Access to cancer screening by people with learning disabilities in England 2012/13: information from the Joint Health and Social Care Assessment Framework

Glover, Gyles; Christie, Anna; Hatton, Chris

doi:10.1108/tldr-07-2014-0024

Cited by 9 publications

(8 citation statements)

References 12 publications

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“…More recently, work in the UK collecting data through the Joint Health and Social Care Self-Assessment Framework (JHSCSAF), a mechanism within Public Health England of collecting data on PWIDs in England, suggested that, of all screening programmes in the UK, colorectal screening had the highest uptake in PWIDs, with an uptake of 41.6% in PWIDs, lower than the 50.4% uptake in the general population [52]. This is in contrast with other work in the UK published a year earlier and again obtained from the JHSCSAF, which suggested lower rates for bowel screening in PWIDs (28.1%) compared to the general population (40.5%) [53]. Canadian work comparing 15,791 PWIDs and 791,792 without IDs from administrative health and social services datasets for Ontario residents aged between 50 and 64 years has suggested lower colorectal cancer screening rates for PWIDs (32%) than in the general population.…”

Section: Screeningcontrasting

confidence: 55%

Colorectal Cancer in People with Intellectual Disabilities

Willis

Samalin

Satge³

2018

Oncology

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People with intellectual disabilities (PWIDs) are now living longer; thus, the incidence of cancer within this population is increasing. Available data indicate an excess of digestive tract cancers in PWIDs, but colorectal cancer has rarely been specifically studied and has not been extensively reviewed. This is despite risk factors such as being overweight, obesity, and lack of exercise being more frequent in PWIDs. In this article, we examine the literature on the frequency, screening, and treatment of colorectal cancer in PWIDs by as sessing 4 databases, Medline, EBSCO-CINHL, ASSIA, and PsychLIT, from 1970 to February 2017. Findings indicate that the frequency trends slightly higher than that found in the general population. Screening presents a unique opportunity to discover early colorectal cancer, but is underused in PWIDs compared to the general population. Furthermore, the clinical presentation is frequently masked, particularly by challenging behaviours, and colorectal cancer is therefore often diagnosed late, making treatment difficult due to the advanced stage of these tumours. To improve the care of PWIDs, we need more resources to support them and their caregivers, and to increase awareness of the risk factors and signs and symptoms of colorectal cancer.

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Section: Screeningcontrasting

confidence: 55%

Colorectal Cancer in People with Intellectual Disabilities

Willis

Samalin

Satge³

2018

Oncology

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“…Women with intellectual disabilities are less likely to access breast screening than the general population. This has been demonstrated in Britain (Glover, Christie, & Hatton, ; Osborn et al., ), Ireland (Reidy, Denieffe, & Foran, ), Canada (Cobigo et al., ) and Australia (Sullivan, Hussain, Slack‐Smith, & Bittles, ). However, no definitive statistic exists depicting the number of women with intellectual disabilities , who have developed breast cancer in Britain (Willis et al., ).…”

Section: Introductionmentioning

confidence: 89%

“…In the UK, 37% of women with intellectual disabilities access breast screening (Glover et al., ) compared to 71% of the total population (Institute for Public Policy Research, ). This is marginally higher compared to intellectual disabilities breast screening rates in Australia of 34% (Sullivan et al., ).…”

Section: Introductionmentioning

confidence: 99%

Exploring the impact of mental capacity on breast screening for women with intellectual disabilities

Bates

Triantafyllopoulou

2018

Health Soc Care Community

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This study explores the impact of mental capacity in relation to breast screening for women with intellectual disabilities in the UK. Participation in breast screening is considerably lower for women with intellectual disabilities compared to the general population. Barriers to screening include poor mobility and behavioural difficulties. There is currently no research which primarily explores the relationship between mental capacity and breast screening for this group of individuals. This paper presents the results of a cross‐sectional survey of 131 women with intellectual disabilities supported by eight Social Care Providers within England and Wales. The data were collected between January 2017 and July 2017. The current research explores the decision‐making process surrounding breast screening, considering the impact of associated risk factors during this process. Participants completed a specifically created survey addressing the aforementioned issues. The results indicated that women who lacked capacity, were less likely to engage in breast screening. It was also demonstrated that the process outlined in the Mental Capacity Act (MCA; 2005) was not always followed; women were not routinely assessed if there were doubts regarding their decision‐making ability around breast screening and best interest meetings (BIM) were not always held if the person lacked capacity. In order to be able to generalise the current findings, further research is needed to gain a broader understanding of how professionals make decisions around breast screening for women with intellectual disabilities in case the individuals are unable to decide this independently.

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“…This has shown a range of participation rates across the programmes but with uptake for people with learning disabilities substantially lower than for the population as a whole (Fox and Glover, 2015; see also Glover et al, 2014): ■ Of the three cancer screening programmes, colorectal screening now has the highest uptake rate by people with learning disabilities. This rate was 41.6 per cent (up from 28.1 per cent in 2012/2013), compared with the general population coverage of 50.4 per cent.…”

Section: Uptake Ratesmentioning

confidence: 99%

Cancer screening for people with learning disabilities and the role of the screening liaison nurse

Marriott¹,

Turner²,

Ashby³

et al. 2015

Tizard Learning Disability Review

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Purpose – The purpose of this paper is to describe the role of the screening liaison nurses for adults with learning disabilities employed by Peninsula Community Health. Design/methodology/approach – This paper reports on the national situation in regard to cancer screening for people with learning disabilities and explores the barriers which limit their participation in these screening programmes. It describes the screening liaison nurse role and presents case examples of the work they do. Findings – The local screening rates for people with learning disabilities have increased since the creation of this role in 2011. Originality/value – Increasing the uptake of cancer screening by people with learning disabilities is clearly in line with existing national priorities. To the author’s knowledge this is a unique role in this country and the authors propose that other areas would benefit from adopting this model of working.

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Access to cancer screening by people with learning disabilities in England 2012/13: information from the Joint Health and Social Care Assessment Framework

Cited by 9 publications

References 12 publications

Colorectal Cancer in People with Intellectual Disabilities

Colorectal Cancer in People with Intellectual Disabilities

Exploring the impact of mental capacity on breast screening for women with intellectual disabilities

Cancer screening for people with learning disabilities and the role of the screening liaison nurse

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