“Accessibility”: A new narrative of healthcare services for people living with HIV in the capital city of Indonesia

Mahathir, Mahathir; Wiarsih, Wiwin; Permatasari, Henny

doi:10.33546/bnj.1409

Cited by 4 publications

(4 citation statements)

References 33 publications

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“…The only treatment for HIV infection is antiretroviral therapy (ART) (Indonesian Ministry of Health, 2019 ). ART is recommended for patients with HIV infection by disturbing the virus replication and reducing the virus levels, thereby improving immunity and reducing the occurrence of opportunistic infections and the mortality rate (Godfrey et al, 2017 ; Karyadi, 2017 ; Mahathir et al, 2021 ). Consequently, adolescents’ quality of life following ART will be improved.…”

Section: Introductionmentioning

confidence: 99%

“I can live a normal life”: Exploring adherence to antiretroviral therapy in Indonesian adolescents living with HIV

et al. 2022

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Background: Adherence to antiretroviral therapy (ART) can be challenging since it needs to be continued for a lifetime. At their age, adolescents start to be responsible for their life, and this continued therapy might be a challenge for them. Objective: This study explored the experiences of adherence to ART in adolescents living with HIV in Jakarta, Indonesia. Methods: A qualitative study with an Appreciative Inquiry (AI) approach was employed to explore challenges adolescents face in ART adherence which focused more on positive aspects of the experience. In-depth interviews were conducted with ten adolescents who were selected purposively based on criteria including those aged 13-19 years, having been diagnosed with HIV infection and receiving ART for more than a year, and never having discontinued ART. All participants were registered in the outpatient clinic in one top referral hospital in Jakarta. The data were analyzed using thematic analysis. Results: Five themes were identified from the data: living a normal life, wanting to be healthy, taking medication on time, challenges in undergoing treatment, and there is hope. Conclusion: Adolescents with HIV want to live as normal and healthy as possible, like other adolescents. Even though adolescents face several challenges to comply with ART, they try to take the medication as prescribed. The findings of this study serve as input for nurses to maintain compliance with ARVs in adolescents who have HIV.

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Section: Introductionmentioning

confidence: 99%

“I can live a normal life”: Exploring adherence to antiretroviral therapy in Indonesian adolescents living with HIV

et al. 2022

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“…Supportive resources help to make the daily life of people living with HIV/AIDS more bearable and enable them to better adapt to the conditions of the disease (28). Another study also found that using the experiences of others living with HIV/AIDS played an important role in controlling the disease and its complications (29). In Kyakuwa's study, a group of HIV-positive nurses initiated a support process by creating safe spaces for interacting and seeking psychosocial support among themselves in a relatively secretive way (30).…”

Section: Efforts To Returnmentioning

confidence: 99%

“Struggle against Bitter Life”: Lived Experience of Iranian Nurses with HIV/AIDS

SALEHI,

MOHAMMADI,

ARDEBILI

et al. 2023

Maedica

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Objectives:The impact of HIV/AIDS on the healthcare system in many countries, particularly in developing countries is significant. Due to the high prevalence of HIV/AIDS in these countries, remarkable number of nurses have contracted HIV through their work. HIV/AIDS poses a major threat to people's physical and emotional health status as well as their social well-being and it has overwhelming effects on personal and social lives of HIV-positive people. HIV-positive nurses, like other patients, are subject to many stresses, but because of their special professional and social conditions they may bear more psychological and social burdens.Materials and methods: A hermeneutic phenomenological approach was used to examine the everyday experiences of nurses who suffer HIV/AIDS. To conduct the study, six methodical steps which developed by van Manen (1990) applied in the process of the inquiry. Eight HIV-positive nurses were recruited and selected through a purposive sampling method. Data was collected by conducting 12 face-to-face in-depth semi-structured interviews with participants, two women and six men who became HIV-infected through occupational exposure. A thematic analysis method was used to extract themes and sub-themes.Results: Through thematic analysis of transcriptions, two main themes 'past, not passed' and 'struggle against bitter life' emerged. We found that the daily life of HIV/AIDS nurses is like a limbo between the past and the present. They are constantly trying to push themselves from this limbo of death to life.Conclusions: According to the results, participants were immersed in bitter memories of their past, which has always cast a dark shadow over their lives. Their lived space surrounded by many bitterness and adversities,

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“…Most of these studies were quantitative and evaluated the correlation between ART adherence and knowledge, support system, and education level (Fahriati et al, 2021 ; Haryadi et al, 2020 ; Sianturi & Dorothea, 2020 ). Few qualitative studies have examined HIV in Indonesia, including the ART regimen (Agnes & Songwathana, 2021 ; Edison et al, 2021 ; Harison et al, 2020 ; Ismail et al, 2022 ; Mahathir et al, 2021 ; Nuraidah et al, 2022 ; Nurfalah et al, 2019 ). However, none of previous studies examined the process of ART adherence among PLWH.…”

Section: Introductionmentioning

confidence: 99%

Self-awareness as the key to successful adherence to antiretroviral therapy among people living with HIV in Indonesia: A grounded theory study

et al. 2023

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Background: Adherence to antiretroviral therapy (ART) continues to pose a significant challenge for people living with HIV (PLWH). Non-adherence to ART can have far-reaching implications for patient well-being, particularly in increasing the risk of opportunistic infections when medication is not taken as prescribed. Objective: This study aimed to develop a theoretical model that explains how PLWH in Indonesia adhere to their ART regimen and the strategies they follow to maintain adherence. Methods: The study used a grounded theory approach. Data were collected through face-to-face in-depth interviews with 21 PLWH who had been taking ART for six months or more at a non-governmental organization (NGO) in Jakarta, Indonesia, between July 2019 and November 2019. Theoretical sampling was used, and the data analysis method of Corbin and Strauss was utilized, including open coding, axis coding, and selective coding. Results: Three stages were identified as a process of adherence to the ART regimen: 1) initiating ART, 2) missing the connection, and 3) taking control. Self-awareness was identified as the central core theme describing the ART adherence process. Conclusion: Having adequate self-awareness to take ART regularly is crucial to improving adherence to ART. Moreover, social support from one’s spouse and family members can help patients maintain adherence. Therefore, self-awareness and support systems should be included as components in nursing interventions when starting ART therapy. In addition, nurses can help identify potential support persons and provide information related to ART therapy.

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“Accessibility”: A new narrative of healthcare services for people living with HIV in the capital city of Indonesia

Cited by 4 publications

References 33 publications

“I can live a normal life”: Exploring adherence to antiretroviral therapy in Indonesian adolescents living with HIV

“I can live a normal life”: Exploring adherence to antiretroviral therapy in Indonesian adolescents living with HIV

“Struggle against Bitter Life”: Lived Experience of Iranian Nurses with HIV/AIDS

Self-awareness as the key to successful adherence to antiretroviral therapy among people living with HIV in Indonesia: A grounded theory study

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