populations with a disability which may already have adverse health, access to health services, and autonomy and participation compared to those without disability, are able to receive preventative health and social care during periods of restriction. The impact of social distancing restrictions on people with disability is not uniform nor well‐understood. Research has been cross‐sectional and considered data gathered during social distancing restrictions, or longitudinal, considering data gathered during a pre‐pandemic baseline. This longitudinal study investigated the impact of lifting social distancing restrictions on priority domains for people with disability including autonomy and participation, access to health services, health issues and quality of life. People with spinal cord injury in Victoria, Australia ( n = 71) completed a survey towards the end of social‐distancing restrictions (T1) and 6‐months post social distancing restrictions (T2). Non‐parametric tests for significant differences confirmed that 6‐months post‐lifting social distancing restrictions participants experienced a significant increase in health conditions, a significant decrease in the number of inaccessible health services, and a significantly lower level of limitations across participation and autonomy, outdoor autonomy and work and education domains. QOL improved 6‐months post lifting restrictions, however not to a significant level. The adverse health experienced by people with spinal cord injury after lifting restrictions may in part result from limited health service access and reduced participation during the time of restrictions. Clear definitions of what constitutes as essential care may ensure that eligible and required care remains received during lockdown or instances when service provision is compromised. Health and social care providers should be equipped with the knowledge of priority populations so that their support can be targeted to those most in need.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

What happens post‐lockdown for people with disability? Autonomy, quality of life, service access and health changes for people with spinal cord injury in Victoria, Australia after COVID ‐19 social distancing restrictions

Lakhani

Dema

Hose³

et al. 2022

Health Social Care Comm

Self Cite

View full text Add to dashboard Cite

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Social Integration Among Adults Aging With Spinal Cord Injury: The Role of Features in the Built and Natural Environment

Tan

Forchheimer

Tate

et al. 2023

Journal of Aging and Environment

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Family Functioning, Community Participation, and Rehabilitation Barriers in the Acquired Brain Injury Community: An Exploratory Analysis

Morrison,

Patel,

Brackin

2024

Rehabilitation Counseling Bulletin

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Acquired brain injury (ABI) is the second most common cause of disability in America. Prior research highlights family functioning as an important predictor of psychosocial outcomes in the ABI population; however, there remains limited research aimed at understanding the role of family functioning in predicting rehabilitation progress and community participation. A quantitative, exploratory, descriptive research design was used for this study. A total sample of 49 individuals with mild-to-moderate ABI were recruited from a university medical center and outpatient rehabilitation center. Participants completed measures of demographics, community participation, family functioning, and perceived rehabilitation barriers. Data were analyzed using descriptive statistics and multiple regression (MR) analysis. Two MR models were examined, one with rehabilitation barriers as the dependent variable and one with community participation as the dependent variable. Financial support and perceived rehabilitation barriers contributed significantly to variance in community participation satisfaction, while financial support, family functioning, and community participation satisfaction each accounted for a significant portion of variance in perceived rehabilitation barriers. Overall, the full MR 1 model accounted for 33% of variance in community participation satisfaction, while the full MR 2 model accounted for 51% of variance in perceived rehabilitation barriers. Although more research with larger, more diverse samples is needed, this study provides rehabilitation and counseling professionals with important psychosocial concepts to consider in assessment and treatment and helps clarify the role of family in promoting positive rehabilitation and participation outcomes in the ABI community.

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Access and engagement with places in the community, and the quality of life among people with spinal cord damage

Cited by 4 publications

References 43 publications

What happens post‐lockdown for people with disability? Autonomy, quality of life, service access and health changes for people with spinal cord injury in Victoria, Australia after COVID ‐19 social distancing restrictions

What happens post‐lockdown for people with disability? Autonomy, quality of life, service access and health changes for people with spinal cord injury in Victoria, Australia after COVID ‐19 social distancing restrictions

Social Integration Among Adults Aging With Spinal Cord Injury: The Role of Features in the Built and Natural Environment

Family Functioning, Community Participation, and Rehabilitation Barriers in the Acquired Brain Injury Community: An Exploratory Analysis

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