Access to Health Information and Support

Eng, Thomas R.; Maxfield, Andrew; Patrick, Kevin; Deering, Mary Jo; Ratzan, Scott C.; Gustafson, David H.

doi:10.1001/jama.280.15.1371

Cited by 279 publications

(70 citation statements)

References 36 publications

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“…The fact that almost any health question has an available answer nowadays brings another major implication into the spotlight. The ability of the Internet and related technologies to provide support to individuals in making informed decisions related to their health may inevitably drive us to the decentralization of knowledge [36]. Another question is whether the increasingly available body of knowledge would benefit everyone and equally; however, that is an entirely different and extensive issue.…”

Section: Focusing On the Usermentioning

confidence: 99%

Genome-Based Health Literacy: A New Challenge for Public Health Genomics

Syurina

Branković

Probst‐Hensch

et al. 2011

Public Health Genomics

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So far health literacy has not been sufficiently discussed in the context of public health genomics. Primarily, not genomic but rather genome-based health information needs to be addressed taking into account genome-environment interactions and integrating all health determinants including genomics into a systemic and holistic approach. Translating findings from epigenomics and systems biomedicine will help to understand that individual biological pathways or networks are permanently interacting with environmental networks such as social networks. Thus, in the end also health literacy will become personalized. Genome-based health literacy is challenged by the question of which information is relevant for the individual, for what purpose, and at what time during the lifespan. Public health tools and expertise already in place can and should be used to tackle these huge challenges.

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Section: Focusing On the Usermentioning

confidence: 99%

Genome-Based Health Literacy: A New Challenge for Public Health Genomics

Syurina

Branković

Probst‐Hensch

et al. 2011

Public Health Genomics

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“…24 In 2000, the European Union (EU) founded the MedCERTAIN certification system which relies on Platform for Internet Content Selection (PICS)-based content rating to inform users of the quality of specific websites. 25 Other accreditation systems developed for medical information on the internet include: the Principles Governing American Medical Association 26,27 Although no universal system has been adopted, medical providers should still familiarize themselves and their patients with these various certification systems to help direct their patients' medical searches.…”

Section: Lack Of Accurate Information and The Need For A Universal Acmentioning

confidence: 99%

The internet’s role in HPV vaccine education

Patel

Berenson

2014

Human Vaccines & Immunotherapeutics

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T he internet is the second most popular source, after healthcare providers, of information regarding human papillomavirus (HPV). These online searches usually begin with the user entering generic terms in the search engine, and then reading the first few results that the engine returns. Unfortunately, research shows that much of this information obtained about the HPV vaccine is inaccurate and incomplete. In this review, we summarize the literature pertaining to online information concerning the HPV vaccine and review concerns related to obtaining online medical information. Finally, we propose possible solutions medical providers can employ in their everyday practice to help their patients obtain accurate information through their online searches. IntroductionAs many as 86% of adults in North America use the internet to access medical information, making it the third most frequent online activity.1,2 The quality of this information varies drastically, raising concerns when the information is used by individuals to make medical decisions.3,4 Internet information regarding the human papilloma virus (HPV) vaccine is no exception. In this article, we review the current use of the internet and information available through this forum with regards to the HPV vaccine. We then analyze the potential concerns regarding this mode of information exchange and propose measures that may improve the quality of information available to the public. Teenagers and the InternetUp to half of US teenagers use the internet to obtain health information. 5,6 Having grown up in the digital age, adolescents are able to surf the internet with ease. More importantly, teenagers are able to access medical information anonymously, allowing them to research topics that would otherwise be embarrassing to discuss in person. For example, teenagers often use the internet to obtain information on topics such as depression, eating disorders, sexual health, and sexually transmitted diseases. This was demonstrated by Harvey et al. who found that many of the medical questions teenagers posed to the physician-operated website Teenage Health Freak were related to sexual health. 7 Even teenagers with lower socioeconomic background seek online health information which may be due to parents with lower education asking their children to search for health information for the entire family.8 Unfortunately, this reliance on teenagers to search for health information poses serious issues with regards to the quality of the information obtained and the interpretation of the data retrieved. 7,9Parents and the Internet Parents of higher education, frequently use the internet to research their children's health problems. 10 In their study of 998 parents who accompanied their child to a primary care doctor's visit, Moseley et al. found that almost all (96%) had used the internet to obtain information on their child's health prior to the clinic

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“…Their learning about inherited diseases and treatments may influence if and how they use this information [12]. Health information use, for self or family, could improve health behaviors and patient-doctor interaction, avert preventable health conditions, and reduce health disparities [13]- [15].…”

Section: Introductionmentioning

confidence: 99%

Family Health History and Behavioral Change among Undergraduate Students: A Mixed Methods Study

Rooks¹,

Ford²

2016

Health

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Background: We examined family health history (FHH) as a public health intervention tool in undergraduate students. We hypothesized that the FHH assignment would positively relate to students' FHH knowledge and health and healthcare-seeking behavioral change. Methods: Health professional students' (n = 103) pre/post-test surveys and research papers were collected in 2011-2012, from a mid-western and southern university in the United States of America, using mixed methods research. Results: The majority of students were aged 18 -30, women, White, had healthcare access and health insurance, and awareness of the term FHH. Significant logistic regression relationships existed between: 1) helping students understand important strengths and weaknesses in their health and quality of life and outcomes of talking with family and doctors about FHH; and 2) improving students' understanding of what they needed to do to maintain their health and the outcome statement "FHH tells you about inherited genes." Key themes from the research papers included actions and FHH and proposed behavioral changes. Conclusions: Quantitative findings supported the relationship between students' assignment evaluation and knowledge change, while qualitative findings supported relationships between assignment evaluation and knowledge and behavioral change. This study highlights regional differences in students' FHH and the need to address family support barriers to behavioral change.

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Access to Health Information and Support

Cited by 279 publications

References 36 publications

Genome-Based Health Literacy: A New Challenge for Public Health Genomics

Genome-Based Health Literacy: A New Challenge for Public Health Genomics

The internet’s role in HPV vaccine education

Family Health History and Behavioral Change among Undergraduate Students: A Mixed Methods Study

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