Access to cardiac surgery centers for cardiac and non-cardiac hospitalizations in adolescents and adults with congenital heart defects- a descriptive case series study

Insaf, Tabassum Z.; Sommerhalter, Kristin M.; Jaff, Treeva A.; Farr, Sherry L.; Downing, Karrie F.; Zaidi, Ali N.; Zutphen, Alissa R. Van

doi:10.1016/j.ahj.2021.02.018

Cited by 5 publications

(3 citation statements)

References 53 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The relationship between demographic and geographic factors and access to specialist CHD services has been well defined in a surgical context. Patients who have more severe CHD, private health insurance, and shorter driving times are more likely to present to specialist cardiac surgery centres [ 42 ] and greater distances from CHD centres results in CHD patients having surgery at non-specialist clinics [ 43 ] Of those who do attend specialist CHD surgical centres, living further away is associated with a longer length of stay, more complications, and higher cost [ 44 ].…”

Section: Discussionmentioning

confidence: 99%

An interactive geographic information system to inform optimal locations for healthcare services

2023

View full text Add to dashboard Cite

Large health datasets can provide evidence for the equitable allocation of healthcare resources and access to care. Geographic information systems (GIS) can help to present this data in a useful way, aiding in health service delivery. An interactive GIS was developed for the adult congenital heart disease service (ACHD) in New South Wales, Australia to demonstrate its feasibility for health service planning. Datasets describing geographic boundaries, area-level demographics, hospital driving times, and the current ACHD patient population were collected, linked, and displayed in an interactive clinic planning tool. The current ACHD service locations were mapped, and tools to compare current and potential locations were provided. Three locations for new clinics in rural areas were selected to demonstrate the application. Introducing new clinics changed the number of rural patients within a 1-hour drive of their nearest clinic from 44·38% to 55.07% (79 patients) and reduced the average driving time from rural areas to the nearest clinic from 2·4 hours to 1·8 hours. The longest driving time was changed from 10·9 hours to 8·9 hours. A de-identified public version of the GIS clinic planning tool is deployed at https://cbdrh.shinyapps.io/ACHD_Dashboard/. This application demonstrates how a freely available and interactive GIS can be used to aid in health service planning. In the context of ACHD, GIS research has shown that adherence to best practice care is impacted by patients’ accessibility to specialist services. This project builds on this research by providing opensource tools to build more accessible healthcare services.

show abstract

Section: Discussionmentioning

confidence: 99%

An interactive geographic information system to inform optimal locations for healthcare services

2023

View full text Add to dashboard Cite

show abstract

“…Explicit information concerning factors that could impact health, such as alcohol, smoking, physical activities, and limitations, should be mentioned during counseling. This type of information is often complex and contradictory, requiring further understanding [ 28 ]. Encouraging adolescents to participate in their care involves teaching them how to administer their medications and familiarize themselves with the complex medication names.…”

Section: Reviewmentioning

confidence: 99%

The Transition of Children Living With Congenital Heart Disease to Adult Care

Tyagi,

Sontakke

2023

Cureus

View full text Add to dashboard Cite

The article explores the significance of the timely transition of a child living with congenital heart disease (CHD) to adult care and the role played by multidisciplinary care. Due to recent healthcare advances, more children with CHD survive to adulthood without surgical intervention. This survival is mainly due to the lesion being compatible with life and its management being done medically. However, further management requires meeting the child's needs and helping him transition to become a healthy, independent adult with almost equal life expectancy as his counterparts. The article reviews the comprehensive framework of transition through multidisciplinary care. Highlighting the necessity of training physicians to acquire expertise in the management of CHD is a foundational aspect of this review article. Introduction to transition requires assessment of the child's needs through all phases of life and informative counseling of both parents and child. It highlights the approach to educating patients and families with the knowledge to safeguard compliance. Multidisciplinary collaboration from various fields such as cardiology, pediatric physiatrist, nursing, and psychology has been stressed. Patients also need to cultivate skills in self-management and independence and be educated to comprehend their condition, including the potential health issues. This collaborative and multidisciplinary process necessitates the cooperation of patients, families, and the adult congenital heart disease (ACHD) team. Emphasis has been given to individualized counseling for girls to address their sexual health. The article also highlights the possible obstacles and how to tackle them to improve healthcare adherence. Timely transition and follow-up can be measured using various tools or through indices measuring the quality of life and average life expectancy. The global patterns of transition to ACHD care have also been emphasized, as well as the need for research studies to develop reliable indicators for assessing transition success.

show abstract

“…Subsequent CDC‐funded projects expanded surveillance across the lifespan efforts to five sites in 2015, and seven sites currently. These surveillance systems have also propagated other projects to examine barriers to transition to adult cardiac care, distance to care (Gaydos et al, 2020; Insaf et al, 2021; Schlichting, Insaf, Lui, Zaidi, & Van Zutphen, 2020; Sommerhalter et al, 2017), and validity of ICD codes (Rodriguez et al, 2018) for heart defects.…”

Section: Surveillance and Researchmentioning

confidence: 99%

Prevention and awareness of birth defects across the lifespan using examples from congenital heart defects and spina bifida

Farr

Riley

Zutphen

et al. 2021

Birth Defects Research

Self Cite

View full text Add to dashboard Cite

Access to cardiac surgery centers for cardiac and non-cardiac hospitalizations in adolescents and adults with congenital heart defects- a descriptive case series study

Cited by 5 publications

References 53 publications

An interactive geographic information system to inform optimal locations for healthcare services

An interactive geographic information system to inform optimal locations for healthcare services

The Transition of Children Living With Congenital Heart Disease to Adult Care

Prevention and awareness of birth defects across the lifespan using examples from congenital heart defects and spina bifida

Contact Info

Product

Resources

About